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Still feeling like crap and at my wits end!! Help!!!
Obviously, I need a new endo! I had TT Dec 09 and although I don't expect to feel wonderful, it seems like I'm going backwards! I know that I need to get the "Frees" tested now and I'm going to get my GP to do it. I can't believe how hard it is to find a Dr that will test!
Anyway, my last labs were Total T4 8.7 (Range 4.5-12.0) T Uptake 0.87 (Range 0.66-1.27) TSH 0.611 (Range 0.400-4.000) Total T3 93 which is low..(Range 104-260). i just had these labs done 7-29-10. I've been on Synthroid 125mcg for 9 weeks now and Endo doesn't want to raise it and says I may have a conversion problem. He told me that almost 3 months ago because my T3 was even a bit lower than it is now. I see him August 12th and that will be my last meeting with him. I've got to find someone new.
I'm telling him of my symptoms and how I feel like I'm going downhill and he keeps saying I need to take something called Folbalin Plus (some form of Vit B?) or B12 shots..my B12 level is 525 (Range 200-900). My GP says I am within range. I don't know who to listen to anymore! Endo says he's not raising synthroid now and might need to add Cytomel to the mix..what is he waiting for? He told me that months ago!!
So, he is blaming my symptoms..anxiety, feeling off balance (like i have to sit down alot), forgetfulness, moodiness, tingling hands (calcium is fine), etc...on not having enough B12?? Does that sound right to you guys? I find that hard to believe and when I tried the B12 shot and Folbalin Plus, I felt more anxious than ever! This appt on the 12th should be interesting!
It seemed like I was starting to feel better. I went back to work and was getting out abit. Now, it's all I can do to go to work and I pray I make it thru the day. I just feel "off." Sometimes, it's hard to explain!
Does any of this sound normal? Please help. I know I need the Frees tested and I know I obviously need a new Endo. What do I do in the meantime? Why does he keep pushing the B12 when I tell him the only thing it does is make me feel like I'm going to crawl out of my skin? And what is he waiting for if I do need the Cytomel? Don't worry..he's going to get an earful! Thanks for listening and advising! ...Lynda
Anyway, my last labs were Total T4 8.7 (Range 4.5-12.0) T Uptake 0.87 (Range 0.66-1.27) TSH 0.611 (Range 0.400-4.000) Total T3 93 which is low..(Range 104-260). i just had these labs done 7-29-10. I've been on Synthroid 125mcg for 9 weeks now and Endo doesn't want to raise it and says I may have a conversion problem. He told me that almost 3 months ago because my T3 was even a bit lower than it is now. I see him August 12th and that will be my last meeting with him. I've got to find someone new.
I'm telling him of my symptoms and how I feel like I'm going downhill and he keeps saying I need to take something called Folbalin Plus (some form of Vit B?) or B12 shots..my B12 level is 525 (Range 200-900). My GP says I am within range. I don't know who to listen to anymore! Endo says he's not raising synthroid now and might need to add Cytomel to the mix..what is he waiting for? He told me that months ago!!
So, he is blaming my symptoms..anxiety, feeling off balance (like i have to sit down alot), forgetfulness, moodiness, tingling hands (calcium is fine), etc...on not having enough B12?? Does that sound right to you guys? I find that hard to believe and when I tried the B12 shot and Folbalin Plus, I felt more anxious than ever! This appt on the 12th should be interesting!
It seemed like I was starting to feel better. I went back to work and was getting out abit. Now, it's all I can do to go to work and I pray I make it thru the day. I just feel "off." Sometimes, it's hard to explain!
Does any of this sound normal? Please help. I know I need the Frees tested and I know I obviously need a new Endo. What do I do in the meantime? Why does he keep pushing the B12 when I tell him the only thing it does is make me feel like I'm going to crawl out of my skin? And what is he waiting for if I do need the Cytomel? Don't worry..he's going to get an earful! Thanks for listening and advising! ...Lynda
another thing I just was thinking was your voice mail message - in a sense I got the feeling you may have "ordered" him to do what you say. That's fine but keep in mind - that he may not know "how" to utilize the right testing to medicate so where will that really go for you if he is not understanding it.
