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can gadolinium cause MS symptoms
Last year, being fine other than a big head ache, received 2 MRI of the brain with contrast. Had itchy reaction and abdominal pain after first. Second even with Prednisone, felt burning in lower legs. Soon to follow were pains in various parts of the body, and some numbness and tingling. Have good days and bad, seems to be less painful as time goes on. Had MRI of neck to see if the numbness in fingers was because of pinched nerves. Blood tests were done. Blood normal, and sed, ana and some other one negative. Dr. thinks it is fybromyaglia or something. He is stumped. It literally hit hard after the second MRI. My doctor is reluctant to say it is toxic metal poisoning.
Here is the concern.
Some of the gadolinium does de-chelate. Hence the problem with some people when they have calcium problems. The chelating agent prefers calcium and zinc and will on occasion release it's bond with gadolinium. What happens to this free gadolinium?
I did not drink a lot of fluids after the test. They never told me. I found out later that they know so little about what they do.
Where does the gadolinium go and does the body ever remove it?
If the free gadolinium can cause MS like symptoms, then during the next exam, is it possible that the gadolinium caused damage that will then be shown on the next MRI. Gadolinium is a heavy metal with odd properties. In effect, it may look like someone is sick with a disease that is caused by the test.
Gadolinium is such big business and the medical community jumped in it without regard for long term problems. How if MS is genetic that it is increasing? It should be stable compared with a slight upward trend with population growth.
I just need someones opinion.
Here is the concern.
Some of the gadolinium does de-chelate. Hence the problem with some people when they have calcium problems. The chelating agent prefers calcium and zinc and will on occasion release it's bond with gadolinium. What happens to this free gadolinium?
I did not drink a lot of fluids after the test. They never told me. I found out later that they know so little about what they do.
Where does the gadolinium go and does the body ever remove it?
If the free gadolinium can cause MS like symptoms, then during the next exam, is it possible that the gadolinium caused damage that will then be shown on the next MRI. Gadolinium is a heavy metal with odd properties. In effect, it may look like someone is sick with a disease that is caused by the test.
Gadolinium is such big business and the medical community jumped in it without regard for long term problems. How if MS is genetic that it is increasing? It should be stable compared with a slight upward trend with population growth.
I just need someones opinion.
Hi,
I am in UK. I had MRI with gadolinium dye, dotarem. A day later I could hardly move my hand. I got pain in wrist and up arm. Went to my GP who said it was plebitis and would go in 2 weeks. 2 weeks later, still bad, I saw another GP who said it was extravasation (injected into tissue not vein) and to give it 5 weeks. Weeks later I am still suffering but went to GP today and she said it had been so long it couldn't be the dye. She said my body would have metabolised it. No one will believe me. She said I was fixated on it being caused by the dye. i rang the MRI dept for advice and the chief radiologist said in his 20 years of experience he had never heard of a delayed reaction, though he did say it was possible but he made me feel stupid. I am in any campiagn to wake upthe UK medical profession.
I am in UK. I had MRI with gadolinium dye, dotarem. A day later I could hardly move my hand. I got pain in wrist and up arm. Went to my GP who said it was plebitis and would go in 2 weeks. 2 weeks later, still bad, I saw another GP who said it was extravasation (injected into tissue not vein) and to give it 5 weeks. Weeks later I am still suffering but went to GP today and she said it had been so long it couldn't be the dye. She said my body would have metabolised it. No one will believe me. She said I was fixated on it being caused by the dye. i rang the MRI dept for advice and the chief radiologist said in his 20 years of experience he had never heard of a delayed reaction, though he did say it was possible but he made me feel stupid. I am in any campiagn to wake upthe UK medical profession.
