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IM BURNT OUT! i CAN'T TAKE THIS!

I just need to vent! I detoxed off the 150mcg Fentanyl Patch over 100 days ago for my chronic pain! Since I was 16 my medical probelms started. I was diagnosed with polycystic ovarian syndrome with insulin resistance, then at 19 I was in the last stage before Cervial cancer. I had to get immediate surgery. I was also diagnosed at 19 with chronic Interstitial cystis and VulvodyniaI. I have IBS probelms and other GI probelms. I also suffer with bad migraines. I have been through hell and back. I can't take my IC and vulvodynia pain. It takes over my life. I was also a victim of hurricane Katrina and was stuck in the storm. I had broken my nose and suffered a concusion from running from falling tall pine trees slicing houses in half. I have PSTD from it. Since the storm my teeth have gone to hell from taking a lot of bladder medications and being on vicodin for years....that dried my mouth out and rotted my teeth. I need a ton of fillings, crowns, implants,etc. I need like 20 to 30 grand of work done. I am freaking out b/c I can't get a loan, I dont have the money for it. Plus I am depressed from detoxing off the evil fentanyl patch almost 4 months ago. I need support and help! I have already ask family to lend ,money, etc. My mom used to be a dental assistant for over 30 years and I am hoping that the denist she used to work for will help me out. I am having a HARD time right now! Why does all this have to happen to me at 29? I don't deserve this ****! Im sorry to throw all this on ya'll but, I needed to vent! Im gonna have a nervous breakdown! I have been so strong and its so hard to when I have all this!!! I just want to finish college, be pain free, get married and have a family. I would love to be able to work and have a normal life! I am just soo burnt out! Im sick of going to doctors with no answers. Ive had it!
Thanks for letting me vent!
I need prayers and support!
Shell
18 Responses
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Avatar universal
lol...i love lobsters but not oysters.   Are you talking about the St. Louis Cathedral? I never heard of the dive.
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Avatar universal
Actually that dive was really close to the Catholic Chapel at Jackson Square - memory is treacherous.........
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Avatar universal
Lady - I like you already .... Wish we could stop by a little dive i know around the Mariners Chapel area -- a whole lobster and fries for $4.95 in '69.......probably still cheap...If its not there - do you do oysters?
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Avatar universal
Lady - I like you already .... Wish we could stop by a little dive i know around the Mariners Chapel area -- a whole lobster and fries for $4.95 in '69.......probably still cheap...If its not there - do you do oysters?
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Avatar universal
LAUGHING'S THE BEST MEDICINE!!!
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Avatar universal
This is a great community with large variety good people on site..........It makes me feel really good that maybe I made ya laugh for a second......we cant forget how to laugh, now...can we?
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Avatar universal
OMG...thank you all for your support, stories, and HELP! It feels so good that someone understands what its like too! Ya'll are straight up awesome! Thank you all for the prayers and comments! Ya'll lift me up! My family , friends, doctors don't understand my pain. it's so frustrating! I don't know why God wants me to suffer like this. I just hope I get a break soon and that something will go smoothly.
Big Thanks again!!
Shell
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Avatar universal
Eagle that was halirous about the hurricanes at Pat O's....lol. Thanks for making me laugh I needed it! Yeah hurricane Camille was horrible. My parents remember it and Hurricane Betsy. MY dad said he thought those were bad ti'll Katrina came.I was stuck in hurricane katrina...it was the worse thing I went through next to detoxing. I used to love hurricanes! But after being in the worse one ever, I don't even like talking about it. when I tell people part of my story they say I should write a book and they cringe.  Could you imagine a hurricane worse than that? They said Gustav was going to be worse than Katrina but Gustav wasn't bad at all. We wen to my grandmas house b/c she's higher and has hurricane shutters. We lost electricity there and we found out at out house we never lost electricty or cable,etc. Can you believe that? Thank God I never went to baton rouge...I almost went up there where my sister lives.  I stayed with my family b/c of my sick grandma and the only way I could evacuate is with a plane. I can't stay in a car long, even if I had pain medicine. I just have to be more prepared next time. eagle I am glad you made me feel safe to talk about and vent my probelms! You rock!
Thanks, Shell
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401095 tn?1351391770
i guess all people can do is keep hope alive...it is hard soetimes but trying to hold on to hope and prayers helps me when times are tough..
