hi
yes i have had cervical mri. i do have copies of everything and i have read doctors dictations. its said severe carpal tunnel in arms. but this year was the first time emg ever done on arms. before this alwas in legs. in legs it has always been normal. the dictation by the neuro dosent sya much just excluding things like ms, als and stiff mans syndrome.
this is what it says for mri of cervical without contrast
mild disc desiccation at c3-4, c-5, c5-6
straigtening of the -spine with slight reversal of lordosis in the midportion.
no evidence of abnormal signal intensity within the vertebral bodies.
the mri of brain
nonspecific T2 and flair hyperintensity in the left frontal white mattter.
dictation of neuromuscular doc.
extraocular movements are intact. facial stregnth normal, speech clear. normal muscle bulk, tone and tregnth. sensory exam in symetrical to fine touch. reflex normal.
we completed muscle biopsy which demonstrated no diagnostic abnormalities. blood work for cpk, anti GAD antibodies and parvo B-19 were negative. extensive imaging studies of brain and spine and other rhumatalogic exam , thyroid, and blood all negative. unremarkable emg accept for carpel tunnel. chemistry level unremarkable except for mildy elevated globulin and protien. sed rate elavated in past.
so basically i have in all gone too 3 different neurologist and one neuromuscular doc. no one has a clue.
my sysptom for last few days are crazy. my toes and finger are on fire along with rest of body and sharp electric horendous jabs of pain.
i hate it when its in my throat. all i know flu shot made all this go to another level in 2003.
i am in a pretty bad shape. i might go to the er tonight. eventhough the never do ****.
my strenght is normal, walking rmal, but the nerve pain is really bad and just the zanafles is not working.
I DO HAVE SUDDEN JERK WHILE I AM SLEPING.. ESPECIALLY WHEN I AM DOZING OFF TO SLEEP. THE OTHER DAY IT LITERALLY PUT ME IN A SITTING POSITION. AS FAR AS WHEN I AM AWAKE, ITS NEVER THAT DRAMATIC. I MEAN I HAVE A LOT OF TWITCHING IN MUSCLES.
THERE ARE SO MANY SYSMPTOMS IN SO MANY PLACES. MY EAR LOBE VIBRATES. WIERED
ANYWAYS I DONT KNOW WHAT TO DO ANY MORE .
the doc said its normal.
ya possibly
the docotrs dont say anything. but the er doctor at that time said serum sickness from the flu shot. whe i researched about it back then i remembr it said its short lived but three years later here i am. the neuromuscular doc says whatever is going on it has not cause muscle weakness, atrophy or actual nerve damage. (emg of legs normal)
i dont know what to do. at my end of rope with this. ok i know this is bad language. i have to fight this
you know my first neurologist just termed as hypochondria and anxiety. i read hi dictaion and it says she mentioned fera of death. i mean so unfair becaus he asked me wierd questions back in 1999. sure i am afraid of death who the hell is not. so i feel like a new doc gonna read that and peg me like this from start.
i wish docs could just be more better listners. 99 percent of symptoms they dont even listen just nod their heads.
I know, its so frustrating, I
You have had an extensive work -up.
A few things you have mentioned--the stabbing pain in your eye,have you had your eyes checked by an opthimologist?
The jerks that you speak of are extending from the c-spine.
The numbness and other disburbances you speak off are often sensory and unless the EMG/NCS tech is highly specialized they don't touch on this area.
Theres other test that one of these nuero's could of done.Visual evoked potentals,samotosensory evoked potental,lumbar puncture.MRI of the thoracic spine.
You definatly have many neurological symptoms happening.Don't let these DRs dismiss you,you know your body.
Keeping a journal of your daily symptoms will aide you in what brings them on,what diminishess them .
I was where you were at a few years back,I seen 3 neurologist,neuromuscular specialist,4 neurosurgeons(bad back) and a electro-muscular specialist.I was scared, symptoms were persistant and at times relentless.I suffered from pnemonia and bronchitis for 3 months last year and all these Drs said it was in my head.Finally my electro-muscular DR sent me for MRI's lumbar and thoracic.All those Drs were wrong,it wasn't in my head but in my spine.I was Diagnosed in June with progressive MS.My brain has been spared at this moment.My point is you know how you feel!!To many patients walk away when disgusted with a DR.Find a previous DR or a new one and be very up front with him.Be honest with him about the fear of dying.Hand him all your med records and ask him to figure it out.Tell him you don't want to be dismissed but treated as a patient and with the dignity you deserve.My neuro and I get along great now.
Keep us posted on how you are doing.By the way the majority of my symptoms appeared after a tetnus shot.
one more thing
stabing pain in eye so bad knocked me from sleeping up.
u asked for copies of test. how could i get them to you.
Hi
i have had mmri of entire spine. last was in 2003. it was normal but it said a minimalbulge at some place and said it should be doing anything. it wasnt worded like that but i am just sumarrizing.
i do keep a journal sysmptoms. but i can never figure out what makes it come on and go away. i just right daily tab of all the syspmtoms.
i do have a lot going on. i was talking to my husband and saying maybe i am not explaining or using the right words.
i meanfrom head to toe. theres is so much vibratns in muscle too.
i mean should i give the doc play by play.
for example. sudden tightness in thraot followed by squeezing in eye followed by pins and needle in face along with twitching and rest of body ****.
i just give them basic list of sysmptoms and places they occur.
can the nuromuscular doc drop me as a patient if i bother them too much. i have been calling ever week about sysmptoms.