Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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By Dustine97 Blank
Hello Lately i have been having a very weird, kind of filthy and maybe metallic-like taste in my mouth. I tried br...
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BeccasgoingbattyJun 21, 2014
1
By Beccasgoingbatty Blank
Hi, The night before one of our outdoor cats showed up with a baby bat. I rescued it and it appeared uninjured but...
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allmymarblesJun 21, 2014
VETERANSEXPOSEDJun 20, 2014
allmymarblesApr 28, 2011
3
By allmymarbles Blank
I know someone who returned home after almost six year in Iraq (as a civilian) with perplexing symptoms of toxicity. ...
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By Brittanyxxx Blank
Hi all :) Just wondering if any of you gave CAH?
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By lewis19 Blank
four years ago, i got this bad flu with severe coughing it went away and a month later all my symptoms begun, excessi...
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By n_alla Blank
3 months ago time started going by really quickly for me. Weeks fly by without me realizing. I can do things without ...
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By laurice81 Blank
RESULTS REF RANGE coritsol, free, 24 hour urine ...
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CaryopterisJun 16, 2014
HouseJrJun 09, 2014
HouseJrJun 09, 2014
CaryopterisJun 05, 2014
4
By LilianaCc_ Blank
i get this pain on my right side like right next to my bellybutton , kidney & gallstones where ruled out i had an ult...
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By Simone83 Blank
Ever since I was a child I would get aching pain through the full length of both legs. It used to be random, my paren...
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By 19802008 Blank
My now 5 year old daughter has had repeated labs with blood +1 and +2. The most recent was +2 and Positive for Keton...
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HouseJrJun 16, 2014
jenbajJun 13, 2014
HouseJrJun 10, 2014
jenbajJun 10, 2014
HouseJrJun 09, 2014
5
By jenbaj Blank
Hi, I just had my vitamin D levels tested and the result was 120. The doctor said that this is high, and that I s...
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By desertstarlover Blank
I was diagnosed with Eosinophilic Fasciitis 1.5 years ago by a Dermatologist and it was confirmed by a Rheumatologist...
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By Dayshlynn Blank
My name is Dacia. I went to the doctor 4 months ago complaining if fatigue, joint pain and GI problems. Ran full pane...
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By coulditreallybe Blank
I recently was diagnosed with Rhabdomyolysis and was in the hospital for 6 days. I was discharged on Saturday, June 7...
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I_B_LostJun 07, 2014
Lori637Jun 26, 2010
Dr Santos Apr 16, 2010
eazyaApr 15, 2010
Dr Santos Jan 08, 2010
7
By M_Iddings Blank
Periodically, my ears will begin to flush and burn. It then spreads to my face, neck, shoulders, elbows, knees and an...
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Jenn1302Jun 06, 2014
Dr Santos Jun 03, 2014
2
By Jenn1302 Blank
Hello Everyone, I am in my 20's, normal weight, I exercise a lot and eat healthy balanced meals. I have had high e...
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LilianaCc_Jun 04, 2014
Dr Santos Jun 03, 2014
2
By LilianaCc_ Blank
i get this pain on my right side like right next to my bellybutton , kidney & gallstones where ruled out i had an ult...
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crddiscJun 04, 2014
Dr Santos Jun 03, 2014
2
By crddisc Blank
Right leg artery was punctured when having heart stent placed Aug 2013. Since then I have chronic pain and swelling. ...
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magdalenaeidJun 04, 2014
Dr Santos Jun 03, 2014
2
By magdalenaeid Blank
I have been feeling like there's something stuck in the back of my tongue, for 3 days, but I checked and there's noth...
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By DebMox Blank
Hey there, In 1994 I contracted acute Cytomegalovirus that was misdiagnosed as Mono and I was sent home with enceph...
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