Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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selmaSApr 28
PantxApr 27
3
By thatguy835
I have been having random symptoms about 6-7 months ago my heart rate was in the high 40s so I was admitted in the h...
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PantxApr 24
1
By abigaellachica Blank
The swelling and pain in my left ankle and foot started when I was 15 years old and I am already 20. The swelling som...
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PantxApr 23
1
By tracian
i am having this weird feeling in my head very often, i feel as if am going to pass out, and my pressure is normally ...
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PantxApr 22
1
By knowsall5
As of April 2014 I am a 26 year old female, 5' 8", 186 lb, otherwise healthy except for the following: Type 2 Diab...
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Betty3500Apr 22
PantxApr 21
2
By Betty3500
For the second time in a couple of months my adult daughter has experienced what she first thought was bad heartburn....
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1
By mikey1990
Do the following occurrences put the insertive partner at risk of HIV? Unprotected Cunnilingus on unknown HIV st...
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copernoApr 21
Dr Santos Apr 04
2
By coperno
Hello dear doctors, I am a man, aged thirty. I don’t drink and I don’t smoke. I also practice sport regularly. About...
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Bliu4meApr 21
neckDCDDSep 26, 2012
vsb233Mar 09, 2012
vsb233Mar 09, 2012
sunbow76Mar 12, 2011
7
By sunbow76 Blank
I am having a hard time finding pain management doctors that believe I have symptomatic Tarlov cysts. My neurosurgon...
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selmaSApr 18
selmaSApr 16
3
By LazyCharlie
My symptoms: Groggy. Brain fog. Sad. Clench jaws all the time. Jaws pop. Stress. Bad anxiety. Depression. Wake up st...
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2
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By absolomise
good day. I am a married male aged 37. for the past two days I noticed that when I defecate I have a burning sensatio...
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1991helpApr 12
cbfreckJan 09
Nyomi729Oct 07, 2013
mima1299Aug 30, 2013
31
By msneedhelp Blank
Please help me.. I have started feeling like there is something crawling under my skin.. I first felt it on my arms...
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selmaSApr 15
1
By Joeyzoom
Hello all! I have a unique set of symptoms that I'm wondering if anyone else has, or if anyone has some answers t...
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PantxApr 14
1
By feellucky
Where to find a Dr. that treats Chronicle Inflamatory Myositis area of Conn. she is pain always her whole body is is ...
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S_9Apr 13
Alice417Mar 19
3
By PapaSmurf1502 Blank
Hello, My girlfriend has been experiencing various symptoms for over a year now and has seen several doctors (neur...
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Dr Santos Apr 04
2
By dheeraj824 Blank
Two days ago my right hand suddenly went numb. Mainly affects are my 2 smaller fingers. Not completely paralyzed, I...
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PantxApr 12
1
By bella0426 Blank
I have been given the run around by rheumatologists and endos so need help please,recent lab work show: TSH: 4.28(...
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DInygJun 30, 2013
Dr Santos Mar 20, 2013
3
By Brailum Blank
I have had Dercums Disease for many years but this is the first time I have heard anyone say about Type 11 or other t...
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sibanezApr 03
Justin9711Mar 22, 2009
PlateletGalMar 20, 2009
4
By Justin9711 Blank
Hi everybody. I was hoping somebody could give some tips about a condition that has slowly grown worse over the past ...
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ShafieApr 07
nonny419Apr 06
Dr Santos Apr 04
3
By Shafie Blank
I'm a 25 year old man and about 7 years ago when i was still young a stray cat was dying cause it got hit by a car so...
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1
By Slindsey0903
My daughter is 13. She had a 152 IQ participated in numerous advanced programs and activities. Was a normal child. In...
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selmaS
Allentown, PA