Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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DInygJun 30, 2013
Dr Santos Mar 20, 2013
3
By Brailum Blank
I have had Dercums Disease for many years but this is the first time I have heard anyone say about Type 11 or other t...
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sibanezApr 03
Justin9711Mar 22, 2009
PlateletGalMar 20, 2009
4
By Justin9711 Blank
Hi everybody. I was hoping somebody could give some tips about a condition that has slowly grown worse over the past ...
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ShafieApr 07
nonny419Apr 06
Dr Santos Apr 04
3
By Shafie
I'm a 25 year old man and about 7 years ago when i was still young a stray cat was dying cause it got hit by a car so...
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1
By Slindsey0903
My daughter is 13. She had a 152 IQ participated in numerous advanced programs and activities. Was a normal child. In...
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nonny419Apr 06
nonny419Apr 06
2
By Drewxo
so I have had a swollen tongue for over 3 months now, So swollen I've been in hospital in and out for a long time, I'...
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Dr Santos Apr 04
1
By sherifbasry
my dad is in coma for 90 days he is 67 years old he had a stroke in the left side of brain in 13-12-2013 and in 14-1...
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Dr Santos Apr 04
1
By Gerstec
I'm sorry if this is the wrong place to post. As of right now I don't have a method of payment for the paid expert fo...
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Dr Santos Apr 04
1
By VishalJellapuram
Hi, My daughter is 2.2 yrs old and she was accidentally diagnosed with PDA of 3mm (1.4 yrs after birth) We were afte...
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Dr Santos Oct 25, 2010
2
By andysri Blank
I am 31 yrs old male, recovering from Miliary TB. My last X ray showed no signs of TB. My question is that since Mila...
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Narth37Apr 03
1
By Narth37
Are you living with an undiagnosed illness or medical mystery? Do you live in the UK? London based TV production comp...
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SewinKyApr 02
selmaSApr 02
2
By SewinKy
I was diagnosed with thyroid hemiagensis close to twenty years ago. I was put on 88mcg thyroid medication for hypoth...
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2
By Shannainneed
If you are reading this please give me something:(. I was in to lifting weights and rigorous exercises. I have 4 chi...
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Alex_X_18Mar 27
kirstin802Nov 15, 2011
Dr Santos May 06, 2011
3
By nataswolf Blank
i think i have adhd what do i do?
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guz13Mar 27
2
By guz13
Have been coughing blood in small amounts in the past two days . Was taking TB medication and finally I was told it w...
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selmaSMar 25
1
By Soccerkix502
Burning muscle pain with any minor exertion- climbing stairs, blow drying hair, holding milk carton, squatting down, ...
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BzoonMar 22
BzoonMar 19
Wanda1369Mar 18
BzoonMar 16
5
By Bzoon
Hi My name is Andreas and would like to get some help about my stepfather’s disease. His problems began ...
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1
By KRandy
I am 33 years old male. I have been suffering from unexplainable illness. I am not sure if someone can help me or n...
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Dr Santos Mar 26, 2010
2
By soccerdude784 Blank
can i get rabies from coming into contact with a car tire that had just run over a dead racoon
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Dr Santos Mar 02
2
By wantsadvice Blank
Hi, I am a 32 year male who has been very healthy and active so far.I have smoked occasionally (< 10 cigarettes in ...
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Dr Santos Mar 02
1
By Jdog67 Blank
This is going to sound really weird and gross but bear with me. This is the second time that I have found a stick lik...
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