Aa
Pelvic Congestion Syndrome
I was recently diagnosed with Pelvic Congestion Syndrome! Does anyone else have this or know of some good resources of information on this.
Since I have had several children, and have also have interstitial cysitits, along with Meduallary Sponge kidney disease, with multiple stones and infection, I spend a lot of time in research to find answers. I am also an IC support group leader and work with other Pelvic Pain organizations, yet find little to nothing about this condition
even there.
When this new diagnosis was made, based on a CT scan which unusually showed the blood backed up in the left ovary, then I was sent sent to a GYN specialist, and a Pelvic Pain Physical therapist, all confirmed the PCS diagnosis, I was shocked at the last of information or support I could find on this condition! The GYN here just wanted to do a hysterectomy but the specialist suggested this may or may not solve the problem.
My Pelvic Pain PT was the best, and taught me to move the blood flow using my lymph system. This usually helps a lot, however had a bad bout of constipation that has flared it badly again and I am having trouble getting the pain back under control. I would really appreciate any information or insight on this that I could find. Not only for me but to help get the information out to others!!
Thanks for any input or advice!
Shelly
Since I have had several children, and have also have interstitial cysitits, along with Meduallary Sponge kidney disease, with multiple stones and infection, I spend a lot of time in research to find answers. I am also an IC support group leader and work with other Pelvic Pain organizations, yet find little to nothing about this condition
even there.
When this new diagnosis was made, based on a CT scan which unusually showed the blood backed up in the left ovary, then I was sent sent to a GYN specialist, and a Pelvic Pain Physical therapist, all confirmed the PCS diagnosis, I was shocked at the last of information or support I could find on this condition! The GYN here just wanted to do a hysterectomy but the specialist suggested this may or may not solve the problem.
My Pelvic Pain PT was the best, and taught me to move the blood flow using my lymph system. This usually helps a lot, however had a bad bout of constipation that has flared it badly again and I am having trouble getting the pain back under control. I would really appreciate any information or insight on this that I could find. Not only for me but to help get the information out to others!!
Thanks for any input or advice!
Shelly
I was Diagnosed with PCS last week after 10 plus years of symptoms.
My complaints were pain, bleeding, nausea, faintness, fatigue, very enlarged abdomen, And the latest was slow pulse and heart palpitations. I have been going to my Dr. for years and he told me I had a "bug". So I went to a specialist and my options were at this point, Hysterectomy. That's it! I am 35 and have 3 children and want no more, so it's not a big deal to have one. But I wish all of you the best of luck, and don't just be passified like I was, Go see ten Dr's if you have to.
I have missed out on a lot in the last few years due to not being able to function with the pain, Don't let it happen to you! Good luck and best wishes!
My complaints were pain, bleeding, nausea, faintness, fatigue, very enlarged abdomen, And the latest was slow pulse and heart palpitations. I have been going to my Dr. for years and he told me I had a "bug". So I went to a specialist and my options were at this point, Hysterectomy. That's it! I am 35 and have 3 children and want no more, so it's not a big deal to have one. But I wish all of you the best of luck, and don't just be passified like I was, Go see ten Dr's if you have to.
I have missed out on a lot in the last few years due to not being able to function with the pain, Don't let it happen to you! Good luck and best wishes!
i was diagnosed with pcs in july this year and was so elieved to finally put a name to the pain i have been suffering since my little boy was born. i have three kids ages 9,5,4 and had v bad vv durning the second and third pregnancies. the viens are mainly from the vulva down the back of my left leg. having gone to a vien specialist with preg. 3 he told me he had never seen such a bad case! the pain i experienced was horrific and sex was completely off the bboks - although occ. i gave on but my husband was in charge of house and kids the whole of the next day! after giving birth though the veins became less prominent and although still there are not as bad.
about a year ago i started getting v bad back pain on my left side esp. when i was menstruating. but i also got severe ovulating pains and ym viens would swell durning both times. i also have nausea when i ovulate - i noted someone else on the forum did. having had an mri recently i was diagnosed with pcs with prominent varicose viens on my left ovary.
i have been told about the coil procedure and that this would be my best option. my question is whether any of you have had a successful go of the procedure and then went onto have another baby? pregnancy for me is terribly painful but when someone tells me its not such a good idea it make me want to have another!
about a year ago i started getting v bad back pain on my left side esp. when i was menstruating. but i also got severe ovulating pains and ym viens would swell durning both times. i also have nausea when i ovulate - i noted someone else on the forum did. having had an mri recently i was diagnosed with pcs with prominent varicose viens on my left ovary.
i have been told about the coil procedure and that this would be my best option. my question is whether any of you have had a successful go of the procedure and then went onto have another baby? pregnancy for me is terribly painful but when someone tells me its not such a good idea it make me want to have another!
I was diagnosed with PCS as previously posted, BUT when I had my hysterectomy on Aug 12th, my doc told me I didnt have it, but had Adenenmyosis.
I was also told that you really cannot see PCS on an MRI/Ultrasound. They have to visually see it.
I took antidepressants for nothing!! All my symptoms are now GONE!!
I was also told that you really cannot see PCS on an MRI/Ultrasound. They have to visually see it.
I took antidepressants for nothing!! All my symptoms are now GONE!!
HI Everyone,
My pain started July 16th, 2010. I ran to obgyn who told me my pap was clear and I had infection. A week later I had my period and was extreme pain. On my 36th birthday, August 15th, 2010 I was in the ER with the pain. The Dr. there finally did a CT. I was cleared and sent home. The next day I got call that I had PCS. I was referred to my OBGYN again who told me there was no such thing. I went to my regular for help who said he didnt think it was vascular without seeing the report. I finally did research on my own ask my regular doc to refer to an Interventional Radiologist and he wouldnt do it. I finally had to contact the Radiologist myself and ask to look at my CT and give me his opinion. The man is hero, he called my regular got my referral. I am now just waiting for the Embolism he said would help. If not, I read having a bilateral oopherectemy helps 56% of women with the condition. The past few months have been a nightmare to me. My doctors told me it was stress and would correct itself and put me on antidepressants. I wish they would have known more and had helped in the beginning. In end, I think we have to be our own advocates and find someone who will listen!!!
My pain started July 16th, 2010. I ran to obgyn who told me my pap was clear and I had infection. A week later I had my period and was extreme pain. On my 36th birthday, August 15th, 2010 I was in the ER with the pain. The Dr. there finally did a CT. I was cleared and sent home. The next day I got call that I had PCS. I was referred to my OBGYN again who told me there was no such thing. I went to my regular for help who said he didnt think it was vascular without seeing the report. I finally did research on my own ask my regular doc to refer to an Interventional Radiologist and he wouldnt do it. I finally had to contact the Radiologist myself and ask to look at my CT and give me his opinion. The man is hero, he called my regular got my referral. I am now just waiting for the Embolism he said would help. If not, I read having a bilateral oopherectemy helps 56% of women with the condition. The past few months have been a nightmare to me. My doctors told me it was stress and would correct itself and put me on antidepressants. I wish they would have known more and had helped in the beginning. In end, I think we have to be our own advocates and find someone who will listen!!!
Have an Answer?
You are reading content posted in the Women's Health Community
STDs can't be transmitted by casual contact, like hugging or touching.
Syphilis is an STD that is transmitted by oral, genital and anal sex.
Normal vaginal discharge varies in color, smell, texture and amount.
Bumps in the genital area might be STDs, but are usually not serious.
Chlamydia, an STI, often has no symptoms, but must be treated.
From skin changes to weight loss to unusual bleeding, here are 15 cancer warning signs that women tend to ignore.