Here's where you should take some time and learn how the free testing works. Get it done for sure - but you really have to step up and know where things should be to play a part in all this with him - if he remains your provider.
Here's where you should take some time and learn how the free testing works. Get it done for sure - but you really have to step up and know where things should be to play a part in all this with him - if he remains your provider.
Why don't you check out this complete supplement package over just one. I think you will see good things with this and the B content is great. - Complex formula
There is a product called Fatigue to Fantastic. Its design exclusively for CFS and thyroid patients.
I find is very good and gives the whole system a recharge to get things balanced.
Do a little research on the correlations of T3 body hormone and heart /cardiac issues. This hormone is SO sensitive in our bodies and if you are low or high - the heart issues will arise. Cardiac issues are not just Hypo or Hyper issues. Its found in both and the "sweet spot" has to be met with our hormones to end that for us.
Hat's off to the ones who can take their medicine and feel good quickly. I have been doing thyroid volunteering now for almost 4 years here and the ones who do fine you rarely hear from. Its a complex case for many and finding your needs can be challenging.
I am worried about your relationship with this endo as you say above. I will tell you that if your relationship is strained or you feel like this doctor is brushing you off you have to re examine your relationship. Keep in mind that emotional stress on a thyroid patient is present - sometimes in irrational levels, and you could be falsely judging this doctor just because your are hormonal and not feeling well. - but deep down if you feel this relationship is not working for you - then you need to find a second opinion or a relationship you feel better in. The aggravation of thyroid disease is sometimes what keeps us ill.
I don't know what position you hold at the hospitol but I am sure your contact level could be better than most. One thing I suggest is to look at A4 doctors or someone maybe in the Intergrative MD field with your case. You have many things that happened and really need to view all sides of treatment on many things to see all that there is out there available.
There is a product called Fatigue to Fantastic. Its design exclusively for CFS and thyroid patients.
I find is very good and gives the whole system a recharge to get things balanced.
Do a little research on the correlations of T3 body hormone and heart /cardiac issues. This hormone is SO sensitive in our bodies and if you are low or high - the heart issues will arise. Cardiac issues are not just Hypo or Hyper issues. Its found in both and the "sweet spot" has to be met with our hormones to end that for us.
Hat's off to the ones who can take their medicine and feel good quickly. I have been doing thyroid volunteering now for almost 4 years here and the ones who do fine you rarely hear from. Its a complex case for many and finding your needs can be challenging.
I am worried about your relationship with this endo as you say above. I will tell you that if your relationship is strained or you feel like this doctor is brushing you off you have to re examine your relationship. Keep in mind that emotional stress on a thyroid patient is present - sometimes in irrational levels, and you could be falsely judging this doctor just because your are hormonal and not feeling well. - but deep down if you feel this relationship is not working for you - then you need to find a second opinion or a relationship you feel better in. The aggravation of thyroid disease is sometimes what keeps us ill.
I don't know what position you hold at the hospitol but I am sure your contact level could be better than most. One thing I suggest is to look at A4 doctors or someone maybe in the Intergrative MD field with your case. You have many things that happened and really need to view all sides of treatment on many things to see all that there is out there available.
So strange...didn't take the Cytomel today..no chest pain. I left a thorough voicemail for my endo that I want the proper testing done (Frees, 24hr saliva, estrogen, etc etc) I also let him know that I, as the patient have a right to thorough testing. i told him I know my body and I know something is off. I don't expect to feel good overnight, but I work in the same hospital with him and each time I see him in his office, he acts like he doesn't even know who I am! It really just rubbed me the wrong way when he said "You might need Cytomel, but I think your symptoms are because your B level isn't where I'd like it."....So, why prescribe it to me...if you're not sure????
