Physiotherapy is not something that any of the ladies I've worked with here have had. I am amazed they haven't put in drains for your infection. I do think a 2nd opinon would help here.
My doctor said there is nothing they can do about my toilet issues. I have lost near enough all feeling between my belly button and half way down my thighs due to the surgery. I've been on anti biotics repeatedly for the infections. It gets rid of it for a while then it comes back in full force. My scar has burst in numerous different places due to the amount of infected mucus behind it and I end up in hospital with it so they can sew me back up. Its an exhausting and arduous experience.
They never even gave me physiotherapy after either surgery. I still can't push a hoover round as it leaves me in agony. I used to ride horses and swim and bike ride and I can no longer do any of those things. I can't even walk for too long.
I feel like my doctors have failed me. My surgeon was great as was my oncologist but my out patients doctor is useless. I repeat the same things to him every 3 months when I go for my check ups and he just keeps saying it will sort itself out in time. Well for me 3 years is time enough and they still won't do anything. Because of this I have gone from weighing 8 stone and feelnig good about myself to 13 stone and barely leaving the house because of the embaressment (which sounds awful as its not really that big but its still destroyed my self esteem)
I'm so sorry for your loss and for all the continued pain and issues today. That is not the kind of reminder you need. Has your doctor sent you to any specialists to look at the bathroom issues and infection issues? Sometimes the shock of surgery can trigger autoimmune issues and you should have that checked out.
My first cyst was the size of a football and I nearly died. They had to take my right ovary and fallopian tube and part of my liver away and it crushed a lot of my internal organs. At 19 years old I can't tell if I need to go to the toilet or not so I can't be too far away from the bathroom at any point during the day. The second cysts meant they had to take away two thirds of my left ovary and I now can't have children which tore me apart as I lost my baby at 5 and a half months only two weeks before my first operation.
I think they should tell every woman who is at risk or has had ovarian cysts to go on the pill straight away. It should be mandatory as it could save us women a lot of heartache.
If they'd have told me my life would be completely different now. 3 years since my first surgery and I suffer with muscle spasms that leave me in agony and unable to move as they cut me from the bellybutton down to my pubic bone and it is 2 years since my second surgery and I still suffer from infections in my scar (a ceaserean incision).
It annoys me that such important information is left unsaid when it can help so many women
It is common to use birth control pills to stop you from ovulating and thus stop you from creating additional cysts. Unfortunately our doctors tend to let us down by only reacting to current situations and not being proactive. I can't take birth control pills so wasn't an issue with me. But when I had my first surgery (a laparotomy for a grapefruit sized cluster of cysts) it was going to be risky. I have had my large bowel removed and have some creative parts in there and am full of adhesions. In addition to the gyn a general surgeon came in. I asked for a complete hysterectomy so I wouldn't have to worry about any future risky operations. Well, they didn't do it. They only took out the ovary, tube and cysts. They said it would have been too risky since all my internal organs were glued together. I was disappointed. I now have a cyst on my remaining ovary and here we go again. Very maddening...
No, I am not on pills after first surgery.