so confused

[confusedbymyhealth]

I am a 30 yr old male, I have had some of the weirdest health issues all my life. I have had sudden onset spinal meningitis at 4 yrs old, my appendix removed at 9yrs old i was sick forever doctors said my body encased my appendix in calcium, it kept me sick but did not show up on blood tests, a lymph node removed after a tick bit 11 yrs old, atypical pneumonia 25yrs old, tons of infections, prostate, ect. As well as a lot of stomach problems including stomach cramps so bad I can't move, diarrhea or really loose stool for weeks and months at a time. As long as I can remember I have spells of feeling hot and just  really fatigued and lethargic at random times it has been so severe at times all I can do is go to sleep. My question is, is there a disease or something that can cause these kinds of constant problems. I am not immuno compromised that I know of. Have been through the e.r. tons of times my white count is almost always elevated. I have scans of my brain, stomach repeatedly, my lungs. I had one doctor tell me I had a spastic colan? I have never had a regular doctor so I am wondering if there is certain tests I should ask my doctor about now that I have insurance?

[mkh9]

When they removed the lymph node due to the tick bite did they biopsy the lymph node or do any tests for lymes disease? You should see a Lyme literate doctor or LLMD in your area as they will test you for Lyme disease and they understand the disease better than the regular doctors. They have a PCR test that is much more accurate than the standard  serology I believe it is called IgeneX. They are the ones that will send out your blood for the PCR test. You can get the Western blood done too but these can be variable depending on your immune status and so forth. A lot of kids can get meningitis, I had problems with my appendix at your age too. I have had atypical pneuomonia twice (mycoplasma pneumonia or walking pneumonia usually but it can be caused by chlamydia pneumonia too). Was this bout of atypical pneumonia following a influenza or cold? These are not too unusual either. You could be lactose intolerant, have wheat gluten intolerance or a food allergy of some other type. Crohns disease? I would do an emanation diet where you knock out all dairy and see if that works if not knock out all wheat etc. if not then it isn't food probably or see an allergist. The high white blood cell count leads me back to an infection with possibly lyme. Has your blood calcium ever been high? What about urine calcium? What types of infections have you had? Were they bacterial or viral or both? Where were they located, urinary tract and prostate or anywhere else (not including the atypical pneumonia). Maybe an infectious disease doctor? I know it is crummy going from one doctor to the next. I had to do the same and it took 8 years to get diagnosed with a migraine variant. I saw every doctor under the sun. Finally, I got help. I think you will too. I hope I can help you.

[jemma116]

Did the worst symptoms come on after being bit by the tic.

You can get Lyme's disease from a tic bite.  So you could mention that to the doctor so as to know what type of blood test to order.

Fatigue and lethargy can be caused by all sorts of different illnesses and diseases as well as from stress, anxiety and depression and not having good sleep hygiene.  A blood test to check your iron levels, Vitamin B12 deficiency would also be a good idea.

Have you ever been checked for bowel problems?  And for any parasites or worms?  Bad stomach cramps could be caused by anything and even from simply trapped wind.  

It would also be a good idea to have a breath test done to check if you have Helicobacter Pylori.  Blood tests for this do not give accurate readings.  Sometimes a stool sample is used.  

Best wishes.