Aa
Still feeling like crap and at my wits end!! Help!!!
Obviously, I need a new endo! I had TT Dec 09 and although I don't expect to feel wonderful, it seems like I'm going backwards! I know that I need to get the "Frees" tested now and I'm going to get my GP to do it. I can't believe how hard it is to find a Dr that will test!
Anyway, my last labs were Total T4 8.7 (Range 4.5-12.0) T Uptake 0.87 (Range 0.66-1.27) TSH 0.611 (Range 0.400-4.000) Total T3 93 which is low..(Range 104-260). i just had these labs done 7-29-10. I've been on Synthroid 125mcg for 9 weeks now and Endo doesn't want to raise it and says I may have a conversion problem. He told me that almost 3 months ago because my T3 was even a bit lower than it is now. I see him August 12th and that will be my last meeting with him. I've got to find someone new.
I'm telling him of my symptoms and how I feel like I'm going downhill and he keeps saying I need to take something called Folbalin Plus (some form of Vit B?) or B12 shots..my B12 level is 525 (Range 200-900). My GP says I am within range. I don't know who to listen to anymore! Endo says he's not raising synthroid now and might need to add Cytomel to the mix..what is he waiting for? He told me that months ago!!
So, he is blaming my symptoms..anxiety, feeling off balance (like i have to sit down alot), forgetfulness, moodiness, tingling hands (calcium is fine), etc...on not having enough B12?? Does that sound right to you guys? I find that hard to believe and when I tried the B12 shot and Folbalin Plus, I felt more anxious than ever! This appt on the 12th should be interesting!
It seemed like I was starting to feel better. I went back to work and was getting out abit. Now, it's all I can do to go to work and I pray I make it thru the day. I just feel "off." Sometimes, it's hard to explain!
Does any of this sound normal? Please help. I know I need the Frees tested and I know I obviously need a new Endo. What do I do in the meantime? Why does he keep pushing the B12 when I tell him the only thing it does is make me feel like I'm going to crawl out of my skin? And what is he waiting for if I do need the Cytomel? Don't worry..he's going to get an earful! Thanks for listening and advising! ...Lynda
Anyway, my last labs were Total T4 8.7 (Range 4.5-12.0) T Uptake 0.87 (Range 0.66-1.27) TSH 0.611 (Range 0.400-4.000) Total T3 93 which is low..(Range 104-260). i just had these labs done 7-29-10. I've been on Synthroid 125mcg for 9 weeks now and Endo doesn't want to raise it and says I may have a conversion problem. He told me that almost 3 months ago because my T3 was even a bit lower than it is now. I see him August 12th and that will be my last meeting with him. I've got to find someone new.
I'm telling him of my symptoms and how I feel like I'm going downhill and he keeps saying I need to take something called Folbalin Plus (some form of Vit B?) or B12 shots..my B12 level is 525 (Range 200-900). My GP says I am within range. I don't know who to listen to anymore! Endo says he's not raising synthroid now and might need to add Cytomel to the mix..what is he waiting for? He told me that months ago!!
So, he is blaming my symptoms..anxiety, feeling off balance (like i have to sit down alot), forgetfulness, moodiness, tingling hands (calcium is fine), etc...on not having enough B12?? Does that sound right to you guys? I find that hard to believe and when I tried the B12 shot and Folbalin Plus, I felt more anxious than ever! This appt on the 12th should be interesting!
It seemed like I was starting to feel better. I went back to work and was getting out abit. Now, it's all I can do to go to work and I pray I make it thru the day. I just feel "off." Sometimes, it's hard to explain!
Does any of this sound normal? Please help. I know I need the Frees tested and I know I obviously need a new Endo. What do I do in the meantime? Why does he keep pushing the B12 when I tell him the only thing it does is make me feel like I'm going to crawl out of my skin? And what is he waiting for if I do need the Cytomel? Don't worry..he's going to get an earful! Thanks for listening and advising! ...Lynda
I don't really know if my adrenals were tested? I know that sounds foolish on my part, given the history of kidney cancer. Unless, I just don't know what it's called on my blood labs...so much stuff. I'll definately ask for the 24 hr saliva test.
I know before TT, the endo wanted to do some test where I was injected with something at different intervals??..Serum cortisol or something? But then he explained to me that I would most likely have very bad nausea during the test? I declined it because I already get so nauseated easily and he made it sound like hell. He never said anything else about it.
this is getting interesting. well, time to leave for work..thank you!
I know before TT, the endo wanted to do some test where I was injected with something at different intervals??..Serum cortisol or something? But then he explained to me that I would most likely have very bad nausea during the test? I declined it because I already get so nauseated easily and he made it sound like hell. He never said anything else about it.
this is getting interesting. well, time to leave for work..thank you!
wow... I think we are onto something here. You certainly could have some adrenals issues - even causing your thyroid to be off.....
When was the last adrenal blood lab? - acth testing?
You can find the adrenals are brushed off as "fatigued" and not looked at in the perspective of things. Its just not reconized much at all unless the are critically an issue.
This sounds like a cortisol issue and I believe a 24 hr saliva tests would pick it up much more precise than a once draw on an ACTH test.
When was the last adrenal blood lab? - acth testing?
You can find the adrenals are brushed off as "fatigued" and not looked at in the perspective of things. Its just not reconized much at all unless the are critically an issue.
This sounds like a cortisol issue and I believe a 24 hr saliva tests would pick it up much more precise than a once draw on an ACTH test.
Well, I get home from work exhausted feeling..but as the evening picks up I seem to wake up...I must if I am up until that time. And then to get up so early..and feel like crap and have trouble going back to sleep? Maybe I could, if I didn't take the synthroid at 7am?
Interesting...because I had kidney cancer 8 years ago and the endo is aware I have 1 kidney now. I'm sure kidney, adrenals..are closely related. Shouldn't he have tested this sooner? My body feels tired, but it's not a sleepy tired where I could take a nap. Just dead weight. Like tired and anxious at same time...if that makes any sense!
are you feeling more alert or more upbeat with energy at the midnight to one AM?
well.... you know what that points too now that you said this? --- a d r e n a l s....
and That is more why you experienced hyper than really being hyper.
Get a saliva 24 hr culture wither with your doctor or you can find them on your own too WITH the results.
and That is more why you experienced hyper than really being hyper.
Get a saliva 24 hr culture wither with your doctor or you can find them on your own too WITH the results.
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