I should have known better than to see an endo

[Sunshine_67]

Saw a pituitary endo today and all she came up with was that I may have sleep apnea and that I probably never had thyroid problems and should have never been put on the meds since my TSH never went above the range. She totally dismissed all the cortisol saliva tests I did saying they're not accurate. She did an ACTH stim test, but she said that was normal, although it only went from 21 to 30 in an hour. I thought it was supposed to double.

I"m so frustrated. I don't know what doctor to see anymore and no one can explain the band of pressure across my forehead.

[Sunshine_67]

Ha ha!! I do feel like banging my head against a wall. Yes, that's me. My TSH goes right to zero even on a low dose of T4. I don't know why, but to a TSH watcher, they think I"m hyper even though my other levels aren't even in range and my bp and pulse are low.

I honestly do agree with some docs who have said my thyroid isn't the problem. I don't know if it's adrenals and I need to fix those first or if it's my sex hormones still being too low.

Unfortunately I can't travel since I'm single and have to work a full time job. So I'm limited to who's within a 25 mile driving distance.

I know they say be careful what you wish for, but sometimes I wish I would just pass out so I could be in a hospital and people would finally believe I"m really as sick as I say I am. Since I don't look sick, I just sound lazy to most people. That or a hypochondriac.

[gimel]

After having a TT, what medication and dosage are you on?  If you look at this list of 26 typical hypothyroid symptoms, which do you have, if any?  

http://www.hormonerestoration.com/Thyroid.html

Also, please post your thyroid test results and reference ranges shown on the lab report, so that members can assess the adequacy of your testing and treatment.

[Sadie3985]

I can remember that feeling as if you were wearing a hat and you didn't have one on. I have sleep apnea but after wards was diagnosed with a goiter on my neck. I had a total thyroidectomy and I really can't recall when was the last time I felt that feeling but it hasn't returned. Maybe you need to see a specialist in thyroids.

[flyingfool]

Is the band of pressure from pounding your head against the wall trying to find a Dr. who has a clue how to treat you?  LOL

I do not know what to say other than to continue to find a different Dr.  You may have to do phone interviews and do some more travel.  I also wouldn't doubt that may be difficult with insurances etc.  

But at some point you have to get well and find a Dr who will treat you.  You can't continue to live life being continuously sick.  That has a cost far greater than money to pay out of pocket to a Dr.

If I recall are you one who has suppressed TSH with even low T4 medication resulting in your other ranges to be at the bottoms of their ranges?