Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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anoama1Nov 17, 2014
1
By chrissychongs Blank
Ok I sweat a lot more than most people, when I eat food and walk around the end of my nose drips with sweat like a ta...
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By ShouldB7 Blank
My symptoms and health issues over the last 6 years chronologically: Sudden major low thyroid function: diagnosis...
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By jezzahra Blank
Hi there, I'm currently experiencing a variety of problems. Im a 30 year old male and was fit and healthy until thi...
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By KUL2014 Blank
I got this test result at 14.20KU/L, recurring severe upper respiratory inf, antibiotics showing no results, please g...
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Katwin60Nov 02, 2014
Dr Santos Mar 31, 2010
2
By JackieWeh Blank
I am an adopted 43 year old female with flanking chronic pain on the left side. Have been diagnosed with HBP, blood ...
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Dr Santos Apr 04, 2011
1
By pennymac Blank
I have just been told ive Mesntiteric Pannculitlis and have been trying to manage it with Panadine Fort which is not ...
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onefineseamstresOct 21, 2014
1
By bluebird133 Blank
My mom had metastatic uterine leiomyosarcoma. Does that diagnosis have anything to do with the lung cancer she died ...
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By Kp_kp Blank
Hi, I'm 17 years of age and for about 4 or so years I have been suffering from intense itch from my whole crotch. I a...
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By Mikef25 Blank
Age: 26 Weight: 173 lbs Height: 5'10" Lives in Connecticut Symptoms: Brain fog, fatigue, lightheaded, extreme...
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By Kiwikid69 Blank
Hi I am getting a pain in my right leg from the thigh through to the side of the knee and then in the shin and ankle ...
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By TBryant1027 Blank
I lost my child of 6months to brain damage caused by CUD, which went undiagnosed despite the newborn test. I was wo...
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ribosio80Oct 15, 2014
1
By ribosio80 Blank
hi, I saw a report in a television broadcast where he asked for help because the doctors do not know the disease that...
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Jon540Oct 14, 2014
Denne86Nov 10, 2012
selmaSNov 09, 2012
Denne86Nov 06, 2012
Denne86Nov 06, 2012
6
By Denne86 Blank
Hello. I am 25 years old an for the 2 past months i gotten insomnia problems... i got stiff neck, headaches, lack ...
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Red_StarOct 12, 2014
cmt2Oct 11, 2014
denceSep 27, 2014
ducky406Jan 23, 2012
FMA1977Jan 22, 2012
7
By ducky406 Blank
My husband has autosomal dominant Charcot-Marie-Tooth Syndrome. That means that there is a 50/50 chance any baby we h...
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By cmt2 Blank
Hello Group, Has anyone had any experience with exercising on a treadmill: Does it help or exacerbate your CMT sympto...
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By 020884Lg Blank
Hi im 30 yrs old and i have recently been having this awful deep arm and leg pain its the worst at night. Sometimes i...
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By Dussow Blank
I have bumps and rashes all over even in my palms and under my feet and they bite and scratches. i have not been able...
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By flobett1 Blank
pain in legs when I lay on my side, I had surgery on my back [lamanectomy] 3/ 4 yrs ago also had ablation surgery on ...
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LaserOzakiOct 07, 2014
1
By nocturnalvomiting Blank
My 3 year old daughter started waking up at 4 am 3-4 times a week vomiting anywhere from 1-3 times and as soon as she...
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rmfieldOct 06, 2014
selmaSFeb 19, 2014
DeniseGreisenFeb 19, 2014
AE87Mar 29, 2013
DeaMcDec 24, 2012
12
By ckeenan8 Blank
My 3 yr old daughter has had a lump/swelling located on her lower spine which has been there for 10 months. The lump...
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Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
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New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
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TMJ/TMJ The Connection Between Teet...
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selmaS
Allentown, PA