It is not the XR tabs. What is the exact testing for cortisol? I know before my TT..he wanted me to have this Cortrosin Arginine Stim Test...many have said it's a HORRID test. Ever heard of it? Is there an easy test for cortisol?
Thank you, Stella..I appreciate your time and knowledge. Oh, and I called the pharmacist and they don't have a liquid B vitamin. She said to go to GNC. If I were to try a supplement again..should I buy B12 or B Complex? I don't know what a good dose is.
It's so odd to me that my sister had TT and is fine on 150mcg Synthroid and takes a Multi Vitamin "when she remembers" and feels fine! I'm glad for her..I wish it were that simple for the rest of us!
It is not the XR tabs. What is the exact testing for cortisol? I know before my TT..he wanted me to have this Cortrosin Arginine Stim Test...many have said it's a HORRID test. Ever heard of it? Is there an easy test for cortisol?
Thank you, Stella..I appreciate your time and knowledge. Oh, and I called the pharmacist and they don't have a liquid B vitamin. She said to go to GNC. If I were to try a supplement again..should I buy B12 or B Complex? I don't know what a good dose is.
It's so odd to me that my sister had TT and is fine on 150mcg Synthroid and takes a Multi Vitamin "when she remembers" and feels fine! I'm glad for her..I wish it were that simple for the rest of us!
I don't want to say don't take it. Your doctor said to and your tests prove you could use it but that doesn't mean you may not be able to handle it right now.
The B's are so important and getting on the right kind is important too. You should look at easy - sublingual lozenges I think to absorb better to take.
The anti-depressants can also play a role in all this. Anxiety is very common with unbalanced T3 hormone and taking the band-aid stimulant can complicate things. Those are catch 22 drugs... sometime we need them to get over the hump of it all but will play a part of the condition lingering too.
I am assuming this is standard T3 and not XR tablets.... it should be depleting within 6 hrs each day. If you have cortisol issues though - then you could be feeling that more and thinking the T3 drug is the culprit.
The B's are so important and getting on the right kind is important too. You should look at easy - sublingual lozenges I think to absorb better to take.
The anti-depressants can also play a role in all this. Anxiety is very common with unbalanced T3 hormone and taking the band-aid stimulant can complicate things. Those are catch 22 drugs... sometime we need them to get over the hump of it all but will play a part of the condition lingering too.
I am assuming this is standard T3 and not XR tablets.... it should be depleting within 6 hrs each day. If you have cortisol issues though - then you could be feeling that more and thinking the T3 drug is the culprit.
To keep taking the T3 or not..and wait for the Free testing..even though I'm sure it will come out low? If I take it, does it have to be a certain time or when I feel like I need a boost? Although, I didn't notice anything but dizziness and an anxious feeling from it. How long do you feel the effects from a low dose of 2.5? What happens if i don't take it..I only took it for 2 days? Help!
Ok...so here was my day today! Yesterday, when I started the once daily dose of cytomel 2.5mcg..I thought I felt fine. I noticed some chest discomfort, but blew it off to maybe heartburn or something like that. Today, I noticed the same thing, along with I just feel "not strong on my feet"..(if that makes any sense!) Not a dizzy feeling, but put it this way..I couldnt imagine a day of walking through the mall, etc. I just always seem to have this unbalanced feeling..it's hard to explain!
It's always something! So now I don't know if i should continue this Cytomel, as I've had this continuous chest pressure feeling for the 2 days I've been on it. Or is it all in my head? I know it's such a small dose..but the more I think about it (and I do tend to overthink!) It makes me uneasy that the endo said i "might" need some Cytomel but he really thinks because by B12 isn't as high as he'd like it..that that's what's causing my symptoms. My TT3 is 90 something and the low range starts at 100 something..I don't have my labs on me right now...so was he just making a guess when he prescribed it, so i would shut up about all these symptoms? As I stated, he thinks my symptoms are from the low B.
