Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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Dr Santos Mar 02
1
By Nevaehmag
What causes this white film on lips and sometimes red soreness corner of lips.
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Dr Santos Mar 02
1
By Ladyice123
I am 40 year old female, recieved the varicell shot Friday @ 3 pm, 2 days ago. It has spread to a 5x6 (inches) block ...
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Dr Santos Mar 02
1
By marieelaine720
I have recently began to have weak legs after I go upstairs. My legs feel like I've worked out for a long time afterw...
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Dr Santos Mar 02
1
By deedeedeedeedeedee
I have avascular necrosis of the scaphoid. Workers comp is trying to say my condition is permanent and stationary, th...
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Dr Santos Mar 02
1
By mermaiiidxo
I have a somewhat mild form of OI, which mainly effects my femurs. I have broken various bones throughout my body ove...
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Dr Santos Mar 02
1
By OliviaMarie
If I had the deer tick and classic bullseye rash is it a positive for Lyme? My blood tests came back negative, but I ...
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Dr Santos Mar 02
1
By Nil1234
I had mild fever before 2 months after treating for more than 2 weeks dr. Performed blood test a bacterial infection...
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KattamakiJun 13, 2013
BabswubyJun 12, 2013
KattamakiApr 19, 2013
24
By Kattamaki Blank
Could someone tell me if there are any reports of the prognosis of Dercums disease or lipomatosis dolorosa? This illn...
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By szumerspirit
DIAGNOSIS: Hidradenitis Suppurativa (HS); Stage 3 42 yr old Female Symptoms started at 19 immediately after pregna...
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1
By Avott
Toe edema/purple color in the third toe on the left in the segment closest to the toe. No known injury, no pain. Some...
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selmaSFeb 19
AE87Mar 29, 2013
DeaMcDec 24, 2012
ErinBBCFeb 04, 2010
11
By ckeenan8 Blank
My 3 yr old daughter has had a lump/swelling located on her lower spine which has been there for 10 months. The lump...
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FloxedplwFeb 17
syntax2002May 14, 2013
Blue_AngelMay 07, 2013
Blue_AngelMay 07, 2013
Dr Santos Apr 30, 2013
5
By Blue_Angel Blank
I need help please. My doctors had me on Levaquin for 4 years straight. I believe it's destroyed most of my immune sy...
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chuganipFeb 15
2
By chuganip
I am 69 at present. When asleep I do not realise the pain but when awake I get numbness in my legs, though it becomes...
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Dr Santos Feb 09
1
By MichelleMM123
Hi, Certain results in my test are creatinine 1.04, carbon dioxide 17, potassium level came back 6.9, but the result...
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maatsonFeb 07
1
By Rebelle585
Hi, I'm a 23 year old women and I've suffered from an unknown illness for 5 years. It started with erithema nodos...
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stpatiFeb 05
maatsonJan 26
2
By stpati Blank
good day my friend was at work she is a medic, there was a lightning storm and she got a flash from it. She became ...
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lvfrogsFeb 05
CRSeasideFeb 04
2
EBV
By Lko123
I have been sick for almost 5 years this April. I was out doing yard work when I became ill. Started with throat pain...
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PerwenFeb 04
PerwenFeb 02
Dr Santos Feb 01
3
By Perwen Blank
My son has been diagnosed with miller Fisher Syndrome. A couple of weeks after getting out of hospital he is still de...
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Dr Santos Feb 01
2
By BellsStewart Blank
I am 16. I have had problems with my feet since i was about 7. I have an over-grown bone on the posterior tibial tend...
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sudusuduFeb 03
1
By sudusudu
Hi everyone. I am 15 years old and since 4 and a half months I have noticed a swolen lymph node in my neck under the ...
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selmaS
Allentown, PA