hi everyone, i had posted the long gad reaction post years ago..so sorry i didnt respond sooner. i did eventually get over the symptoms of elbow pain, vessel breakage and bladder irritation. but i continue to have problems that i cannot say the gad caused ...as i had problems pre gad. i have not myself heard of connection to cancer, but, it is a toxic metal...and if you dont clear it out of your system...it could release. did they do a renal panel on you before they injected you? you did not state spec your symptoms before or after your injection? my doc wants me to have another mri w gad and i ran out of his office....never again! anyone who want to emai me direct im at ***@****
Hi Suki,
if you are still on the forum, can you please contact me and let me know your situation. I am still fighting the hospital and recently had more tingling and burnign sensations all over. My ferritin level was still up and this is a year after the mri. my cancer consultant think i am still suffering from the consequence of the gadolinium If I get more people involved from the uk then i can write to the ombusdman agency and parliament to stop this thing going on in hospital. i started a petition which everbody can sign.
if you are still on the forum, can you please contact me and let me know your situation. I am still fighting the hospital and recently had more tingling and burnign sensations all over. My ferritin level was still up and this is a year after the mri. my cancer consultant think i am still suffering from the consequence of the gadolinium If I get more people involved from the uk then i can write to the ombusdman agency and parliament to stop this thing going on in hospital. i started a petition which everbody can sign.
Hi Suki
I am the same person you tried to contact in March 2012. So if you have info for me please let me know. We should make a petition to the uk gov to stop this happening in hospitals in the country. Radiographers are all jumping on the bang wagon of gadolinium to make their life easy without any concern or consideration for human beings. We should try to make this public news as they have done in USA, so everybody is aware of the dangers.
I am the same person you tried to contact in March 2012. So if you have info for me please let me know. We should make a petition to the uk gov to stop this happening in hospitals in the country. Radiographers are all jumping on the bang wagon of gadolinium to make their life easy without any concern or consideration for human beings. We should try to make this public news as they have done in USA, so everybody is aware of the dangers.
I wasn't on the forum, but just today I read your message. I developed cancer of the womb 6 months later the injection. I as very well before, no one in my family suffered form cancer and I went through hell as I also developed sensitiveness to every things including the anaesthetic and I almost died in October last year. I m still out of work and recovering. I have now and then still tingling, blood rushing around my body, burning and this sensation in my eyes as if somone is twisting them inside. I have had blood test done, eyes test done, nothing abnormal reported, except ferrotin a bit high, but they said it was because of the operation, prior to that it was normal. The hospital does not wish to give me more answers. The nurse apparently was a radiographer who did that to me and she denying giving me extra gad or something else. My gyno cancer surgeon believes that there is a link betwen the two things. The gad used was Dotarem.They wanted me to have a meeting with the manufacturer at the hospital but because of the operation I could not go, now hey said I rejected their help. At the beginning they did not offered me any help at all and thought I was a crazy one.
I have been in touch with cancer uk and they said that dotarem people never done a test for cancer on that medication. Please reply as soon as possible.
I have been in touch with cancer uk and they said that dotarem people never done a test for cancer on that medication. Please reply as soon as possible.
Tina are you still on this forum??? Please post again if you are. The UK is not recognising what is happening to people getting gadolinium, whatever their kidney function is. I can help you find a support group on the net where there are others like you and me. We have to do something.
Is anybody else still here.
Is anybody else still here.
How are you these days? Have you got over those symptoms? I had gad in April this year (dotarem) the nurse let some liquid go into my veins. i felt and feeling such the same as you did but cannot persuade my doctor and the hospital that the things are related. Also I cannot find a solicitor in UK able to take the case for me for damages and sickness caused.
Plse let me know how you survived the nightmarew as you reported it on this forum 2 years ago.
Plse let me know how you survived the nightmarew as you reported it on this forum 2 years ago.
I am a 43yr old female, who developed weird headaches, head pains, w/dizziness, had an MRI, refused the gad, when they said my head looked fine, but, incidently found a mediastinal cyst (caught at the bottom of my c-spine), it extended into the thoracic spine area
they now wanted to rule out bad things about the cyst....so resch me for a t-spine MRI with contrast. they said they couldnt tell what it was, without contrast.
I had a routine serum kidney/liver panel done in Jan 08...my doctor checked everything was Ok.
By now, my weird headaches and pains, that had lasted 9 months, had simmered down to practically no pains. I took no medication. It just passed. Unexplainable.
I had every blood test done in the world.
We ruled out arthritis, no systemic inflammation, no lyme, no syphilis, no nothing, no allergies, hormones all a-ok. no anything that you could detect.
I had put off the cyst, until I started getting BACK pain, something I never had....and guess where it was, THORACIC. After three months, I began to worry, naturally, I felt the cyst and the pain were connected,
The radiologist said the only way he could put my mind at ease and really rule out alot of things, was with the gad.
All my friends were like DO IT....you'll be fine.
Nov 1st 2008 I was scheduled for the MRI w/gad
I really didnt want the gad. I asked alot of questions, esp to the tech. He said they used ProHance, or MultiHance....depending on kidneys functions. He said he would check my functions before we got going. He came out and said my functions were good, so I would get Prohance, asked me my weight, and I said I would get normal dosage.
I had started drinking alot a few days before.....to be sure I was hydrated
30 seconds after injection, I could feel the vessels in my head, starting to spasm
Within 2 minutes I had the worst headache of my life. I throught I was having a stroke.
Dizzy, out of it, I staggered out of the cylinder and told the tech, who said "Headaches are NOT a side effect, have a nice day!"
Three days later, after urinating and drinking night and day, it felt like I developed a bladder infection. I go get a urinalysis...clear, normal. I told him I had an MRI w/gad 3 days earlier, my head, and the story. He said that ALOT of people get cystitis from gad.
He sees it alot. They inject gad when they do cystographys..It irritates the bladder epithelium. huh, dont read much about THAT in the internet now do we?
He said to give it a few days. I did, and it DID go away.
The radiologist report said the cyst was harmless, benign, I had cervical spondylosis, with some disk bulge...I had some lordosis...The ortho doc who ordered the MRI said everything looked fine to him. Goodbye.
However the headache/severe dizziness, stayed with me for 2 weeks. It had triggered whatever had been wrong with my head a year ago...I was reliving that nightmare.
Mind you, I have to go to work everyday and function as if Im perfectly ok.
5 weeks later,. I wake up and my arms feel like I strained them...my elbows were tender
then, my biceps and triceps were burning, BURNING. my inner thigh start cramping when i bent, i shrugged it off, until the other one did the same.....then what feels like nerve pain under my armpit, then the other. Then, numbness, fingers, arms. Tingling.
Im thinking, ok, here we go....something else.
A few Blood vessels start breaking and I develop little hematomas inside my thighs.
Its been 3 weeks since all this new syndrome developed, and I feel like Im going crazy. I cant tell if its just coincidence and something ELSE is wrong, or if its a result of the gadolinium. I keep waiting to wake up and it will all have stopped hurting. But it hasnt, and the pain moves all day around my joints...and muscles....sometimes aching, cramping, shooting, burning. No redness. No swelling. I know that NSF is hardness and swelling, but maybe thats later?
maybe its totally unrelated.
just like the weird headaches and dizziness...maybe this too shall pass....
I keep drinking.....I even bought bentonite clay, thinking if there is gad left behind, it might pull it out!
but its just damning luck
So Im taking it day by day.....Im not ready to go back to any doctors anytime soon
Its painful, but I can still walk and use my arms....stiffly
If it gets worse....I will have to go
How are your symptoms doing?
they now wanted to rule out bad things about the cyst....so resch me for a t-spine MRI with contrast. they said they couldnt tell what it was, without contrast.
I had a routine serum kidney/liver panel done in Jan 08...my doctor checked everything was Ok.
By now, my weird headaches and pains, that had lasted 9 months, had simmered down to practically no pains. I took no medication. It just passed. Unexplainable.
I had every blood test done in the world.
We ruled out arthritis, no systemic inflammation, no lyme, no syphilis, no nothing, no allergies, hormones all a-ok. no anything that you could detect.
I had put off the cyst, until I started getting BACK pain, something I never had....and guess where it was, THORACIC. After three months, I began to worry, naturally, I felt the cyst and the pain were connected,
The radiologist said the only way he could put my mind at ease and really rule out alot of things, was with the gad.
All my friends were like DO IT....you'll be fine.
Nov 1st 2008 I was scheduled for the MRI w/gad
I really didnt want the gad. I asked alot of questions, esp to the tech. He said they used ProHance, or MultiHance....depending on kidneys functions. He said he would check my functions before we got going. He came out and said my functions were good, so I would get Prohance, asked me my weight, and I said I would get normal dosage.
I had started drinking alot a few days before.....to be sure I was hydrated
30 seconds after injection, I could feel the vessels in my head, starting to spasm
Within 2 minutes I had the worst headache of my life. I throught I was having a stroke.
Dizzy, out of it, I staggered out of the cylinder and told the tech, who said "Headaches are NOT a side effect, have a nice day!"
Three days later, after urinating and drinking night and day, it felt like I developed a bladder infection. I go get a urinalysis...clear, normal. I told him I had an MRI w/gad 3 days earlier, my head, and the story. He said that ALOT of people get cystitis from gad.
He sees it alot. They inject gad when they do cystographys..It irritates the bladder epithelium. huh, dont read much about THAT in the internet now do we?
He said to give it a few days. I did, and it DID go away.
The radiologist report said the cyst was harmless, benign, I had cervical spondylosis, with some disk bulge...I had some lordosis...The ortho doc who ordered the MRI said everything looked fine to him. Goodbye.
However the headache/severe dizziness, stayed with me for 2 weeks. It had triggered whatever had been wrong with my head a year ago...I was reliving that nightmare.
Mind you, I have to go to work everyday and function as if Im perfectly ok.
5 weeks later,. I wake up and my arms feel like I strained them...my elbows were tender
then, my biceps and triceps were burning, BURNING. my inner thigh start cramping when i bent, i shrugged it off, until the other one did the same.....then what feels like nerve pain under my armpit, then the other. Then, numbness, fingers, arms. Tingling.
Im thinking, ok, here we go....something else.
A few Blood vessels start breaking and I develop little hematomas inside my thighs.
Its been 3 weeks since all this new syndrome developed, and I feel like Im going crazy. I cant tell if its just coincidence and something ELSE is wrong, or if its a result of the gadolinium. I keep waiting to wake up and it will all have stopped hurting. But it hasnt, and the pain moves all day around my joints...and muscles....sometimes aching, cramping, shooting, burning. No redness. No swelling. I know that NSF is hardness and swelling, but maybe thats later?
maybe its totally unrelated.
just like the weird headaches and dizziness...maybe this too shall pass....
I keep drinking.....I even bought bentonite clay, thinking if there is gad left behind, it might pull it out!
but its just damning luck
So Im taking it day by day.....Im not ready to go back to any doctors anytime soon
Its painful, but I can still walk and use my arms....stiffly
If it gets worse....I will have to go
How are your symptoms doing?
HI: Im not a dr. here just a patient , you can read my postings since July of 06 or so about what i had happen to me, Very bad head pressure etc, sudeen and had MRI of brain, they found brain lesiosn twqo both sides. Was a yr of H until the lesions became less prominent , I had the gadelinium done once , i hated having it as i have allergies and very sensitive to everything. < I did not have any predinsone as neuro said no way , he wouldn;t give it to me as he felt that the Gadelinium was safe for me. However i did take benedryl. The first thing i felt was a pain and sharpness in my chest, the paramedic who administered the injection in my arm said that isn;t a typical symptom, it lasted until about a ahalf hour of which i also had hives on my chesst and burning. I was scared w the chest pain as i have Mitral Valve prolapse and am afraid now to have another gadelium done, also days after it i had wheezing badly and also heart racing more than normal and never had the racing heart , only palps. I read your post it sounds like your concerned. I don;t like having it either. I don;t believe that gadelinium can cas MS to occur, that is a neuorlogical disease and or autoimmune trouble. It sound slike you had a reaction, but what are some of your reg dailyn ailements besides the head pain you mentioned that maybe could have been the cause after the gad,. I think thew contrast could cause burning,,..again i don;t know your whgole history and am not a dr.. but it caught my eye the mention of gad, I am up for another MRI of head , neck and cervical and have put it off as they won;t let me do it wiohout the gad. I am very afraid w the chest pain and hear tthing i have, even if its in a hosp i am scared. I get so many issues w allergies. Take care, let me know ,, Kit
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