Aa
Trigemimal Neuralgia
I posted this question a few minutes ago, but have no idea "where" it is!!! So here I go again.....
I'm a female in my 60's, diagnosed with Trigemianl Neuralgia about a year ago, and would love to hear from other females with the same problem. Your pain level, medications you take, and anything at all about managing this condition!!
After my first episode of Trigeminal Neuralgia, I took Gabapentin 100mg 2x-3x a day for 3 months. The pain gradually got better and I reduced my pills to 1x a day. The pains then went away for 3 months, and I continued with 1 pill each evening. When I tried to reduce to 1/2 pill each day, I would start having some minor pain. I didn't want the severe pain to start back again, so I continued to take 100mg each evening. It seemed to work fine.
Then about 2 weeks ago, I started having episodes of severe pain again, although not as bad as they were a year ago. I'm taking 2-3 pills now, hoping to tame the pain again. I do not want to go with a higher dose unless I absolutely have to. I've read that periods of remission, then back again, can be part of this nerve condition. That's why I would love to hear from others, to see what is happening with them.
Please let me hear from you!
I'm a female in my 60's, diagnosed with Trigemianl Neuralgia about a year ago, and would love to hear from other females with the same problem. Your pain level, medications you take, and anything at all about managing this condition!!
After my first episode of Trigeminal Neuralgia, I took Gabapentin 100mg 2x-3x a day for 3 months. The pain gradually got better and I reduced my pills to 1x a day. The pains then went away for 3 months, and I continued with 1 pill each evening. When I tried to reduce to 1/2 pill each day, I would start having some minor pain. I didn't want the severe pain to start back again, so I continued to take 100mg each evening. It seemed to work fine.
Then about 2 weeks ago, I started having episodes of severe pain again, although not as bad as they were a year ago. I'm taking 2-3 pills now, hoping to tame the pain again. I do not want to go with a higher dose unless I absolutely have to. I've read that periods of remission, then back again, can be part of this nerve condition. That's why I would love to hear from others, to see what is happening with them.
Please let me hear from you!
Oxcarbazepine is the generic name for Tileptal and It is what I have taken for TN with good success. I'm glad it helps control your pain.
Have you thought about one of the surgical procedures? Or one of the alternative treatments?
Have you thought about one of the surgical procedures? Or one of the alternative treatments?
i have had ms for over 30years and bouts of trigemimal neuralgia for the last 10years i am female 65 years of age now in a wheelchair i have been givin many drugs and treatments over the past 30years most drugs make me worse as they all have side efects on one of my stays in hospital a doctor who was only passing saw me in pain and asked if i tried oxcarbazepine i took his advice as i had nothing to loose this drug works for me i take 2x300mg twice a day when i have an attack sometimes it lasts for days but can last for weeks it stops me from wanting to die yes the pain is that bad
What type of TN or other facial pain are you dealing with?
The anti-seizure meds (gabapentin, Tegretol, Trileptal. etc) at the right dosage level can stop the pain completely.
Other coping mechanisms can help short-term -- some people like heat (I use a microwaveable beanbag) or ice. Oragel will numb teeth and gum pain caused by TN and allow you to chew and talk. Some people have reported success with upper cervical chiropractic or accupuncture.
The main thing is not to give up. I had to go thru 5 doctors before I found #6 who helped me get my pain under control. Facial pain is not something that all doctors are experts in -- and sometimes you have to search to find the doc that will be able to help your particular situation.
Take care,
Nancy
The anti-seizure meds (gabapentin, Tegretol, Trileptal. etc) at the right dosage level can stop the pain completely.
Other coping mechanisms can help short-term -- some people like heat (I use a microwaveable beanbag) or ice. Oragel will numb teeth and gum pain caused by TN and allow you to chew and talk. Some people have reported success with upper cervical chiropractic or accupuncture.
The main thing is not to give up. I had to go thru 5 doctors before I found #6 who helped me get my pain under control. Facial pain is not something that all doctors are experts in -- and sometimes you have to search to find the doc that will be able to help your particular situation.
Take care,
Nancy
How can this be so painful and not kill me? Is there a limit to how much pain someone can be in?
Hi Ravit,
Do you know if you have Type 1 - brief intermittent pain like electric shocks or Type 2 - constant pain like burning? Some people have pain relief from accupuncture. Some people have pain relief from upper cervical chiropractic (although there are only a few practitioners that know how to treat TN).
I have Type 1 and heat works for me. But every person is different.
Some people say Vitamin B-12 is good, but it's not a cure.
Have you found a doctor who specializes in Facial Pain?
Wishing you all the best,
Nancy
Do you know if you have Type 1 - brief intermittent pain like electric shocks or Type 2 - constant pain like burning? Some people have pain relief from accupuncture. Some people have pain relief from upper cervical chiropractic (although there are only a few practitioners that know how to treat TN).
I have Type 1 and heat works for me. But every person is different.
Some people say Vitamin B-12 is good, but it's not a cure.
Have you found a doctor who specializes in Facial Pain?
Wishing you all the best,
Nancy
Hay my friends. my name is Ravit I am suffring this TN condition for a long time.In my case it happend after a dental treatment, if i can call it a treatment. I am taking Lyrica and it is not easy to me at all. It's a hard pain to deal with. please my friends,I need an advice, what to take??? What vitamins? What better to put on the face cold or hot? my pain is internal I feel it more from the inside, I don't have a problem with touching my face, I guess it different when the cause is a damage of dental treatment then the usual illness. Can some vitamin repair it over the years??? What about Acupuncture did any of you tried? And did any of you heard of a homeopathic plant named spigelia ??? For me, i think surgery can't help. Sorry if my English is not perfect it's not my mother language. Thank's
Have an Answer?
You are reading content posted in the Trigeminal Neuralgia Community
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
