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Rare Diseases Community
This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.
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Avatar universal
My daughter's gynecologist is extremely concerned that she has a severe rectocele that just developed, as she has just turned 28 y.o. and...
12648020 tn?1426465932
Hi, Please help? I live in Mexico. Retired American. I was in a motorcycle accident 8 years ago that fractured my femur. (Compound fractu...
1 answer |
Avatar universal
ive been having constant aching in my legs from my knees down to my ankles it wakes me up most nights and can continue if im sat down for...
1 answer |
Avatar universal
Hi i came across a topic about hs and i want to ask.i had a single bump in my armpit when i was 14yo..it never pop it just disappear o...
1 answer |
Avatar universal
Is this a disease or syndrome? Are you born with it?
1 answer |
Avatar universal
I am waking almost every night with leg pains.I have tried anti inflammatory meds, hot baths,heating pads.Relief for short periods, but a...
1 answer |
Avatar universal
I have a client who presents with the following: normal CBC/diff. Serum iron 51, unsaturated IBC 410-high, calculated total IBC 461-high...
1 answer |
Avatar universal
I have recently been diagnosed with a rare medical condition called POTS by my cardiologist, but he wants me to see a specialist as he do...
1 answer |
Avatar universal
I am a 48 year old woman and approximately a year ago, I stated having leg weakness and excruciating calf muscle and overall leg pain. No...
3 answers |
Avatar universal
For past two weeks,i am suffering from severe pain from cramps in the calf of my right leg and sometimes the pain spread to heel region a...
1 answer |
Avatar universal
Hi my name is Jenny, i have bumps thats been on my skin for years now on my vaginal area.. It looks like its under the skin so they wont ...
4 answers |
Avatar universal
Hi, my name is jenny and im currently crying and itching. Ive been breaking out in what looks like nasty swirly whiplike rashes, but the ...
1 answer |
Avatar universal
I have been running for over 25 years; I ran in a 5K last Saturday and at the 2 mile marker, both knees blew out. Today is Thursday and ...
1 answer |
Avatar universal
have these bumps on my lips for 6 days and I don't know it is. Can some one please tell me what these bumps are?
Avatar universal
I have these bumps on my lips for 6 days and I don't know it is. Can some one please tell me what these bumps are?
Avatar universal
Has anyone else on here been diagnosed with PG?
5 answers |
Avatar universal
I am 21 years old and have no set diagnosis, but a variety of symptoms that have lasted for years that don't add up or make sense. I have...
1 answer |
Avatar universal
Hi everybody. I was hoping somebody could give some tips about a condition that has slowly grown worse over the past two or so years sinc...
5 answers |
Avatar universal
I would like to contact anyone who is living with Hereditary Spherocytosis and still has their gallbladder and spleen. This is the case f...
Avatar universal
In December 17th of 2013 my little sister was admitted into the hospital for symptoms of what appeared to be stroke like symptoms. Weakne...
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