Aa
Personal Question
Just a quick question. I was diagnosed hypo 1 year ago and still havent gotten levels where they need to be because of sensitivity to meds. My question is when levels are low did you pull away from the ones you love because you simply could not function? Did you feel ashamed that you were no longer functioning as a normal human being? Is this part of hypo or maybe something else? No one seems to understand me anymore and the stress level is becoming unbearable. If you had a spouse that simply did not understand How did you get them to understand or BELIEVE that this could possibly happen to a person that has been medicated and still feel this way for a year?
Thanks Alot
Thanks Alot
Best Answer
COMMUNITY LEADER
http://thyroid.about.com/od/bookssupportresources/a/letter-to-family-friends_2.htm
Give your family member this to read to help them better understand the challenges that you are facing right now. Hope this helps!
Give your family member this to read to help them better understand the challenges that you are facing right now. Hope this helps!
I have had iron checked and yes I am anemic, I take a multivitamin with iron, maybe I need more. I havent had ferritin or vitamin d looked at yet. I do take 1000mcg of b 12, that was like in the 200.
I feel better than when I was first diagnosed but stress of a DEMANDING relationship is taking its toll on me. I was told if I had cancer then I would be understood.:]
You guys have given me some really good advise and I thank you from the bottom of my heart.
I am due for next round of labs. I increased meds 6 weeks ago and they are leveled out now but I can assure you they arent where they need to be yet. Thats why I feel so horrible
I am a very patient person but its hard when others around you tell you its all in your head, that your crazy, that you simply are not a woman anymore. Just hurt me. I try so hard but as I read in another thread that you can become emotionless, Thats all me right now. Maybe I have given up that my loved ones will truly understand the hell that I (we) go through.
Thanks You guys, I truly appreciate it
Lisa
I feel better than when I was first diagnosed but stress of a DEMANDING relationship is taking its toll on me. I was told if I had cancer then I would be understood.:]
You guys have given me some really good advise and I thank you from the bottom of my heart.
I am due for next round of labs. I increased meds 6 weeks ago and they are leveled out now but I can assure you they arent where they need to be yet. Thats why I feel so horrible
I am a very patient person but its hard when others around you tell you its all in your head, that your crazy, that you simply are not a woman anymore. Just hurt me. I try so hard but as I read in another thread that you can become emotionless, Thats all me right now. Maybe I have given up that my loved ones will truly understand the hell that I (we) go through.
Thanks You guys, I truly appreciate it
Lisa
Where do you base hyper here Bruce?
Whats known about this disease and the emotional break down involved is factual. Neurologically, when the hormones are not set correctly in a patient they can experience many things from depression, anxiety, shortness, dull and dispondent attitudes. Even extreme dementia and psychosis can be involved if things have been off and damaging imbalances are present with these thyroid levels.
The strong link to many neurological things when it comes to thyroid is the imbalance of the T3 hormone directly in the cells. If this level is too low OR too high it does effect the personality of the patient experiencing it.
Its not just a hyper or a hypo issue - its a T3 level imbalance involved.
A few things that can assist you would be:
1. Do seek some support from a group or agency. It doesn't necessarily have to be a doctor either. Importantly it would be best to find people able to connect thyroid disease with this symptom to best support you. Our forum is a great source of many who can relate on these levels so you can "vent" and be most understood.
2. Knowing the major cause involved when a neurological imbalance based off thyroid disease is happening. Getting the right labs ( and understanding them) as the Free T3 and Free T4 is very critical in trying to overcome this "symptom" to be able to gain back your life - happy. Understanding those albs too - as a patient is just as important. Usually a thyroid patient finds a high Free T3 lab - a mid/high Free T4 lab and mostly a possible low TSH will give them some relief on many levels with managing this disease.
3. Allow yourself some time. Yeah - everyone here probably can agree at their worst with their disease - they too were moody and less reponsive - maybe sharp-tongued but realisitcally - you don't feel well. I would like anyone who is sick and for a long period is not in the best of spirits. Wouldn' t you agree?
