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877337 tn?1249844450

Radio Active Iodine Treatment - would you have it?

Would you have Radio Active Iodine Treatment if your Endro said that was the best option?  
29 Responses
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Avatar universal
I originally had RAI due to uncontrollable Atrial Fibrillations (Thyroid Storm) and found out a few days before RAI that I also had the whole of the thyroid cancerous which resulted in a TT when my levels were stable enough 3 months after RAI.
I battled for a year to get stable levels with anti-thyoid meds but couldnt.
RAI saved my life.
If it wasnt for RAI, I wouldnt be here.
Also my one year anniversary is coming up on the 27th of this month (june) since RAI.
My levels were well and truly stable within 6 months of RAI with only one hiccup instablility when I got the flu,.
my levels are stable once again and I am doing things in life that I havent been able to do for many years.
If I had to go through it again...I would.
I couldnt handle the sour candy so opted for sucking on lemon slices after RAI.
That did the same job as candy by keeping the saliva glands from getting blocked (which is a side effect of RAI sometimes).
Helpful - 0
Avatar universal
I have had RAI for my cancer.. I dont mind taking the pill...but i hate the Low iodine diet... its like eating crappy food (My cats food smelled better than what i used to cook)... didnt like the sour candy part of it.. thanks to the RAI and now i hate sour candy...
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158939 tn?1274915197
Like everyone says, it depends on your situation.  I had RAI for cancer recurrence and I'm glad I had it.  My youngest sister has had it three times for three cancer recurrences (last one with metastases to breast and liver) and it totally killed off all the cancer.

Have there been complications?  For me, yes.  But given the choice between a treatable cancer and letting it metastasize and kill me, there wasn't really a choice.  Would I do it again if the cancer returns (despite the scarred bile duct and other complications?), definitely "yes".

But that's for cancer - Graves or other conditions are very different.
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Avatar universal
I had RAI after have a thyroidectomy for cancer on both sides.  If I would only would have had cancer on one side my dr. said they would not have done anything, but because it was on both sides, he opted for the RAI.  This is my one year anniversary awaiting my scan for next week to see if I am still clear.  So, I guess I will let you know if it works!  The worst part was when my daughter & granddaughter had to leave the  house.  My husband wasn't so happy about sleeping on the couch either.
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793305 tn?1493925518
I had RAI due to cancerous thyroid.  It was removed, but they can't get every bit of tissue.  So try to kill the rest of the tissue off with RAI and there is less chance of reoccurance.  I will do whatever I have to do to stop it from coming back.  I don't want it in my body.  
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Avatar universal
I had the RAI, but it failed so had TT. (That was 15yrs ago.)

Currently dealing with Graves Eyes Disease. My opthomologist has referred me to a neuro opthomologist.  It is painful and frustrating....
Helpful - 0
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