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thyroid removal

After a year  from having my thyroid removed due to hasomotos disease and 3 drs my hair is still falling out to the point of my needing a wig.  I have sweats, headaches, not able to sleep all night, ache in joints.,  They keep switching my meds started on 100 then to 125 then back to 100 then to 112 and now back to 125, like a roller coaster and no help.  All are doctoring the test and no one wants to hear me and how I feel.   Can't switch to other endos as you have to have a referral and you don't know what you are going to get until you switch and seems they only care about what your test say and the range is way broad. Went to a dermatologist and on 5000 mg Biotin for 3 months now but not helping.  Taking Levothyroxin and even tho I tell the dr they have a side effect of hair loss they just shake their head and say it takes time its not the drug.  What do you do?
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Avatar universal
You might do some reading on thyroid hormone resistance (THR), which is a condition in which very high levels of FT3 and FT4 are necessary for thyroid hormone to be able to get into cells.  

Another possibility is RT3 dominance.  There are only two ways for the body to rid itself of excess T4...either convert it to FT3 or to RT3 (reverse T3).  RT3 is inert, and this is the body's way of controlling FT3 levels.

A pituitary issue is also possible.

Of course, it should be easier to pin down once we see FT3.

They love to blame everything on depression, don't they?

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Avatar universal
Please post recent thyroid labs and include reference ranges.  They vary lab to lab and have to come from your own lab report.  

My guess is that your doctor(s) is treating you based on TSH.  That's very volatile and should never be used alone to manage meds.  FREE T3, which correlates best with symptoms, and FREE T4 are the tests that will help you to feel well.

Hair loss is a symptom of being hypo, so you're probably under medicated or on the wrong meds for you.  
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