I am definately stopping in the pharmacy tomorrow to see about getting the liquid B..as I can't even tolerate the B12 shots..they make me anxious! My question is, can I stop the Cytomel and just take the B liquid..or should I stick with the cytomel? Today was my 2nd day of taking it and I just don't feel right. I see my GP this week to get the frees tested. I just feel like the endo is guessing at this point and trying to find a way to get me to stop complaining about these weird symptoms! I think he's disgusted with me because I just cant seem to tolerate alot of things. Even before this..I felt weird when I'd take Tylenol! Ibuprofen is ok..but can't even tolerate caffiene, some cold medicines, etc.....I really am at my wits end with all of this. I don't even remember what it's like to feel normal and it's very depressing. I try to stay positive, but when you never feel good, it gets old real quick.
I wish my kidney cancer wasn't misdiagnosed for two years, I wish I didn't accidently find this Hashimoto's with nodule and then TT ( I only got a scan because my sister had ThyCancer). It's turned me into a Hypochondriac and I get anxiety very easily. I take what a Dr says with a grain of salt..as I saw 5 specialists who wouldn't listen when I told them something was wrong and told me it was all "in my head"..until I demanded a simple CT scan. Had I not been so persistent, I would be dead..as per the surgeon. I'm lucky I survived these things, I know. But it's an awful feeling always wondering if something is going on and I'm just not catching it!
I know you're wondering and yes..I see a psychologist and I take .75mg of clonazapam for anxiety. I get depressed at times because of this..but of course can't tolerate all the side effects to those meds..believe me, I've tried several!
Thank you all for letting me vent. You don't know what it means to talk to people that actually UNDERSTAND. Please advise on the cytomel situation or anything else you might have to add. I'll do anything to feel better @ this point!
It's always something! So now I don't know if i should continue this Cytomel, as I've had this continuous chest pressure feeling for the 2 days I've been on it. Or is it all in my head? I know it's such a small dose..but the more I think about it (and I do tend to overthink!) It makes me uneasy that the endo said i "might" need some Cytomel but he really thinks because by B12 isn't as high as he'd like it..that that's what's causing my symptoms. My TT3 is 90 something and the low range starts at 100 something..I don't have my labs on me right now...so was he just making a guess when he prescribed it, so i would shut up about all these symptoms? As I stated, he thinks my symptoms are from the low B.
I am definately stopping in the pharmacy tomorrow to see about getting the liquid B..as I can't even tolerate the B12 shots..they make me anxious! My question is, can I stop the Cytomel and just take the B liquid..or should I stick with the cytomel? Today was my 2nd day of taking it and I just don't feel right. I see my GP this week to get the frees tested. I just feel like the endo is guessing at this point and trying to find a way to get me to stop complaining about these weird symptoms! I think he's disgusted with me because I just cant seem to tolerate alot of things. Even before this..I felt weird when I'd take Tylenol! Ibuprofen is ok..but can't even tolerate caffiene, some cold medicines, etc.....I really am at my wits end with all of this. I don't even remember what it's like to feel normal and it's very depressing. I try to stay positive, but when you never feel good, it gets old real quick.
I wish my kidney cancer wasn't misdiagnosed for two years, I wish I didn't accidently find this Hashimoto's with nodule and then TT ( I only got a scan because my sister had ThyCancer). It's turned me into a Hypochondriac and I get anxiety very easily. I take what a Dr says with a grain of salt..as I saw 5 specialists who wouldn't listen when I told them something was wrong and told me it was all "in my head"..until I demanded a simple CT scan. Had I not been so persistent, I would be dead..as per the surgeon. I'm lucky I survived these things, I know. But it's an awful feeling always wondering if something is going on and I'm just not catching it!
I know you're wondering and yes..I see a psychologist and I take .75mg of clonazapam for anxiety. I get depressed at times because of this..but of course can't tolerate all the side effects to those meds..believe me, I've tried several!
Thank you all for letting me vent. You don't know what it means to talk to people that actually UNDERSTAND. Please advise on the cytomel situation or anything else you might have to add. I'll do anything to feel better @ this point!
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