Columbia Neurosurgery, Pitt Neurosurgery, UPMC all seem to have surgeons who specialize in glossopharyngeal neuralgia. The TNA Association may also be able to point you in the right direction.
I was told by doctor that there is only one doctor he trusts with doing any kind of procedure/ surgery for GPN. His name is Dr. Alain C. De Lotbiniere, MD, located in West Harrison NY. Good luck
My swallow specialist believes that I also have this. As well as occipital , but I also have a tissue shortage from scar tissue, I cant even move my neck.
Look up Peter Janetta-Pittsburgh
Possibly Penn state.also.
I was just diagnosed with Glossopharyngeal Neuralgia yesterday. I turn 40 on November 15th. The pain is unbelievable when it comes on, and unfortunately I have a very difficult time taking pain medications as they make me very ill & drowsy beyond belief. I have had 2 MRI's, a Fine Cut CT Scan, met with an Otolaryngologist and a Neurologist. We now know that I have this rare neuralgia condition. I am just now trying to figure out my plan and ways of dealing with this, so I am researching as much as I can. I have only had my condition for less than two weeks since it came on suddenly on Oct 27th. I thought I had a tumor or aneurism because the pain was so severe and it came in waves. I know surgery is an option and I will consider this if my pain continues at the severity I experienced when it first came on. For now my pain has slowed to a dull ache in the right side of my throat, ear area, and upper head with sporadic shooting pains every once in a while. If I hear of any great surgeons for this procedure I will let you know.