.i had a patient.well she was my patient when i was in home health and that was 10 years ago..i used to change her urinary catheter every month..she has MS and her husband had just left her at the time...then she could still transfer to  a wheelchair and mamanged to live alone somehow//she would use a board and slide from her bed to the wheelchair..i need to visit but now she can not move anything...except a couple of fingers..she is 45 and i feel so sorry for her...i remember back 10 years ago she quit drinking as she felt she had a drinking problem..she has always been so cheerful..she is not anymore..i can hear it in her voice and her hope is gone...she had developed a bedsore a couple of years ago and the doctor put her on bedrest in a nursing home for 2 months and she lost her muscle tone..a MS patient can not regain it back..she is so angry for him doing that to her and i dont blame her..she lays there with a long straw just to drink something and can not move and MS has also caused her to lose her vision..but her mind is totally fine....awful and i am going to call her on my way back to work
dont know why i thought of this but it is things like this that i try and think of when i am in pain and my bones are grinding together as i am totally missing 3 discs and in the process of losing more..and evryone who suffers pain has the right to vent and if it makes me feel better i would vent til kingdom come...but i  dont often anymore cos it never gets me anywhere...people often do not understand chronic pain..like my parents dont so i dot talk about it as i think it hurts them that i hurt...no one can really compare their pain to someone elses pain..as each persons pain is their own perception and no one can have a "I am in the most pain" contest...it is very individual and we are dealt our hand in life..and we just have to deal with it the best we can
I see so many people each day dying or in agony that i really dont ever try and compare my pain to anyone elses...
seeing a mother cry after their child just died in ICU to me would be more painful that my back could ever be
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611067 tn?1458591483
Sweetie:
You have every right to vent!  Don't feel bad for that!  Chronic pain is not fun - and most of us know what you are going through.  My thoughts and prayers are with you.  Lots of love sent your way!  Hang in there hun!!!
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Avatar universal
You are in the right place for support and to vent ---  feel free to fire away....you wont say anything that we havent either done or heard.  I wanted to tell you that I was just getting out of basic in '69 when Hurricane Camille slam dunked the gulf coast.....We were bussed in ovenight to Biloxi (Keesler AFB) for SAR work and stuff.....body retrieval is a drag. And unless you have been there, done that, and got the shirt -- you really dont know what a hurricane can do. Much prefer the ones in the Quarter.....preferably Pat O'Brian's ------ stick around.............
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Avatar universal
Thanks again,
I wish I could work. I am in constant pain and go to the bathroom like 50 or more times a day. I know getting out helps. I come here for help and support and have to start going to my social worker for therapy.  I am catholic and went to a healing and had to leave b/c I was in so much pain and kept going to the bathroom. IC and Vulvodynia is not like back pain, I have 4 bulding disks in my neck and and herniated disks in my neck and lower back. I get numbness and pain down my arms and legs. I have pinched nerves in my lower back. This was from being in accidents...none of them were my fault. Even though that pain *****, its nothing compared to IC and Vulvodynia pain and having to go to the bathroom every 5 minutes with my IBS probelms and bladder. I want to be just normal. It's not fair. Like I said in my post before, I am almost a senior in college and want to finish and get my degree, become a pharm rep, marriage, children,etc. That was always my goal in life. It's really hard when doctors don't have answers for you! And they just look at you like," Damn Im glad Im not her" or "She' screwed"! They look at with a sad face and say Im so sorry Michelle, I wish there was something more I could do! Ive Effin had it! I am on medicaid and SSI, b/c I couldn't get any health insurance , even through the state b/c of having the last stage before cervical cancer and all my other health probelms....that are not my fault! I can't get free dental care from LSU dental school and even if I had the best dental insurance the most it would cover is 2 grand. I need 20 to 30 grand. I am hoping to go to school next semester...in the spring. I went this past summer and the day after my final, I detoxed off the evil fentanyl. Boy , I had no idea what I was in for. I just wanted to get off it immediately b/c it wasn't working for my pain and had so many side effects. Plus my body kept getting tolerant. I had my 2nd radio frequency procedure done oct 2nd and it didn't work this time. I guess they didn't get the right nerves. I see my PM doctor on Wed afternoon. 2 docs in one day! I hope to God everything goes a little better! Thanks ya'll again!!!
Shellxoxoxo
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314554 tn?1337454119
Hi shellbell79:

