Aa
thyroid removal
After a year from having my thyroid removed due to hasomotos disease and 3 drs my hair is still falling out to the point of my needing a wig. I have sweats, headaches, not able to sleep all night, ache in joints., They keep switching my meds started on 100 then to 125 then back to 100 then to 112 and now back to 125, like a roller coaster and no help. All are doctoring the test and no one wants to hear me and how I feel. Can't switch to other endos as you have to have a referral and you don't know what you are going to get until you switch and seems they only care about what your test say and the range is way broad. Went to a dermatologist and on 5000 mg Biotin for 3 months now but not helping. Taking Levothyroxin and even tho I tell the dr they have a side effect of hair loss they just shake their head and say it takes time its not the drug. What do you do?
I had a half of one lobe removed about 15 years ago and was on 24mcg before my surgery to totally remove my thyroid. I had been diagnosed with hasimoto disease. I started losing my hair at the start with 100 and then 125 but it has gotten worse now after they went back to 112 and now 125 I have blood work done next week and it will be interesting to get the results. they ordered free t4 and tsh and I requested free t3 to also be done. I had no problem with my hair till after the surgery
The heart palps were most likely the meds. Palps can be a symptom of either hypo or hyper. I don't know why doctors don't get this.
They didn't test ferritin as part of your iron panel?
Which levo are you on? All the different brand names and the generics contain different fillers (inactive ingredients). Some people are sensitive to these fillers and a simple change of brand or from generic to brand or vice versa helps symptoms.
So, you were only on 25 mcg prior to surgery. You couldn't have been very hypo??? Was your hair falling out then? Do you notice it getting better or worse when you increase or decrease?
They didn't test ferritin as part of your iron panel?
Which levo are you on? All the different brand names and the generics contain different fillers (inactive ingredients). Some people are sensitive to these fillers and a simple change of brand or from generic to brand or vice versa helps symptoms.
So, you were only on 25 mcg prior to surgery. You couldn't have been very hypo??? Was your hair falling out then? Do you notice it getting better or worse when you increase or decrease?
Iron Binding calculated TIBC 303 250-450
IBC Serum 68 35-145
unsaturated IBC 235 155-300
Calculated iron sat 22 20-50
I was on 25mcg before my surgery and after was put on 100 and within a week changed to 125 in less than 10 days my TSH dropped from 11.290 to 1.31 and it has been a roller coaster ever since. I told the dr that I was having heart palpatations after they put me on 125 and she said it wasn't the meds. I ended up in the ER with symptoms of Graves disease and they had to lower my meds to 112 I ask if they put me on to high a dose to begin with instead of gradually upping the dosage and the endo said NO
After being on 112 for a couple months they went back to 125 and not having the palpatations but not feeling well and biggest thing is my hair is falling out BAD Thinking of getting a wig can't seem to make them understand the problem Wondering if it is partially the levothyroxine
IBC Serum 68 35-145
unsaturated IBC 235 155-300
Calculated iron sat 22 20-50
I was on 25mcg before my surgery and after was put on 100 and within a week changed to 125 in less than 10 days my TSH dropped from 11.290 to 1.31 and it has been a roller coaster ever since. I told the dr that I was having heart palpatations after they put me on 125 and she said it wasn't the meds. I ended up in the ER with symptoms of Graves disease and they had to lower my meds to 112 I ask if they put me on to high a dose to begin with instead of gradually upping the dosage and the endo said NO
After being on 112 for a couple months they went back to 125 and not having the palpatations but not feeling well and biggest thing is my hair is falling out BAD Thinking of getting a wig can't seem to make them understand the problem Wondering if it is partially the levothyroxine
Your thyroid labs really look pretty good. On 2/24, your FT4 was at 74% of range, which is a little high of the 50% recommendation. Over 10 years ago, AACE recommended that TSH range be changed to 0.3-3.0. As you can see, most labs and doctors, including yours, have been very slow to make the change. So, given that much more reasonable range, I'm kind of surprised your TSH would be that high with FT4 at 74% of range. However, we don't have FT3, so that could provide the answer to your high TSH.
Going back to December, FT4 was 84% of range, higher yet. FT3 was at 67% of range, which is right where the guideline says it should be (although that doesn't mean it's right for you, personally). TSH was even higher than in 2/14, so you can see that your TSH is not correlating with FT4. When FT4 goes down, TSH should go up and vice versa.
So, it doesn't look to me like you are under medicated, as I suspected you might be, and your FT3 is nicely up in the range, so it looks like you convert just fine, too. BTW, you should insist on FT3 every time blood is drawn.
I notice they tested TSI. Had you previously had Graves'?
So, we know that your serum FT3 and FT4 levels look more than adequate.
Do you think you could actually be over medicated, i.e. do you have any hyper symptoms, especially when your FT4 is up to 84% as it was in December?
Would you post the results and reference ranges for your iron panel?
Going back to December, FT4 was 84% of range, higher yet. FT3 was at 67% of range, which is right where the guideline says it should be (although that doesn't mean it's right for you, personally). TSH was even higher than in 2/14, so you can see that your TSH is not correlating with FT4. When FT4 goes down, TSH should go up and vice versa.
So, it doesn't look to me like you are under medicated, as I suspected you might be, and your FT3 is nicely up in the range, so it looks like you convert just fine, too. BTW, you should insist on FT3 every time blood is drawn.
I notice they tested TSI. Had you previously had Graves'?
So, we know that your serum FT3 and FT4 levels look more than adequate.
Do you think you could actually be over medicated, i.e. do you have any hyper symptoms, especially when your FT4 is up to 84% as it was in December?
Would you post the results and reference ranges for your iron panel?
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Another possibility is RT3 dominance. There are only two ways for the body to rid itself of excess T4...either convert it to FT3 or to RT3 (reverse T3). RT3 is inert, and this is the body's way of controlling FT3 levels.
A pituitary issue is also possible.
Of course, it should be easier to pin down once we see FT3.
They love to blame everything on depression, don't they?