Chronic Kidney Stones Doc's Don't take me seriously

[Kidneystoned55]

I am a 25 yr old male who has suffered with kidney stones periodically throughout my life.  I passed my first kidney stone when I was 11 years old, and didn't really have a big problem until i hit my late teens.  The worst of it has been the last two years-soon after i was diagnosed with Ulcerative colitis. My first question is could these be related?  My other concearn is Doctors don't seem to be taking me seriously about the pain, I recently was admitted to the hospital for pain control...They did a CT scan that showed no blockage...only a 5 mm stone in the kidney..The doc told me i couldn't possibly be having pain unless there was a blockage and that he couldn't really continue treating me (despite a long history, blood in my urine and extreme pain) because the ct scan was neg for ureteral stones.  After a week and a half of periodic pain i passed a 3 mm stone and my pain has subsided.  What do I do?

[Kandy1231]

I am 24 years old going to the Er like every 2 weeks. My reg doctor won't give me pain medication even tho I have a history of stones and was hospitalized in 2006. I am so sick of going to these doctors and getting nothing but them thinking I am addicted to pain killers. I have had every test done in the book the only thing they tell me is that my right kidney is enlarged significantly and they can't figure out why and my uiters are narrowing. I don't know what any of that means. All i know is that I have two children 5 years and 16 months who need their mommy and I am constantly feeling inadequate! My husband works from 6am to 6pm and than takes classes for his ASE from 7-11pm! I am always alone with little help and I really would like to get this under control and if nothing else at least get some relief! I have been told that I have very small like grains of sand in my kidneys and I can feel them! That may sound crazy but I can it drives me crazy! Someone please suggest something anything I can do...also please email me if you know of anything I can do!

***@****
Thanks,
Kandice  

[MSKshelly]

Many of us have stones that don't show up on test, IVP's etc. then pass them
later.  Like sick of stones, I have MSK.  There are some really great articles
on the pain even when their is no stone in the ureters, under the healthpages at the
top right side of this forum!

Just know you are not a lone...
Shelly

[Dr J Singh]

Hi,
Firstly, the patients of ulcerative colitis are definitely at an increased risk of developing renal stones due to hyperoxaluria (there’s an increased excretion of oxalate in urine) and you know that the most common kidney stones are calcium oxalate stones thus increasing the risk of these patients.
I didn’t like the attitude of your treating physician and he should definitely continue treating as you’re going through a genuine problem and it’s not a fake one. You need to take plenty of fluids and avoid foods which are rich in oxalate. For e.g. avoid nuts, beets, cola drinks, excess vitamin C containing foods and beverages, leafy greens and chocolate, tea etc.
I sincerely hope that helps. Please do keep me posted. Warm regards.

[eastmancrew]

Hello I just turned 31. I have suffered countless bladder infections for many years but no one ever investigated. My OBGYN just diagnosed me with a nervous bladder but I am not doing anything for it as my symptoms seem to have left for that. I was also hospitalized a few years back for a severe kidney infection and had two more since then with my latest problem being passing a very painfull 6mm kidney stone that got stuck at the end of its journey and caused intermittent pain for a week then finally popped out with a HUGE relief of this nagging pain that followed the 1/2 hr of severe pain. i have had many ct scans that show there are more in each kidney. I also collected my 6mm stone and took it to the doc so they could maybe figure this whole thing out. I keep hearing they are going to send me to a urologist but so far nothing has been done except i recieved a heavy dose of presc. meds in case another one decides to move out... lol
Shouldnt my docotor have gotten serious about this all by now... i heard all these things can cause damage to your kidneys.....

[gochoosy1]

MOST stones are from what we EAT!  MSG. NITRATES, soy protein, whey, just to name a few,  ALL ADDITIVES to make food last longer.  That is why you should eat FRESH FOOD, and really cut back on the protein. MILk, cheese, red meat, and soy.  Read the labels on what you buy.  Did you know that doritos are moslty just made out of preservatives? and TRIScuits, which you would think are healthy are full of MSG..As well as flavored rice a roni,hamburger helper mix, and the list goes on and on and on... BUY ORGANIC whenever you can and BUY things packaged in glass or cardboard, plastics are made of toxic chemicals.  Use glass and ceramic for all your cooking and eating.  If you use old plastic bottles to store juices or water, switch them to glass.  SUGAR may not have anything to do with stones, but it is also one of the worst things you can eat.  It ages every organ in your body it is hard to digest.  good luck

[ks552403]

First of all, I am crying after reading these postings. Thank you for sharing your stories!!! My urologist is currently telling me that it must be "female organs" responsible for my pain. I am 24 yrs old. I had my first 5mm stone at 19, which was broken up with lithotripsy (not well enough), because they had to redo the procedure to break it up again (after 5 days in the hospital with a blocked ureter). I have now made two visits to the ER with severe side pain and urinary urgency. A 3mm stone was found close to my bladder in the first CT scan. Since then, the pain has continued and my urologist cannot find any stones in my ureter through x-ray and IVP. He believes that the small stones in my kidney cannot be causing the pain and the stone in my ureter must be gone. He is now telling me to have my ovaries checked. I do not believe for one second that it is anything but a kidney stone. You ALL know the pain. It is the same as it has always been. I cannot continue to feel like I'm crazy and be treated like a "pain med seeker" in the ER. I don't know what to do next. I have a follow-up this week and I don't know what type of test to ask for/demand. Any suggestions are welcomed. Thank you so much for your posts. Finally, I do not feel alone. Should I try another Urologist? I cannot afford anymore useless x-rays!

Thanks,
Confused and worried...