I'm with Cavimom: Vent all you need to.

You might receive some suggestions that aren't feasible given the particulars of your situation, but the one thing you will receive is empathy. Venting how overwhelmed I feel with others who have been there helps me feel less trapped...and not like I deserve it because I brought it on to myself. Even if I have brought on my problems, no one is more aware of this than me.

There seems to be a paradox about detoxing from pain meds. It is easy to overlook or underestimate pain of most sorts for extended period
*and*
when finally free of the meds, most pain is unbearable and difficult to gauge because you are unused to feeling the true extent of pain for so long.

You sound as if you have a pretty good idea of the kind of dental work you need - once you get started, it willl likely be a process and not all work done at once. Hopefully, the inflammatory conditions that cause the constant, ongoing pain can be dealth with first.

My state offers assistance for necessary dental work and the University Dental school accepts most cases (they didn't mine because I did have insurance, but with a huge deductible). The few forms were easy to fill out but the wait was super long,

When I started getting it together, I allowed myself to be miserable longer than I should have...until I got a front tooth knocked out. The cosemetic dental work got me to the dentist's office lickety split!

Good luck and take care :)











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401095 tn?1351391770
i feel for u girl....and hope u get the care u need...what kind of support r u getting?  r u going to meetings?  sometimes work can be a great release to take my minds off things as i hurt more at home than i do at work and at least i am busy there so it is not on my mind all the time....does ur job offer dental benefits or any insurance at all...? if it does not then perhaps find one with benefits....staying busy helps me keep my mind off of my pain and problems...good luck with all of this
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Avatar universal
Yes I have been through hell and m still going through hell! I always hated pain mediciations. I was taking the fentanyl patch for my IC and Vulvodynia pain. All My teeth always hurt. I need all my teeth work done as soon as possible. Since my credit is bad I think my grandpa is going to co-sign for a dental loan. I am going for another counseltaion wed. morning to get an exact estimate on all my dental work. Then I have to get an estimate on my oral surgery work...2 exractions, bone graphs, 2 temp slinding teeth, iv sedation, gas, and the implants,etc. I am hoping this will go somewhat easy. I have medicaid and can only get dental work, if Im under 21 or pregnant...which Im not. My body was addicted to the pain medication of- course, but I never got high or craved them. The only pain medication that really got rid of my IC and Vulvodynia pain was vicodin, not fentanyl, not opana er, not oxycontin er! I My body always had a low tolerance when I was on just vicodin and my tolerance went sky high from the fentanyl patch. I wasn't even on it for a year. It was a waste and mest up my tolerance and body! Im so angry and doctors who precribe it. It should only be prescribed for cancer patients. I pray and hope everything goes smoothly! I need a freaking break! Thanks for all ya'll kind works and prayers, info! I really appreciate it!
xoxoxo
Shell
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Avatar universal
Hey there,

  First off.. VENT AWAY!!  That's what we are here for!  Sounds like you have been through HELL!!  Are you off of the Fentanyl patch because of your dental problems? I am a dental hygienist and the office manager too.  I am in Mass and they have Masshealth here.. It WILL pay for neccessary dental work.  A GOOD billing girl will put in a prior authorization for your dental work AND your medical issues ARE concidered!!  Please try that if its available to you!!  If NOT maybe you can try to get something called CareCredit, Its a line of credit you can use for your dental work.  You dont have to get ALL 30 thousand done at once!!!  You can start with anything that hurts you or is medically neccessary FIRST.. then pay it down a bit and continue with the other work!!!  
Being in constant pain STINKS.. I have been there and still am... I am TRYING other ways to deal with the pain because the percocets were actually making me feel worse ( I think)  2 weeks off of everything today and I have been past w/d too now its all about functioning without narcotics.....
If you must take pain meds for all your ailments try talking to your doctor and try using something that is shorter acting and you can control!!!  The patch delivers a constant amount of pain meds to your system and to me thats scary!   I KNOW this is an addiction forum BUT If you feel you are NOT Over patraking and you have legit reasons for pain meds maybe trying other options will help????  Do you feel you were becoming an addict? Are there other ways to halp with your medical issues besides pain meds?  Sorry for the questions but it may help if we can understand your situation more..
Sending strong good thoughts your way... Come back and VENT anytime!!!!  Hugs, Kim
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Avatar universal
your not alone and my prayers are with you good luck and i hope you can get some help for the dental work check out state health care they will also have services to help with your emotional pain plus keep comming here the people are great and very understandin also very knoweledgeable
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Avatar universal
Im sorry to hear all the pain you've endured-over your young life-I hope you can get some help w/your dentistry-have you checked into state health care?They sometimes have dental benefits..
I know my problems are nothing compared to what you have been going through-Im an addict kicking drugs after 4 yrs. of treatment/clean time-but also seeking support.
What do the Drs. tell you now?What kind of treatment do you need?
I will say a prayer for you/and please write anytime you need to vent.its ok-you need too.
peace/alice
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