Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
Avatar_f_tn
By RCruz Blank
I have been seeing a eye Retina Specialist since May 2014 for a unknown benign tumor in my eye causing blood vessels ...
Avatar_f_tn
pray4peaceIsraelAug 16, 2014
1
By dhruvi118 Blank
Hi I.am 20years old female . I.am suffering from constant hunger in day time n night as well. . And I cannot resist...
Avatar_f_tn
maatsonAug 14, 2014
blueskies31Aug 12, 2014
maatsonAug 12, 2014
3
By blueskies31 Blank
Hello, While taking a bath this morning I accidentally got a lot of water up my nose when attempting to rinse my h...
Avatar_n_tn
By Sgriego Blank
What is areata alopecia
Avatar_n_tn
LPN
By Steve9606 Blank
can clindamycin treat mersa?
Avatar_f_tn
By Potsandpans Blank
Hi. I've been having pains in my upper right leg for quite a while now. It's on the right side of my right leg close ...
Avatar_f_tn
By MaryAnda Blank
I am a 35 year old overweight woman whose legs swell all the time. I have had my heart valve replaced for about ten ...
Avatar_f_tn
By MaryAnda Blank
My nine year old was just diagnosed with Autism and has been diagnosed with ADHD since he was six. We are just notici...
Avatar_f_tn
MaryAndaAug 08, 2014
Dr Santos Nov 05, 2011
maatsonOct 26, 2011
maatsonOct 26, 2011
MaryAndaOct 26, 2011
10
By MaryAnda Blank
I am 33 years old and have had two heart surgeries for MVP. I currently have an artificial heart valve and take Jant...
Avatar_n_tn
By xiulishanshui Blank
Dear Dr Santos,I am a man from China,I go to hospital for my eye problem,the doctor touch my palpebra interna by her ...
Avatar_f_tn
By Syd_16_ Blank
I'm a 16 year old female. I have what feels to be a 3 in. lump under the muscle of the right side of my neck that's b...
9928209_tn?1406729475
By 5kidsnbusy Blank
My brother is in a facility and has had his gallbladder removed and sense has pancreatitis and hepatitis c. How is th...
Avatar_m_tn
By LMazal Blank
I have developed 6th nerve palsy (diagnosed by my surgeon) after a brain tumor removal. Apparently the skull base ...
Avatar_m_tn
Delerious_9Jul 27, 2014
NME4483Jul 26, 2014
Dr Santos Jun 03, 2014
3
By tgent99 Blank
I am a 33 year old male. Never had any health problems up until... About 2 1/2 years ago I began getting tingling ...
Avatar_n_tn
By blade2093 Blank
Hello heres my question. I am a 36 year male who was diagnosed with brugada type 1. I have throughout my life have a ...
Avatar_m_tn
CeliacJessJul 26, 2014
swampcritterJul 21, 2010
annesfJul 20, 2010
3
By babychelle Blank
I am a 32 year old woman 5'4" 118lbs. I have always been in good shape, but odly enough i do not sweat nor have i eve...
Avatar_n_tn
ILADVOCATEJul 26, 2014
1
By Etk Blank
What is happening that when I lay down to sleep and am tired, my heart rate increases. It is very uncomfortable. 100 ...
9849878_tn?1406251668
By Sp00n Blank
I since birth have had a rash-looking skin condition on my ball sack, and it was not even noticeable. Until the age o...
Avatar_n_tn
selmaSJul 21, 2014
1
By nanasandy2 Blank
does Midrodrine cause weight gain? Have POTS Gained 5 lbs since on Midrodrine and 0.1 Fludrocortisone for 3 mont...
Avatar_f_tn
By auntie_923 Blank
Any ideas of why after 90 loud weight loss, my back pain increased. Scoliosis had been stable for 10 years @ 65-70° ...
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Rare Diseases Community Resources
RSS Expert Activity
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank