Thanks for your reply. The more I research the more I find out I don't know. I was not told what stage, grade or cell type. I was told the pelvic mass was my ovary, the cancer seemed to be contained in the ovary & was honeycombed. Because they removed both ovaries, falopian tubes, appendix and omentum-there was no evidence of cancer. They don't know IF the ovary was the primary cancer or if it came from somewhere else-that is why 1 of my 3 followup choices is for a 2nd surgery to go in and take lymphnodes and multiple biopsies-Dr. said this is a much more invasive surgery than I just went through in Nov and this was not something she would recommend as there are alot of compliations that can occur with the 2nd look surgery. I forgot to mention that I had a hystarectomy in 1994 due to heavy bleeding & was very anemic.
I have a medical team of 4 Dr who are gyn/onc + 2 med students & a clinic RN who are taking care of me, apparently 1 of the best in our city. Although I asked the Dr. which option she would suggest, she said she can only explain the options but not recomend. It did seem by her explanations that her lst choice was-Management, which she called do nothing-with clinical followups for bloodwork & ultrasound-as the cancer SEEMED to be contained-BUT because there may be cancer cells elsewhere OR the primary cancer is somewhere else SHE said my 2nd option is to followup with 6 monthly rounds of Chemo.
My husband & I (he was with me when I received the diagnosis) decided that the Dr. was leaning to lst option-do nothing; 2nd do chemo and that the 3rd option of 2nd look surgery/staging surgery should NOT be a choice.
I will call my clinic RN on Monday-Dec 20th and ask IF my file has the stage, grade & cell type and let you know what the answer is.
Did you do the 6 months of chemo, and if so how were the side effects? We meet with my Dr. on Jan 10th to discuss my chemo recipe & what to expect-they have booked me to start the chemo the following week, IF I pick the Managment Option I can cancel my chemo BUT this was I was told I am already scheduled.
My boss is thinking I could go back to work during my chemo, even a couple hours here and there. My thought is IF I only have the 2/4 good days before the next chemo round I would rather spend my GOOD energy on my family and myself vs work. I told him this time I am taking care on myself first and not my work clients who seemed to be lst in my life from Monday to Friday.
http://www.wcn.org/findadoctor/
Certain mucinous tumors arise from the appendix or other organs. Once I know your grade and stage of your cancer, I can give you my opinion on what I would do. I had Stage 1a three and half years ago and I chose to get regular follow-up and skip chemo. But, I would have picked chemo had I had clear cell. My pathology clearly showed it was a primary ovarian cancer. It is hard to make a decision on treatment, but a good gyn/onc should help you make the "best" choice for your situation. You may want a second opinion on your tumor's pathology if it wasn't already done at a major cancer center. Pathology is a very important step in determining if you may be dealing with a primary or secondary cancer. Let me know your stage and grade and I'll be happy to give you my opinion on what I would do. But, a gyn/onc is the real expert!
Hang in there!
Shelly