Cystic Hygroma

[montgomamma]

Our 5 mo old daughter has a lump on the left side of her neck the size of ping pong ball.  The ped referred out to an ENT which has requested a CT scan.  They term it as cystic hygroma and will need to drain the area or complete surgery for removal.  Anyone had this happen to their child?

[sweetpea03]

no problem. also if you have a myspace or facebook, there are a number of parents with children with Lymphatic Malformations, as well as those with the condition as well that you can talk to. there's a myspace group, and on facebook it's under causes.

[montgomamma]

Thanks for the advice, will take a look at the websites and make sure the doctor has treated this in the past.  We sure don't want it to reappear once it's removed the first time.

[sweetpea03]

Hi. The term Cystic Hygroma is an old term, and is really a Lymphatic Malformation. Because of the term the doctors used, I'm guessing that it is macrocystic. It's very important to have a doctor who has EXPERIENCE with this condition, as there is a chance or regrowth with this. With macrocystic lesions, you can do sclerotherapy injections and not have to put your child through surgery. try looking at these websites for more info.: birthmark.org , novanews.org  ... good luck with everything.