Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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By flobett1 Blank
pain in legs when I lay on my side, I had surgery on my back [lamanectomy] 3/ 4 yrs ago also had ablation surgery on ...
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LaserOzakiOct 07, 2014
1
By nocturnalvomiting Blank
My 3 year old daughter started waking up at 4 am 3-4 times a week vomiting anywhere from 1-3 times and as soon as she...
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rmfieldOct 06, 2014
selmaSFeb 19, 2014
DeniseGreisenFeb 19, 2014
AE87Mar 29, 2013
DeaMcDec 24, 2012
12
By ckeenan8 Blank
My 3 yr old daughter has had a lump/swelling located on her lower spine which has been there for 10 months. The lump...
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By LaserOzaki Blank
For a while now, my fingers have been bright red. When I press on my fingers, the redness disapears for a few seonds,...
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mags0301Oct 03, 2014
rwelchFeb 22, 2011
2
By SMESLLC Blank
Recent Medical History @ 1 month ago Hollie went to see Rebecca Sanders because she was feeling all around ill. (Let...
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pray4peaceIsraelOct 02, 2014
selmaSSep 15, 2014
2
By Bflywarrior Blank
EDS (Ehlers Danlos) question: while sitting still, I can breathe and my back cracks. Is this related to EDS? I hav...
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Foggy2Sep 27, 2014
1
By yosemitesrafiki Blank
I have had issues ranging from not being able to completely empty my bladder while having a bowel movement, to a swol...
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Foggy2Sep 27, 2014
1
By giamoeba Blank
Has Morgellons been labeled as real yet? I don't understand how the government can deny people from all walks of life...
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Foggy2Sep 27, 2014
1
By annieh098 Blank
i get hiccups everyday.. like 10 but just one hiccup and like 1 or 2 hours later another. it started about 2 years ag...
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Foggy2Sep 23, 2014
JetaceSep 23, 2014
Foggy2Sep 23, 2014
3
By Jetace Blank
I am 78 years old and for about a month now I have been experiencing leg pain, mainly at night. At first it was in th...
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TabyTabySep 18, 2014
JuneLoweAug 15, 2012
bluegraniteOct 27, 2011
WuvubabyJul 07, 2011
CarmenvbNov 14, 2010
5
By coachwalker Blank
Is Cyclic Vomiting Syndrome just a name slapped on a person who "throws up" for no apparent reason? Maybe my daughter...
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MegadodgerSep 17, 2014
1
By orleon Blank
Hello, I was with my friend playing with his puppy. When i was holding him and was going to fall i guickly grab hi...
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KimmerbeSep 16, 2014
faultydnaJun 10, 2014
faultydnaJun 10, 2014
Dr Santos Jun 03, 2014
4
By faultydna Blank
Have you ever seen vitiligo as circular patches on the breast? I was diagnosed with vitiligo however my dermatologist...
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selmaSSep 15, 2014
1
By Tooyoungtobesick Blank
I have night sweats, occasional chills tht can last anywhere from 10min to an hour and recently wen I took my temp du...
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Jayo76Sep 10, 2014
Jayo76Sep 10, 2014
RJ233Oct 31, 2008
RJ233Oct 31, 2008
4
By Nicky269 Blank
Dear Ms. or Sir, I have a parasitic infection that is not limited to my digestive system. Having seen a specimen un...
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M_NmommySep 08, 2014
selmaSSep 05, 2014
2
By onlythefamily Blank
I am pregnant with twins and was told today that after my amniocentesis results came back that my babies have Trisomy...
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Foggy2Sep 08, 2014
1
By enchilada Blank
What can I buy over the counter antibiotics for drity urine infection.
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Foggy2Sep 08, 2014
1
By minzhu1987 Blank
Hi, my mom is 72 years old and had the PPSV shot 18 days ago after which she had constant fever (low temperature abov...
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Foggy2Sep 07, 2014
1
By Sheila95 Blank
I was diagnosed with Rocky Mountain Spotted Fever and have to take Doxycycline and flatly, I have been directed to st...
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selmaSSep 05, 2014
1
By Kiadawn Blank
My 26 yr. old nephew has a large red circle with a lighter circle in the middle, and no apparent symptoms. It really ...
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Rare Diseases Community Resources
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Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
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New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
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TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank