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Adenocarinoma-basketball cyst, 3 options to consider?

Surgery Nov 3, 2010 -told it was a pelvic mass, an adenocarcinoma that came from mucinous cystadencarcinoma and that the mass was MY ovary and when cut open it was honeycombed inside-cysts within cysts and that the cancer was contained inside the mass, not on the outside wall.  They did a peritoneal wash, removed the omentum, both ovaries, falopian tubes & appendix and found no other signs of cancer.  I have been given 3 choices 1) Do Managment - regular gyn/onc visits for testing-bloodwork/ultrasounds; 2) Do 6 rounds of monthly Chemo-to start January and 3)  Exploratory pelvic surgery to see if there is any other cancer, or see if the cancera actually started somewhere else OR did it start & stay contained in the ovary-I was told this was more invasive than the surgery I just went through and comes with many added risks. I am 54 & a breast cancer survivor from the age of 31.
Anyone else given these 3 choices, and were you happy with your pick?  
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Avatar universal
I am so sorry to hear about your recent findings.  What stage and grade was your cancer?  Certain types of ovarian cancer like clear cell are higher grade and need chemo even in early stages.  In general, though, cancer that is Stage1 is considered cured with surgery.  Have you been seeing a gynecologic oncologist?  Is he/she the one who has given you these three choices?  If you haven't seen one, it is very, very important that you see one as soon as possible so he/she can help you make your decision.   Here is a link to help you find one in your area (if needed):

http://www.wcn.org/findadoctor/

Certain mucinous tumors arise from the appendix or other organs.  Once I know your grade and stage of your cancer, I can give you my opinion on what I would do.  I had Stage 1a three and half years ago and I chose to get regular follow-up and skip chemo.  But, I would have picked chemo had I had clear cell.  My pathology clearly showed it was a primary ovarian cancer.  It is hard to make a decision on treatment, but a good gyn/onc should help you make the "best" choice for your situation.    You may want a second opinion on your tumor's pathology if it wasn't already done at a major cancer center.  Pathology is a very important step in determining if you may be dealing with a primary or secondary cancer.  Let me know your stage and grade and I'll be happy to give you my opinion on what I would do.  But, a gyn/onc is the real expert!

Hang in there!

Shelly
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Avatar universal
Thanks for your reply.  The more I research the more I find out I don't know.  I was not told what stage, grade or cell type.  I was told the pelvic mass was my ovary, the cancer seemed to be contained in the ovary & was honeycombed. Because they removed both ovaries, falopian tubes, appendix and omentum-there was no evidence of cancer.  They don't know IF the ovary was the primary cancer or if it came from somewhere else-that is why 1 of my 3 followup choices is for a 2nd surgery to go in and take lymphnodes and multiple biopsies-Dr. said this is a much more invasive surgery than I just went through in Nov and this was not something she would recommend as there are alot of compliations that can occur with the 2nd look surgery.  I forgot to mention that I had a hystarectomy in 1994 due to heavy bleeding & was very anemic.

I have a medical team of 4 Dr who are gyn/onc + 2 med students & a clinic RN who are taking care of me, apparently 1 of the best in our city.  Although I asked the Dr. which option she would suggest, she said she can only explain the options but not recomend.  It did seem by her explanations that her lst choice was-Management, which she called do nothing-with clinical followups for bloodwork & ultrasound-as the cancer SEEMED to be contained-BUT because there may be cancer cells elsewhere OR the primary cancer is somewhere else SHE said my 2nd option is to followup with 6 monthly rounds of Chemo.

My husband & I (he was with me when I received the diagnosis) decided that the Dr. was leaning to lst option-do nothing; 2nd do chemo and that the 3rd option of 2nd look surgery/staging surgery should NOT be a choice.

I will call my clinic RN on Monday-Dec 20th and ask IF my file has the stage, grade & cell type and let you know what the answer is.

Did you do the 6 months of chemo, and if so how were the side effects?  We meet with my Dr. on Jan 10th to discuss my chemo recipe & what to expect-they have booked me to start the chemo the following week, IF I pick the Managment Option I can cancel my chemo BUT this was I was told I am already scheduled.

My boss is thinking I could go back to work during my chemo, even a couple hours here and there.  My thought is IF I only have the 2/4 good days before the next chemo round I would rather spend my GOOD energy on my family and myself vs work.  I told him this time I am taking care on myself first and not my work clients who seemed to be lst in my life from Monday to Friday.
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