Aa
Seeing Surgeon/opinions
This has nothing to do with thyroid issues, but you guys always give great advice.
I am seeing surgeon for a recommendation on a tumor/mass that was discovered on a ct scan of pelvis. The size is :
2 x 2.5 x 1.7 cm. Here is the radiology reading: Peripherally calcified hypodense mass just below the aortic bifurcation. Rim calcifeid fat density , eggshape. The location is at the midline location of the L5, S1 disk space. Its location is suggestive of paraganglioma and pheochromocytoma, however, I would also add a dermoid in the differential given its fat density and midline location. I would highly recommend a biopsy to ensure benignity.
This was discovered back in April, and I have had two other ct scans done, there does not seem to be any growth. They can not biopsy the tumor/mass due to location. My doctor and radiologist will not committ to telling me that it is not cancerous, so they are forwarding me to a surgeon to get his opinion.
Both my husband and I are at odds on how to proceed with this. I say let's just watch it yearly to see if it grows. My husband is more aggressive and wants me to get it out. I understand that there is not anyway of truly knowing if it is cancer or not, but I am just not sure on how to proceed. I do have a 15yr old and would hate to miss any of his growing up into adult hood because i was stubborn, but then again, do I really want another surgery?
Your advice and opinons greatly appreciated...I go tomorrow afternoon to meet with the surgeon.
I am seeing surgeon for a recommendation on a tumor/mass that was discovered on a ct scan of pelvis. The size is :
2 x 2.5 x 1.7 cm. Here is the radiology reading: Peripherally calcified hypodense mass just below the aortic bifurcation. Rim calcifeid fat density , eggshape. The location is at the midline location of the L5, S1 disk space. Its location is suggestive of paraganglioma and pheochromocytoma, however, I would also add a dermoid in the differential given its fat density and midline location. I would highly recommend a biopsy to ensure benignity.
This was discovered back in April, and I have had two other ct scans done, there does not seem to be any growth. They can not biopsy the tumor/mass due to location. My doctor and radiologist will not committ to telling me that it is not cancerous, so they are forwarding me to a surgeon to get his opinion.
Both my husband and I are at odds on how to proceed with this. I say let's just watch it yearly to see if it grows. My husband is more aggressive and wants me to get it out. I understand that there is not anyway of truly knowing if it is cancer or not, but I am just not sure on how to proceed. I do have a 15yr old and would hate to miss any of his growing up into adult hood because i was stubborn, but then again, do I really want another surgery?
Your advice and opinons greatly appreciated...I go tomorrow afternoon to meet with the surgeon.
Totie - I am glad they will remove although I know its a scary proposition for you. You'll do FINE!!!! You have more strength than I have seen in many people. My prayer for healing is with you hun! oxoxoxoxox ~Kim
In all honesty, I had one doctor tell me that since I had no thyroid I should not have any thyroid problems.
My regular doctor has me down as hypo, that is it. They are all aware of the graves back in 1994, but they never mention it to me. I always tell them about it because it was the reason I had to have the TT.
I think I am just a number to my doctor.
Yesterday the surgeon was the only one to ever questioned my graves.
My regular doctor has me down as hypo, that is it. They are all aware of the graves back in 1994, but they never mention it to me. I always tell them about it because it was the reason I had to have the TT.
I think I am just a number to my doctor.
Yesterday the surgeon was the only one to ever questioned my graves.
Stella is right in her posting.
Once you have Graves, you have it for life.
I still have antibodies (though minimal -remission) since RAI and TT but they are still there none the less.
If you dont have Graves, the antibodies are not present at all and the labs show negative to testing.
I think my last labs showed my antibodies to be at 38 (3 mths post RAI) and the normal range for remission is under <60 here in Oz.
Prior to RAI, they were 4200.
Once you have Graves, you have it for life.
I still have antibodies (though minimal -remission) since RAI and TT but they are still there none the less.
If you dont have Graves, the antibodies are not present at all and the labs show negative to testing.
I think my last labs showed my antibodies to be at 38 (3 mths post RAI) and the normal range for remission is under <60 here in Oz.
Prior to RAI, they were 4200.
You never just "had" Graves........... it will be with you for life after a DX . It doesn't go away and just come back and it is not tissue regrowth - it is antibodies that attack. They never die - just fall into a "remission" per say.
SO - if you were told you have Grave's then the attack could be back on and effecting your eyes now.
Did n't this doctor clarify this with you?
SO - if you were told you have Grave's then the attack could be back on and effecting your eyes now.
Did n't this doctor clarify this with you?
Okay say the surgeon today. The mass/tumor according to him is to big to just leave in there. It is apparently in a location that could be causing damage to my adrenal glands and the abdomen itself. He will also be looking at my ovaries, since he saw the ct scan that also noted the cysts in my ovaries and if my gyno needs to look at them while he is in there he will call her in during surgery.
Basically will remove mass/tumor in the pelvis/abdomen area and do exploratory on the rest of my organs in there.
One thing I thought was funny was that he asked about my eyes, and said that only people with graves disease have that symptom (my eyes slightly bulge out due to mis diagnosis of graves). I laughed and told him I did have graves disease back in 1994, he thinks my tissue could be growing back seeing as I go hyper/hypo or at least have been in the last two years. He also mentioned the healing abscess that was noted on the ct scan. He just shook his head and said "so many infections" to not have taken this mass out along time ago. IC infection of my bladder as well. The submandibular gland was also badly infected (due to mis diagnosis there as well).
I really was not even given an option or "think about it and then decide". He basically stated he did not want to leave it and then four years down the road we find out it was cancer. So there is my story...
The surgery will be Feb. 10.
Basically will remove mass/tumor in the pelvis/abdomen area and do exploratory on the rest of my organs in there.
One thing I thought was funny was that he asked about my eyes, and said that only people with graves disease have that symptom (my eyes slightly bulge out due to mis diagnosis of graves). I laughed and told him I did have graves disease back in 1994, he thinks my tissue could be growing back seeing as I go hyper/hypo or at least have been in the last two years. He also mentioned the healing abscess that was noted on the ct scan. He just shook his head and said "so many infections" to not have taken this mass out along time ago. IC infection of my bladder as well. The submandibular gland was also badly infected (due to mis diagnosis there as well).
I really was not even given an option or "think about it and then decide". He basically stated he did not want to leave it and then four years down the road we find out it was cancer. So there is my story...
The surgery will be Feb. 10.
Totie - honey - get your butt to that appointment, see what he/she says and have a very candid conversation with them on the RISK if you leave it! Hugs and prayer are with you my dear. You know, I see feel sure it has to do with your weight issues so please don't dismiss another surgery. Sometimes the good way is not the easy way. Think of your child and then do what your gut tells you!
oxoxoxox
~Kim
oxoxoxox
~Kim
let us know what happens today :)
I really think you should go first to the appt and see what the specialist has to say.
He may open the door up to you making a decision and moving forward on getting the surgery - or holding off.
As him about stastics on both ends. Ask him what we feels would be best to do. Take a log - write down everything you talk about and then way out the odds.
It is a big decision.
He may open the door up to you making a decision and moving forward on getting the surgery - or holding off.
As him about stastics on both ends. Ask him what we feels would be best to do. Take a log - write down everything you talk about and then way out the odds.
It is a big decision.
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