Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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Dr Santos Jun 03
2
By LilianaCc_ Blank
i get this pain on my right side like right next to my bellybutton , kidney & gallstones where ruled out i had an ult...
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crddiscJun 04
Dr Santos Jun 03
2
By crddisc Blank
Right leg artery was punctured when having heart stent placed Aug 2013. Since then I have chronic pain and swelling. ...
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Dr Santos Jun 03
2
By magdalenaeid Blank
I have been feeling like there's something stuck in the back of my tongue, for 3 days, but I checked and there's noth...
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By DebMox Blank
Hey there, In 1994 I contracted acute Cytomegalovirus that was misdiagnosed as Mono and I was sent home with enceph...
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Dr Santos Jun 03
1
By tbj1985 Blank
Hey I have idiopathic cyclic neutropenia. It's a genetic disorder...just wanted to see if anyone else has it or has ...
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Dr Santos Jun 03
1
By jeshotwell Blank
My blood test came back with high protein and high globulin. Went in and had another blood test showed monoclonal ant...
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Dr Santos Jun 03
1
By vishalsood Blank
My wife delivered a baby girl on 11th May on Mother's day. During her pregnancy, she was perfectly healthy & normal a...
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Dr Santos Jun 03
1
By Liberace Blank
Hello, So for the past half a year or so I had varied levels of anxiety whilst starting University, which I have le...
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Dr Santos Jun 03
1
By Chrisw030290 Blank
Hi I have recently notice more birthmarks are appearing on my body as I got neutofibmotas type one is it normal for m...
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Dr Santos Jun 03
1
By Fruitykem Blank
Wherever I go within one minute I see a fly Or flies there. Even after a bath I can a tiny reddish fruitfly like fly...
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Dr Santos Jun 03
1
By seuntermeyer Blank
I am a 46 year old female; always in good health till a year ago. About 9 months ago I started experiencing wrist pa...
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Dr Santos Jun 03
1
By otto12 Blank
Hi. Since October I have been living with chills all day. They can be pretty bad. At night I usually break out in a h...
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By bobbyguest Blank
After my biopsy on my liver, after treatments and you are cured do you get back the energy you use to have? How much ...
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rrobby37Jun 02
1
By closehrs1 Blank
A month ago I noticed a pressure in my ears, almost like i was getting a double ear infection. Within two days i had ...
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OSSupMay 27
selmaSAug 07, 2012
EveningsunJul 30, 2012
LeagueCityREALTORJul 29, 2012
EveningsunJul 29, 2012
8
By Eveningsun Blank
I am a 56 yr old woman, 155, 5'9" and my tracker name is: eveningsun I have way too many problems all at one ti...
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jemma116May 21
PantxMay 18
jemma116May 17
3
By Michelle_Kivett Blank
My 15 yr old son had been recently diagnosed and treated fro Gillian Barre Syndrome. When he was admitted to the hosp...
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selmaSMay 21
1
By Kmrowland86 Blank
Hi just wondering if anyone can help or give some advice. Basically over the past year, I have started to suffer with...
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nananxyzMar 22, 2013
AttinowJan 13, 2013
jami515Nov 13, 2011
jami515Nov 13, 2011
6
By venkii Blank
I am 25 year old gentleman, one thing has been ruining my life for the last 12 to 15 years, that foul smell is coming...
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luci875May 09
1
By Chrisw030290 Blank
Hi I recently found out I have NF type one I'm 24 just read it up and it a type of cancer but I don't know what to do...
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1
By snahita Blank
Hi I've had thus thing where its hard to tauch my skin on my left arm for about a year. Now it has started to go the ...
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Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
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The 3 Essentials to Ending Emotiona...
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Control Emotional Eating with this ...
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Top Rare Diseases Answerers
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selmaS
Allentown, PA