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Surgery Outcome
Hi all, I've also posted this on other relevant forums but this is the main forum I've been addressing my questions to before surgery so thought I'd let you know what happened.
Had surgery over a week ago - so the GOOD news is there is no cancer in there. What a relief that was.
The **** news is that I have to have a hysterectomy which means definitely no kids. I kinda thought maybe I would have one kid in the next couple of years so I have to come to terms with that.
I was in hospital 4 nights instead of one as it was quite complex. There was endometriosis all over the left ovary and the the adhesions from it had caused the ovary to attach to the bowel wall, the fallopian tubes and the pelvic wall so she had to take the left ovary out and remove all that endo from the other organs. The ovary was very enlarged and the cyst was still on it and was filled with blood as it was an endometrioma (cyst from endometriosis).
I lost a lot of blood post-op and was collapsing when I went to stand up. I blacked out twice and once ended up on the bathroom floor and woke up with a pillow under my head and sheets over me! All I recall was pressing the button for the nurse to come in as I was feeling faint on the loo. She said she came and I stood up and then put my head on the wall and went down. She had to get an orderly to help get me back to bed. The other time I was sitting on the toilet and the nurse was right there and I came to looking at her close up thinking "Who the hell are you and where am I?" She said I blacked out for 2 minutes with my eyes open! The drain was taking up a lot of blood, more than it should have and I was also bleeding out of the drain as my pjs and sheets were soaked about 4 times with blood. My doctor said I would have to go back to surgery as she thought a blood vessel had reopened but thank God it settled and I didn't have to but it left me very anaemic and weak. She didn't want to do a transfusion though so it just took a few days to build up my blood loss.
Apparently the right ovary is as bad as the left and the uterus has a huge fibroid pushing on the bowel. The fibroid is INSIDE the uterus which means she can't take it out without taking out the uterus. The fibroid has added about 1/3 of the size to the uterus yet again. So all in all I'm still kinda trying to make some sense of all this and feeling a bit sorry for myself. I have 3 weeks off work. I have no idea how the surgeon didn't rupture the bowel as she showed me photos of how the endo had entangled itself all over the bowel like a vine, yet she managed to get it off without damaging the bowel. I do have really bad cramps in that area though which she said is normal as the bowel is been aggravated and traumatised.
TAKE care...
Had surgery over a week ago - so the GOOD news is there is no cancer in there. What a relief that was.
The **** news is that I have to have a hysterectomy which means definitely no kids. I kinda thought maybe I would have one kid in the next couple of years so I have to come to terms with that.
I was in hospital 4 nights instead of one as it was quite complex. There was endometriosis all over the left ovary and the the adhesions from it had caused the ovary to attach to the bowel wall, the fallopian tubes and the pelvic wall so she had to take the left ovary out and remove all that endo from the other organs. The ovary was very enlarged and the cyst was still on it and was filled with blood as it was an endometrioma (cyst from endometriosis).
I lost a lot of blood post-op and was collapsing when I went to stand up. I blacked out twice and once ended up on the bathroom floor and woke up with a pillow under my head and sheets over me! All I recall was pressing the button for the nurse to come in as I was feeling faint on the loo. She said she came and I stood up and then put my head on the wall and went down. She had to get an orderly to help get me back to bed. The other time I was sitting on the toilet and the nurse was right there and I came to looking at her close up thinking "Who the hell are you and where am I?" She said I blacked out for 2 minutes with my eyes open! The drain was taking up a lot of blood, more than it should have and I was also bleeding out of the drain as my pjs and sheets were soaked about 4 times with blood. My doctor said I would have to go back to surgery as she thought a blood vessel had reopened but thank God it settled and I didn't have to but it left me very anaemic and weak. She didn't want to do a transfusion though so it just took a few days to build up my blood loss.
Apparently the right ovary is as bad as the left and the uterus has a huge fibroid pushing on the bowel. The fibroid is INSIDE the uterus which means she can't take it out without taking out the uterus. The fibroid has added about 1/3 of the size to the uterus yet again. So all in all I'm still kinda trying to make some sense of all this and feeling a bit sorry for myself. I have 3 weeks off work. I have no idea how the surgeon didn't rupture the bowel as she showed me photos of how the endo had entangled itself all over the bowel like a vine, yet she managed to get it off without damaging the bowel. I do have really bad cramps in that area though which she said is normal as the bowel is been aggravated and traumatised.
TAKE care...
Hi, I'm glad you're doing better now. That must have been scary for you. I'm sorry that you'll need a hysterectomy. I'd like to recommend the site hystersisters *******. Very informative and you can sign up for weekly progress reports both before and after your surgery. I found it to be a great site.
Good luck with your upcoming surgery.
Good luck with your upcoming surgery.
Hey ladies,
Thanks for the well-wishes and understanding.
Reggi, my gyno told me she only got rid of the one ovary at this stage as it in itself was a huge operation and took way longer than she anticipated. Also that was the area causing me most pain so she thought it best to deal with the pain and get rid of that firstly. Also she was able to do all this through a lap but she told me the next surgery will be a huge cut as it's just too difficult to remove it all otherwise. I thought the same as you at first but in hindsight I'm glad it's being done this way.
ALso myy private health has not kicked in yet, only in 4 months and need to be in 12 to claim hospital cover - which she was very understanding of and we both expected me to be in hospital only one night and if she'd done a hyster I would have been in longer and paid much more! As it turns out I was in four nights anyhow but neither of us knew that would happen.
Prayers and hugs to you with your hyster. It's a tough time. Let us know when your surgery is so we can pray for you and keep you in our thoughts.
Snowy
Thanks for the well-wishes and understanding.
Reggi, my gyno told me she only got rid of the one ovary at this stage as it in itself was a huge operation and took way longer than she anticipated. Also that was the area causing me most pain so she thought it best to deal with the pain and get rid of that firstly. Also she was able to do all this through a lap but she told me the next surgery will be a huge cut as it's just too difficult to remove it all otherwise. I thought the same as you at first but in hindsight I'm glad it's being done this way.
ALso myy private health has not kicked in yet, only in 4 months and need to be in 12 to claim hospital cover - which she was very understanding of and we both expected me to be in hospital only one night and if she'd done a hyster I would have been in longer and paid much more! As it turns out I was in four nights anyhow but neither of us knew that would happen.
Prayers and hugs to you with your hyster. It's a tough time. Let us know when your surgery is so we can pray for you and keep you in our thoughts.
Snowy
I have to have a hyster also. They did a lap and found a 6cm chocolate cyst on my right ovary and a huge fibroid on my uterus.
Hi, sorry to hear you went through a rough time. I was wondering why didn't they do everything at once? I mean have everything removed at one surgery.
Oh, what a time you've had. I'm glad everything is benign and that you will soon have complete relief after your next surgery. Take some time to grieve for the loss of fertility. When I lost mine due to ectopics I found it difficult but time does heal to a certain extent. Let us know when your next surgery is. Rest and relax and recover well.
Hugs, Trudie
Hugs, Trudie
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