Running in circles with tests

[T_Anna_D]

Can't even begin to decide where my 16 yr old daughter. She has had a multitude of tests and procedures frequent headaches, muscle aches, severe morning lethargy, mood swings abdominal cramps, neck pain, right side flank pain, facial pain over right cheek, forehead and right ear. Each item has been gaining in disruption of her life. Sick a lot as a child, digestive and urinary issues along with skin, hair and scalp. I kept going toward food allergies, but doctors state that it was not her problem. Weight fluxes high and then comes down; Looks more like fluid weight, sometimes, and considering the diet it is hard to explain why weight does not come off. Vegetarian.

Cyst (2.1 x 1.6cm) over right side scalp at 14 with loss of all hair on the cyst. Thinning of hair with a straw like texture. Went to the best hospital in N.E. and they felt it was better just to leave alone. Had CT and MRI to see if it was pituitary related. Unusual to loose hair around the cyst, but not concerned. Left alone and went away after 8 - 10 months (still tender in the area). Hair came back in full force after a year (extremely thick red hair).

Chronic sinusitis to cause facial swelling multiple times on right side. Multiple rounds of antibiotics. Allergy tests, sinus surgery (polyp and work on right side only), and currently doing allergy shots.

Went to urologist for right side flank pain. Did testing of CT and renal scan and several ultrasounds. Right kidney slightly larger than left, possible slight nephrosis. Deemed not the cause of pain or she was choosing to hold back on urinating.  Sent to gastrologist for possible GERD and constipation told to take miralax on a regular basis, otherwise by blood work she is perfectly healthy. Endoscope did not show celiac, but lactose intolerant. Severe acne that cleared up after going milk free. Gastrologist believed problems are muscular skeletal.

Severe monthly cycle pain, started taking low-ogesterol to help with pain. That seems to be helping.

One year after sinus surgery, continued to have all same symptoms and sent to a neurologist for possible neuralgia. Given a series of steroids (minimal/no improvement) and migraine medication. MRI showed no m.s. or brain abnormalities.

Abdominal CT showed all organs to look normal, except for cyst on spleen, but because it is on the left and not where her pain is it is deemed incidental due to viewing the test.

Going to physical therapy for muscles and has an appointment for chiropractor. I still keep going back to her lab work and think something is explained here. Most are within normal limits, but is there ever a normal is not normal?  She is vit d deficient and takes supplements. Although when I give her vit d w/calcium she has more bone pain.  So I do sometimes give her just the D without the calcium. Does any of this ring bells? Is there something else here that would explain her symptoms or maybe another explanation for distress?

WBC                 9.7 K/ul                (4.5 - 13.5)  Sodium      137 MMOL/L (136 - 144)
RBC 4.3 M/ul (3.7 - 5.3) Potassium 4.4  MMOL/L (3.6-5.1)
Hemoglobin 13.5 GM/DL (10.5 - 14) Chloride 103 MMOL/L (98-107)
Hematocrit 37.3 % (34  -  45) BUN     9 MG/DL (6-20)
MCV 87 fl (75 - 90) Calcium 9.7  MG/DL (8.9 - 10.3)
MCH 31.4 pg (25 - 33) Protein 7.2  G/DL                 (6.1-7.9)
MCHC 36.2 (30 - 36) H Glucose 77   MG/DL (70-100)
RDW 11.8% (14 - 16)L ESR 31MM/HR (0 - 20)H
Platelet 328K/ul (150 - 400) Negative: CMV, Mono, EBNA,VCA,Lime
MPV 7.8 fl (7.2 - 11.1) C4 16.8  MG/DL (16 - 38)
Auto Neuts 61.2% (23-66) C3 130.5 MG/DL (79 -152)
Aauto Lumphs 27.8 (25-48) DHEA-Sulfate 116 ug/dl
Auto Monos 6.0 (4 - 12) Hydroxy D 22ng/ml
Auto EOS                 2.7 (1 - 4) Calcium Urine 565 mg/L
Auto Basos 1.0 (0 - 1.4)                     Urine Creatine    328.85 MG/DL
Absolute Neuts 4.7 (1.4 - 6.5)   FSH 2.76
Absolute Lymphs       2.1 (1.0-3.6)    LH 6.55
Absolute Monos 0.5 (0.0 - 0.7)     T4 6.00 ug/dl (4.5-10.9)
Absolute EOS            0.2 (0-0.4)      TSH 0.68miu/ml (.35-5.50)
Absolute Basos          0.1 (0.-.01)

IGE: 134     (0 - 100) H  
(All items tested at O probability, skin test shows mild reaction to indoor/outdoor items. One year after surgery   symptoms did not improve so allergist offered to give shots to see if she will improve. Too early to tell yet. )

If something comes to mind… help is appreciated.

[stella5349]

There is a person here named estralinha that has alot of experience in labs that extend way past thyroid tests.

I hope she stops by and reads this post.

[T_Anna_D]

Thanks... sorry for the messy numbers up there.. they looked nice and neat before I posted. Just frustrated for her and as a mom, you want to fix it for her. She does everything they ask her to try... I am hopeful the chiropractor will be of some assistance. But just can't rap my head around the fact the issues are not tied together. It just seems like there should be one thing to tie the issues all together...the big things started after 12, but she had multiple small variations from birth that just seemed to be dismissed (not in a nasty way).. just excused as little nuisances or I was told she would outgrow the items...Don't feel sorry for her though...she is frustrated too but feeling sorry for her would be worse for her than all of the items added together. :>)  

[stella5349]

Oh my Lord.

I can't even begin on this except so sorry this is happening.