Hello, I am reposting my information from the Colitis forum. If anyone has any suggestions/thoughts or can relate to my symptoms, I would really appreciate any feedback you can give me. I have limited insurance and want to make sure I get the proper tests. Sorry this is so long and thanks so much!
Here are my symptoms:
I am a 35 year old female- usually exercise regularly until recently. My symptoms have become very debilatating and I am having difficulty watching my children and working.
GI: previous diagnosis of IBS/lactose intolerance (have had most of my life: diarrhea/sometimes constipation, bloating every evening, nausea (sometimes vomiting), heartburn-at times. Have lost 12 pounds since June was 115 now 103.
Neurological: frequent migraines-increase in past two years, after my 2nd child's birth-3/4 times a week-during my period for five days with no relief from medication with vomiting/diarrhea. dizziness, recent forgetfullness-having trouble word finding.
Kidney: diagnosed with kidney stones several times and was hospitalized at one point and given IV antibiotics (was out of the country and told I had kidney infection.) also in college had recurrent urinary tract infections. Presently having intermittent pain in left kidney and off/on feel like I have a urinary tract infection.-Had one two months ago.
muscles/bone:; arthritis in neck. Also have muscle pains in midback, shoulders. Recently started getting shooting type pains in head, jaw, hand and muscle pain in right calf with swelling.
Gynecological: frequent yeast infections/several bouts of mastitis while breastfeeding my children.
Also my toes have been turning white-particularly with the migraines. I am usually very cold even in hot weather.
Due to my symptoms I have had several blood tests. My red blood/white blood cell count were normal-although my hematocrit was a little low. I had a low positive ANA-titer 1:80-this was repeated with same result by rhematologist. I have a slightly low C3 and C4. I had a negative MRI scan of the brain, X-ray of C-spine revealed arthritis in my neck. the rhematologist did not think I had Lupus due to other tests but thought I should see a GI doctor. GI doctor thinks it is either IBS or Celiac-he also wanted to rule out Crohn's/UC (strong family history) although it is not likely because past tests did not reveal this. He also said my test from the rheumy might mean I have problems with my liver enzymes and ordered blood tests to rule out a rare liver disease. I am awaiting these results as well as for Celiac and stool culture.
any thoughts? thanks again