2cm (20mm) Stone, Mass, or Cyst

[Freakykate]

Ok, so a year and 9 months ago I was pregnant and found it was throwing protein in my urine. Had my baby a month early due to pre-e. I was being seen in the pregnancy by urologist for the protein and blood. Had an u/s then and they saw the right kidney was enlarged and both kidneys had something in them, possibly stones. Being pregnant he said we will just watch and address after baby. Well, my labor was intense cause I developed pre-e and my liver enzymes went up and my plates were low. I was told I needed to see a renal specialist after that to which I did and he told me he couldn't do anything until 6months to a year post because the pre-e will hold on. So here I am a year later from giving birth, and repeat us they said nothing in left kidney, and right is still slightly enlarged and I have a 2cm (20mm) Stone  (renal specialist said, urologist refuses to say that until the results from my Ivp xray are back). My question. Is those who have experienced this, did you have lasting effects to the kidney due to this size. Mine is stuck/embedded between the ureter and the kidney. I'm still throwing blood protein, and bp is normally 140-130s/90s. What will this ivp show really? What is the difference in an ivp xray and ct scan? I probably sound dumb. I have a history of 4 yes ago passing two stones. So feel that this likely is a large stone. Family history of kidney cancer and disease. Ok. I think I have covered it all. And I'm 25yr old. I know a lot of this is the doctor will have to answer but any one who has been through all this who can offer advice, insight, suggestions, ect would be greatly appreciated.

[Tuckamore]

Hi and Welcome. You are certainly not dumb. We all learn by asking questions.

You certainly had a difficult pregnancy. Preeclampsia (the development of proteinuria and hypertension after 20 weeks of gestation) unfortunately is not uncommon. The issues that coincide with it can range from near nothing to serious life changing problems. I'm sorry you are still struggling with it's aftermath

Our ureters measure from 2mm-5mm. As you know you'll not "pass" that large stone. The largest one measured that I passed (and there have been many) was a 7mm - very painful. They said I wouldn't pass it but I did.  

An IVP (Intravenous Pyelogram) is a much more detailed picture of the entire Urinary Track System compared to a CT scan. As you know an IVP requires a contrast material (dye), injected into a vein. This dye details structure, size, shape and so forth with more specific detail than a CT. However The Computed Tomography (CT) scan will be used in conjunction with the IVP to provide a better, more accurate DX (Diagnosis).  I've had both. A CT missed an important detail - the IVP caught it.

I'm not able to tell you for certain if the size of this stone will have a permanent impact on your kidney. I doubt it. Any abnormalities should resolve and return to normal.

I know this "waiting" for the final results of tests if often a maddening, stress filled time. My heart goes out to you. Our minds can run wild - and most often the results are far better than what our imaginations conjured up. That's what I hope for you.

I also hope in time this will all be a distant, unpleasant memory. Please keep in touch and let us know how you are doing. You'll be in my thoughts and I'll watch for your updates.

Best of Luck,
~Tuck
  

[namnam46]

Hi Kate. :)

First let me tell you that we're really happy that you've found this Forum. You are correct, there are no Doctor's just us CPP's (Chronic Pain Patient's).  

I want to let you know how happy I am for you on the birth of your beautiful baby!  Now let me tell you how I am for everything that you have been through and everything you are going through with your urological problems!   My dear, no one should have to endure the things that you have endured and continue to endure.  

I have never had to go through what you are but I just wanted to welcome you and let you know that I'm sure there will be someone that will answer you that.has undergone what you have or knows someone that has.  It may take until next week since this is a Friday afternoon, but PLEASE don't lose hope as someone will be here for you.  

Kate, I'm going to contact a good friend.of mine that has many problems with stones, as you do, and has a nursing background, more than 30 years.  Her name is Tuckamore and she should be along in just a few more minutes.  Hang in there!  We're all here for you.  

Looking forward to seeing updates from you!! .......Sherry  :)