Do you get waves of feeling bad or is it constant?

[Brucergoldberg]

I am just curious....  Do you feel like crap all the time, or are there times when you get a wave of not feeling well?  Every day in the early afternoon I get a wave of about 3 hours of being taken over by a feeling of death.  Then all of a sudden it goes away and I feel pretty decent for the rest of the day.  I cant really put my finger on it, but typically it happens about 5 hours after I take my medicine in the morning.

Do you get these waves, or do you feel bad all the time?

[Brucergoldberg]

Lol..when I went to mayo everyone carried around the orange jugs...

[gimel]

A jug?  I suppose so, but it sounds so unscientific that way.  Why not the "sanitary collection container" or something other than "jug"?

[Brucergoldberg]

LOL

Gimel and Barb,

My testosterone was low.  It was 200, 215, 250 etc.  ranges 400-800.  I get a weekly shot but i don't overdo it.  I just get a small amount which is 100 ML.  It keeps me around 450 testosterone.  It certainly gives me energy and has helped me "immensely"  (haha get it?)

I was on HC at one point but the only one that was low was the midnight one.  I honestly didnt need any, but i was desperate to do anything so i was taking it.  I didnt really notice any difference on it.

Do you think its time for another urine cortisol?  is this the one where you carry the jug around for 24 hours?

[Barb135]

Mother Barb, here....... lol  So glad you got packed and hope you are ready to go......

I understand the ringing, anxiety, exhaustion, irritability that comes with it......  hopefully, that's still some hypo, but see good things happen, too -- you  have no more neck pain... the rest should follow.

Weren't you on hydrocortisone at one time?  Why did you stop it?  Additionally, I seem to remember something about testosterone as well.  Are you still on that?

But forget all of this for the next week, okay?

[gimel]

I can't recall from all the other threads.  Have you had a 24 hour saliva or urine cortisol test done.  Also, how about testosterone levels?  I'm just shooting in the dark here.

[Brucergoldberg]

I'm packed mother Barb :)

Its not just a ringing.   Its a ringing, anxiety, exhaustion, irritability that comes on around 5 hours after taking the meds, then goes away.  Im not like this all the time.  In fact most of the time i feel pretty good.   I wonder if when i get optimized this will go away.

ON a brighter note - I did follow Dannies lead and had my thyroid removed.  I have zero pain now in my neck, i can swallow, feels good to swallow.  Like instead of having a piece of meat in my throat all the time, i have some ice cream with chocolate syrup on it....   :)