Personal Question

[lisa0948]

Just a quick question. I was diagnosed hypo 1 year ago and still havent gotten levels where they need to be because of sensitivity to meds. My question is when levels are low did you pull away from the ones you love because you simply could not function? Did you feel ashamed that you were no longer functioning as a normal human being?  Is this part of hypo or maybe something else?  No one seems to understand me anymore and the stress level is becoming unbearable. If you had a spouse that simply did not understand How did you get them to understand or BELIEVE that this could possibly happen to a person that has been medicated and still feel this way for a year?

Thanks Alot

[lisa0948]

oh forgot the tsh 15.37  thyroglobulin antibodies 52 range 1000 range <35

[lisa0948]

Here my latest test results
                                          ranges
t4 total          5.3                   4.5-12.5
free t4 index   1.5                   1.4-3.8
t4 free            0.9                   0.8-1.8
t3 total            77                    76-181
t3 uptake         28                    22-35

thryoglobulin antibodies  52        1000          <35

[Barb135]

In most cases, it won't hurt to go gluten free, even if you don't have celiac or a sensitivity; however, I have heard of adverse effects from being g/f if not needed.  Wheat and other grains are generally considered an important part of a healthy diet; however, everything in moderation.  

I do not agree that synthetic hormones, such as synthroid or cytomel won't work.  There are many who don't do well on synthetics and must opt for the natural thyroid hormones, such as Armour, NaturThroid, or others.  That said, there are many of us taking just a synthetic T4 med or a combination of synthetic T4 and T3; some even take a combination of synthetic AND natural.  It's quite erroneous to make a blanket statement that "synthetics don't work"........

It's very tough when you have family members who don't understand what it's like to feel so horrible that you can hardly move.  I used to fall asleep every time I sat down (not sure I didn't doze sometimes even while standing/moving around) and my husband would get frustrated with me because I couldn't even watch a 30 minute TV show with him, without falling asleep.  I still fall asleep in the car whenever we have to ride more than a short distance.

I will be anxious to see how your next labs turn out.  Please make sure you get a copy of the lab report, so you can post both the results and reference ranges here for us to see and help evaluate.

[oneamerican]

Hi - my relative is a celiac - and there is a celiac website with lots of information - celiacs
cannot eat gluten so white flour and many grains are off the diet. People of scots and
of italian background seem to be the most affected. You'll see it on the page and if he
responds poorly to bread and grains, test or no test, take if off the table. My relative had
to have a painful surgery where part of his stomach was removed. Being a celiac is not to
be taken lightly.

No one but a chiropractor noticed my thyroid problems and the over-the-counter thyroid
he suggested wasn't enough. I had peeling nails, hair as dry as straw, 10 day periods
which were like rivers, then insomnia crept in and I had only enough energy to go from
bed to sleep more on the couch. I was given t1, t2, t3 and t4 - also a bit of tetesterone.
The synthetics stopped working their miracle cure, synthroid and cytomel, and I'm
taking natural thyroid, 125mg. If you are only on the t4---- it won't work. It's both for it
to replace what the body can't produce.

Iron, vitamin b12, etc. don't replace thyroid - only a combination of synthetics or the
natural thyroid supports thyroid deficiency. Got it? Get it, and get well.

[lisa0948]

Yes, I am willing if it will make me feel better. I did it for a year for my son. The food was soo much better and now thinking about it I did feel better. I eat very healthy now but i do eat alot of wheat because of the iron, but I know of ways to do it without wheat.

Yes my sons bloodwork showed he had celiac,and the endoscopy proved otherwise.

I wont blame myself anymore, I can only do what this disease allows me to do. With that being said I don't think I would try to climb Mt. Everest with a broken leg. So why am i trying to do more than my body says I can with Thyroid.

[char201]

If you are willing to go gluten free for a trial period, it certainly couldn't hurt. You could see if it makes any difference for you. The only downside is that gluten is hidden in so many things that trying to figure out what you can or can't eat may add more stress to your life.

I'm confused about your son. Did he test positive for celiac through blood tests and then negative on endoscopy?

Also, please, please, please remember that if you are receiving poor treatment from your family, it is NOT you. People are responsible for their actions, so if someone is acting badly toward you, you are not to blame. I know that a chronic medical condition can really take a toll on relationships.

Barb 135 gave great advice about tests to ask for. And it sounds like you are getting other things checked too such as ferritin, B12, etc...See, you are already taking some great steps to address your health!!