In my opinion, it sounds like thyroid eye disease. You don't have to have a thyroid disease to havet TED.
I have TED & currently under the care of a neuro-opthamologist. I totally understand the pain, I call them eye headaches. Eventually I will need surgery, but trying to hold off as long as I can. Only thing I can do is eye drops & eye oniment.
so should i change doctors and see if they will treat me for thyroid eye disease instead of sending me to a pain clinic??? What kind of drops and oitment are you using and what do they do??? how do you deal with the constant pain??????? I am so frustrated with no answers. Thank you for your response i dont feel so alone now.