Aa
Do you get waves of feeling bad or is it constant?
I am just curious.... Do you feel like crap all the time, or are there times when you get a wave of not feeling well? Every day in the early afternoon I get a wave of about 3 hours of being taken over by a feeling of death. Then all of a sudden it goes away and I feel pretty decent for the rest of the day. I cant really put my finger on it, but typically it happens about 5 hours after I take my medicine in the morning.
Do you get these waves, or do you feel bad all the time?
Do you get these waves, or do you feel bad all the time?
at this point i don't care if i feel "good" i just don't want to feel "horrible" ilke i do now. "fair" is acceptable.
I don't think I ever feel "good". I feel functional at moments, but most of the time I am just living a health nightmare.
nothing ever changes even without a thyroid gland. I take my meds and then once they kick in and peak out, i feel agitated, ears ring, shaky irritable and i have to lay down. Then as the day progresses I start to feel better. Does it ever end?
Im realizing now that my waves are from the t3 kicking in from the armour. looks like people either get this crap or they don't. I happen to be one of the lucky ones.
I have thought I was dying for the past 4 years. I was already disabled from a severe wreck. Then I was too exhausted to get up and dress. I felt as if my blood was on fire. I already (from wreck) suffered from: TBI (Traumatic Brain Injury), which led to an intractable Seizure Disorder, my neck was broken and fused over 4 vertebrae (C3-6); Fibromyalgia;Spinal Cord Injuries (SCIs); a tear in my brain from the impact called an Upper Motor Neuron Lesion (UMNL); drop foot on the right; severe spinal arthritis and ankylosying spondylitis of the spine; detached retina rt. Eye, near blindness, x2 surgery in that eyeball; and chronic pain. I think that about wraps up the injuries/conditions from the wreck (oh - and tininitis, hearing loss from the head injury. OK. THEN, suddenly, I cannot get dressed, as I am to fatigued. I feel as if my blood is on fire. I tell my internist many, many times over 4 years, and it is discovered I have Crohn's Disease. On 2 occasions my blood AMAs come back with tigers of 360 and ds DNA (double-stranded DNA, both markers for SLE, Systemic Lupus Ereythemetosis). For the entire 4 years, with the exception of perhaps a month scattered throughout - I am not exaggerating - I get up, put on my housecoat, feed the dog and cat, move to the couch, and sic Hurd later, go to bed. I shower twice a month, barely able to tolerate the pain of the water on my flaming skin. I also suffer horrible joint pain. I have to take OxyContin for chronic and joint pain, which one weekend last month got so bad I asked my son to take me to Urgent Care. All these years my doc never ran standard blood tests, only whatever I asked him, in desperation, to run. He sat there, smirking at me and taking the insurance payments. Urgent Care ran standard blood tests and found I had almost no thyroid.left and started me on Levothyroxide. Almost a month layer, I am starting to feel a smidgen of energy but still have to see a Rheumatologist because of the lupus markers. I am furious at my doctor. He effectively forced me to guess what might be wrong, tell him what to do,.and left me to suffer. Maybe he is not even a doctor.
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