My 22 x 19 x 12cm Cyst

[MandiNKel]

Hi I'm new to the forum so here is abit about me and my situation.
My name is Mandi I'm 33, I've got a 14yr old son and have been with my other half 16yrs. I have suffered with IBS for about 7yrs now, so its normal for me to suffer with pain and bloatedness.
In May I went to the doctors bloated thinking my IBS was playing up more than normal, the doctor asked about my periods at this time I was regular as clockwork so gave me some medication which seemed to help. The following 2mths my periods become irregular so I returned to the doctors. I seen the lady doctors who asked me to make an appointment with the nurse for some swabs to be taken.
Two weeks later I returned for my results, my abdomin had bloated up even more. She examined my abdomin and gave me an internal and could feel a lump , said I needed to have a scan to see what it was.
Well I had my scan yesterday was ment to have an external and an internal, but ened up only needing the external. The lady conducting the scan said I had a cyst and that she would be fast tracking my result to the doctor and to make an appointment for the results in 3-4 days. Well 11am this morning the doctor phoned me and said I needed to go in and see him at 4pm at another practise as our medical centre wasn't open.
The results of my scan was that I had a 22 x 19 x 12cm cyst and that he needed to refer me to a gyneacologist.
I was ment to be going on holiday to Marmaris with my family and my cousins family so asked about this, but the doctor was unable to say if I would be able to go or not.
On the 5th August I recieved a phone call from the hospital with an appointment for the 9th August. So on the 9th I went to my appointment hoping that one way or another I would find out what was happening and if I'd be able to go on holiday. The doctor re-examined me took all my medical and family history down and explained things to me and that the only option available to me was open surgery. I asked about my holiday but she was unable to tell me and said someone would be in touch before Friday, I was then sent for my bloods to be done.
The very next day I recieved a phone call from the registras receptionist to say that I couldn't go on holiday as it was too high of risk :( Once off the phone I set about canceling and claiming.
On the 14th I recieved an appointment for a CT scan on the 19th, on the appointment letter said I would be given something to drink and that I may be given an injection.
Well I didn't expect to be given a 3lt jug to drink or to have a cannula put in and be linked up to a IV.
I'm sure it is still growing gradually my pain has got worse, on a night I'm restless with discomfort and pain, the most comfortable position is laid down on the sofa as when I sit I get extreme pain in my back. I can no longer wear my bra as my tummy is so big now that when I wear my bra it digs into the top of my tummy and is very painful.
I've never had surgery so I'm quite scared, but just want it over and done with.

[hopeshell]

It is very normal to feel very tearful and anxious.   I felt this way!  It is hard to realize you have to have surgery and you have had the disappointment of canceling your holiday.  But, that cyst is likely causing hormonal havoc too!

That is great that it is simple and fluid filled!  Your odds of malignancy are much less.  It sounds like your doctors are covering all bases.  

It helped me to keep my mind busy by watching movies and doing hobbies.  It sounds like your doctor is moving quickly on this, so hopefully you won't have to wait much longer!

[MandiNKel]

I've not seen the gyn/onc yet the gynea I seen is one of his team, but guessing I will see him next time I get an appointment.
I only just had my CT scan on 19th August so hopefully will hear something this week. I know its a simple fluid filled.
I've had to go on sick from work and a lately I seem to be finding it really hard keep getting tearful and don't know why, don't know if it hormonal or if I am starting to get depressed :(

[hopeshell]

I am so sorry to hear about your mass.  It must be terribly painful and putting pressure on many of your organs due to its size.  Of course, the concern is if it benign or malignant.  There is not a way to know for sure without surgery.  Have you seen a gynecologic oncologist?   It is very important that one is available to assist in your surgery.  

I can see you are in the UK and I am not sure of the standard procedure or availability of a gyn/onc in your particular area.  But, I do think there should be one available to see you.  I met a lady at my gyn/oncs office here in the US and she was referred to my gyn/onc by her gyn/onc in the UK.   So, I think they all try to follow the same procedures.  Here are some links that tell the importance of a gyn/onc:

http://www.wcn.org/articles/treatment/gynecologic_oncologists/overview/

http://oreilly.com/medical/news/ovarian_ten_things.html

Did you get any results from the CT yet?  Do you have enlarged lymph nodes or any other masses?  

I know it is scary to be waiting for surgery.  There is nothing that can be said to take away that anxiety...it is the worst!!!  But, you will do fine!   It will be over before you know it.   Odds of having a successful surgery are extremely great!  The pain meds will keep you comfortable while you are healing.    You will need to take it easy for at least six weeks.  Please keep us posted on how you are doing!  Hang in there!!!

Shelly