Gimel's reference is a good one. It seems ThyroidHunter is able to create some understanding on the nightmare this disease can cause in our heads at times. I think the post reference will help you at elast know - you are not alone facing all this.
and on a good note: - KNOW there can be a good outcome once you get better. I found after my nightmare - really..... I have never felt more steady and as sick as I was - my appreciation for now being well shines in everything I do with others. People find me in person - less edgy. calm and happy. You will be fine when things are stabilized.
Whats known about this disease and the emotional break down involved is factual. Neurologically, when the hormones are not set correctly in a patient they can experience many things from depression, anxiety, shortness, dull and dispondent attitudes. Even extreme dementia and psychosis can be involved if things have been off and damaging imbalances are present with these thyroid levels.
The strong link to many neurological things when it comes to thyroid is the imbalance of the T3 hormone directly in the cells. If this level is too low OR too high it does effect the personality of the patient experiencing it.
Its not just a hyper or a hypo issue - its a T3 level imbalance involved.
A few things that can assist you would be:
1. Do seek some support from a group or agency. It doesn't necessarily have to be a doctor either. Importantly it would be best to find people able to connect thyroid disease with this symptom to best support you. Our forum is a great source of many who can relate on these levels so you can "vent" and be most understood.
2. Knowing the major cause involved when a neurological imbalance based off thyroid disease is happening. Getting the right labs ( and understanding them) as the Free T3 and Free T4 is very critical in trying to overcome this "symptom" to be able to gain back your life - happy. Understanding those albs too - as a patient is just as important. Usually a thyroid patient finds a high Free T3 lab - a mid/high Free T4 lab and mostly a possible low TSH will give them some relief on many levels with managing this disease.
3. Allow yourself some time. Yeah - everyone here probably can agree at their worst with their disease - they too were moody and less reponsive - maybe sharp-tongued but realisitcally - you don't feel well. I would like anyone who is sick and for a long period is not in the best of spirits. Wouldn' t you agree?
Gimel's reference is a good one. It seems ThyroidHunter is able to create some understanding on the nightmare this disease can cause in our heads at times. I think the post reference will help you at elast know - you are not alone facing all this.
and on a good note: - KNOW there can be a good outcome once you get better. I found after my nightmare - really..... I have never felt more steady and as sick as I was - my appreciation for now being well shines in everything I do with others. People find me in person - less edgy. calm and happy. You will be fine when things are stabilized.
Lisa you sound hyper. Post your doses, labs. Also I have some brochchures I'll be happy to send you..
Bruce
Bruce
Yes, I know how you are feeling. It is so frustrating to struggle with meds - I know from first hand experience. A few things you may want to consider - some brands have doses that are free of dyes - might help since you mention medication sensitivity?? Also, adding cytomel might be worth considering. My mood and cognitive abilities went down the drain on t4 medications only. Also, have you had your ferritin and iron levels checked? If you continue to feel down, might be worth talking to your doctor about meds for your mood. Sorry - I know this is a lot more than you asked about, but after my looooong journey with this nasty health condition, these are some things I had to check out because they can co-exist with thyroid conditions.
Hope that helps...you are definitely not alone in this. Many of us are still looking for the magic answer, or even just AN answer :)
Just a couple of thoughts for you. First, what thyroid test(s) is your doctor using to determine your meds dosage? Second, consider having your spouse read through the Post by ThyroidHunter about his experience with doctors while trying to get his thyroid problems taken care of. Many other members have also given some of their experiences. It is very revealing, I think and might help the understanding of what you are going through..
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If I am correct, then I'd say you could have Hashimoto's Thyroiditis, which is an autoimmune disease, in which the antibodies "slowly, but surely" destroy the thyroid. As this destruction takes place, your thyroid produces less and less hormones and your become more and more hypo - needing regular upward adjustments to your med.
Just for your info - Total T4 and Total T3 are considered obsolete and pretty much useless, as is T3 uptake, so these are a waste of $. BUT considering that your Total T3 is so low in its range, it's safe to think that your Free T3 will be even lower in it's range.
That said, we'll look at your TSH which at 15.37 is WAY too high...... your Free T4 (FT4) is barely in range. All of this indicates that you are severely hypo......
What dose of med are you on? How long have you been on it? When are you scheduled for testing again? Have you had an ultra sound to check for nodules on your thyroid?