I was just given a preliminary diagnosis of trigeminal neuralgia and, after spending too much time reading online about it, am completely terrified. I will be meeting with a neurologist next week to discuss treatment options. In most ways, my symptoms seem to match what I read online: it feels like dental pain, on one side of my face (usually in the lower molar area, sometimes in the upper), and is triggered by warm or cool food and drinks, or chewing, or sometimes even the wind. The pain usually lasts about 10 seconds, although it once lasted for over 2 minutes. The pain is intense -- like an extreme, intense version of cold sensitivity -- but I don't know that I'd describe it as shock-like, or as the worst pain I've ever felt. (I get frequent migraines, and I think that pain is worse.)
I'm wondering if this is how TN normally begins -- if it begins mildly and sporadically, and then inevitably progresses to more extreme pain. I'm clinging to the hope that maybe this is something other than TN. (For example, I have to wear a nightguard at night because I clench my teeth, which often causes an aching jaw. So I keep wondering if maybe that's the cause of this pain. But maybe that's wishful thinking, because I'm hoping so much that this isn't really TN.)
The dentist and endodontist have found no explanation for the dental pain -- nothing appears to be wrong with the tooth where the pain is usually located. In fact, it was an endodontist who first suggested being assessed for TN.