My son has the exact same thing happen to him on a daily basis. After a battery of tests that all came back negative, we saw 2 infectious disease doctors and were told yesterday that our son just has a higher than normal body temperature. We were told it is ok for him to have 101 temperature but to call them if he has a 102 temp or develops new symptoms. (The fever is his only symptom.) I am relieved but find it hard to believe... I am ready for him to not have skin that is warm to the touch. They feel like he will outgrow it. We shall see! Let me know if you get any other answers from doctors. Hang in there!
It could be that activity is bringing his temp up too (versus sleeping). I hope you get that fever panel!
Thanks so much for your advice. My son doesn't like to drink lots of water,so I am going to try to make sure he is drinking plenty of fluids and see if there is an improvement. When he wakes up in the morning typically his temp is 98.7 and give it two hours and ranges from 100.2 to 101 and then following his nap is temp will be back at 98.7 and then check it before bed and it will have gone up again. They haven't diagnosed him with an infectious disease, the only test he ran was TB and it came back negative. He said might be EBV but if it is it has been going on since Feb and didn't want to check his blood again. I will ask if they ran a fever panel, as far as I know they haven't. Diabetes does run in the family but typically it has been type 2 so... I will keep you posted!
I had seen you say his temp was normal when he first woke up... I was wondering specifically the numbers- how much of a difference is it from the febrile state he gets to two hours later? CMV I believe can be passed from mother to child and is a source of recurring fevers. This might not be his problem, but have you ever been tested for this contagious virus? It's pretty common and can even be spread they say by coughing and sneezing.
I believe in babies, their hypothalmus gland may not be quite mature yet. I know when a close relative of mine had her first baby they got literature about keeping the home environment at a constant temperature because of this.
I do think you should press your doctor about what kind of infectious disease your child has. Then you can read up on it. It is not fair to you to not be informed about it, since you say he was diagnosed. You could try to obtain a copy of his medical records and see if it says in there if they are refusing to tell you.
Welcome to the MedHelp forum!
I am not sure what tests were done but most labs offer a fever panel that investigates all causes of fever. In children often dehydration is the culprit. So when your son wakes up try and give him something to drink like lemonade, juice etc. Recurrent or chronic fever is seen in tuberculosis, SLE, rheumatoid arthritis, Polyarteritis nodosa (PAN) and other auto immune disorders, UTI, drug fever, sinusitis, glandular fever, otitis media, IBS, endocarditis, parasitic infestations, fungal infections, lymphomas and other cancers etc. Cancers and blood disorders have been ruled out. So other causes have to be looked into. Fever after stress or activity that becomes normal at rest is also seen in anemia, diabetes, hypothyroid states, overwork, stress and fatigue. It is also seen in diseases like tuberculosis. A comprehensive investigation is required keeping all the points in mind.
Hope this helps. It is difficult to comment beyond this at this stage. Please let me know if there is any thing else and do keep me posted. Take care!
When he wakes up in the morning and from his naps his body temp is normal, give it a couple of hours and it will range from 100 to 101. I think he is drinking enough, he has several wet diapers a day. He is never overly dressed. I have told my pediatrition and the infect doc about thyroid but they tell me he is growing normally and does not have appearance of what they typically see with a baby with thyroid problems. To me though there has got to be a reason his body temp varies throughout the day, and i never have to give him meds to control it. The highest it has been has been 101.4 Any suggestions?
What is his temp when he wakes up? Is he drinking enough? Is he bundled up with a lot of clothing in the morning? It seems suspect they would diagnose him with infectious disease (non-specified?) and then advise you not to be concerned. I'd be asking what kind of infectious disease? Is it CMV or what? Is his thyroid function normal?