Aa
TSH staying low-Tumor?
Previously I was told that I just might have some thyroid issues and there was an error in antibody readings they gave me. Yesterday, I was told by my PCP, that he thinks I have a Pituitary tumor. My readings are as follows:
TSH - .24
Free T3 - 5.1 (2.77-5.27)
Free T4 - .90 (0.78-2.19)
LH - 57.2 (14.0-95.6 Midcycle)
Prolactin - 17.2 (2.8-26)
Thyrobglob AB - .9 (0.0-14.4)
TPO AB <0.3 (0.0-3.9)
TSH Receptor AB - 7 (0-9)
He has repeated my tests 3 times and each time my TSH has been low, and each time my T3 & T4 have been normal which is why he says the tumor. I have an MRI on Oct 2nd and I'm worried. I have been sick for 3 years, I was even in Congestive Heart Failure when they first realized I was really sick. Then they got that under control but I have not been well since! I can't tell you how many times, I've had strep throat, then virus after virus, I've been on more antibiotics than a person should be and it scares me!!! I have lost over 45 pounds and I feel like I'm on pins and needles all the time! I have to tell myself to relax because if I don't pay attention to myself, I find my head, down into my shoulders and the muscles so tense that I get horrible headaches! I'm stressed all the time and I cannot stand the cold!!! The girls at work will laugh at me becasue it will be 73 degrees in the office and I'm absolutely FREEZING!!! I don't get it!! They put me on a cancer medicine that helps with nausea and vomiting because I'm always sick to my stomach! It helps but doesn't make it go away! I can barely get my body rolling these days~I'm just exhausted in all areas, emotional, physical, you name it, I'm wiped out! I asked the doctor about this tumor and what to expect and he said radiation and surgery. His office is setting up an appointment for me to meet the endocrinologist. I've read several of your entries and I have to say, I'm really nervous. My boyfriend tells me to stop my unecessary worrying, but is it unecessary? I don't think radiation and surgery is uneccessary! Can you shed some light on me please???
TSH - .24
Free T3 - 5.1 (2.77-5.27)
Free T4 - .90 (0.78-2.19)
LH - 57.2 (14.0-95.6 Midcycle)
Prolactin - 17.2 (2.8-26)
Thyrobglob AB - .9 (0.0-14.4)
TPO AB <0.3 (0.0-3.9)
TSH Receptor AB - 7 (0-9)
He has repeated my tests 3 times and each time my TSH has been low, and each time my T3 & T4 have been normal which is why he says the tumor. I have an MRI on Oct 2nd and I'm worried. I have been sick for 3 years, I was even in Congestive Heart Failure when they first realized I was really sick. Then they got that under control but I have not been well since! I can't tell you how many times, I've had strep throat, then virus after virus, I've been on more antibiotics than a person should be and it scares me!!! I have lost over 45 pounds and I feel like I'm on pins and needles all the time! I have to tell myself to relax because if I don't pay attention to myself, I find my head, down into my shoulders and the muscles so tense that I get horrible headaches! I'm stressed all the time and I cannot stand the cold!!! The girls at work will laugh at me becasue it will be 73 degrees in the office and I'm absolutely FREEZING!!! I don't get it!! They put me on a cancer medicine that helps with nausea and vomiting because I'm always sick to my stomach! It helps but doesn't make it go away! I can barely get my body rolling these days~I'm just exhausted in all areas, emotional, physical, you name it, I'm wiped out! I asked the doctor about this tumor and what to expect and he said radiation and surgery. His office is setting up an appointment for me to meet the endocrinologist. I've read several of your entries and I have to say, I'm really nervous. My boyfriend tells me to stop my unecessary worrying, but is it unecessary? I don't think radiation and surgery is uneccessary! Can you shed some light on me please???
haha
yeah. Everytime I go in and suggest something to my doctor he thinks Im over thinking it and of course I think he is under thinking it. My primary doctor is the one who believes im having panic attacks, so me suggesting cancer to him he would look at me with that stupid look on his face like Im just a paranoid patient of his.
I dont know if its because Im fairly young to have anything going on. Most people that make those comments to me "your too young to be having things like this go on".
Cancer has crossed my mind but its not the top on my list. We have run many many labs but nothing coming back positive. Then the rest of the labs are all over the place and one lab contradicts the other. Like they look for a tumor with one blood draw, it comes out high indicating there MAY be a tumor then they follow that up with another with should come out High as well or retest and it comes out way too LOW.
Ive had pretty much an MRI of my entire spine as well as brain. Had a small hyperintensity show up on T2 Weighted image. They were looking for MS, but the comments on it just said the "hyperintensity was of uncertain etiology" or something like that. Pretty much that they werent sure but they dont think it is.
I am sticking with my Lyme doctor for now, I completely fit in the Lyme category. Until my Primary doctor can prove otherwise. I see my doc this coming week so we will see what he wants to try next. Im going to try and get him to order a B. Dunaci and B. Microti and Babesia FISH antibody lab. Of course after I show him this CBC and basic metabolic panel showing im sick with something :)
By the time this is said and done I might go searching the medical field for a job, Im just learning so much. haha
Glad you like my sense of humor myohno
yeah. Everytime I go in and suggest something to my doctor he thinks Im over thinking it and of course I think he is under thinking it. My primary doctor is the one who believes im having panic attacks, so me suggesting cancer to him he would look at me with that stupid look on his face like Im just a paranoid patient of his.
I dont know if its because Im fairly young to have anything going on. Most people that make those comments to me "your too young to be having things like this go on".
Cancer has crossed my mind but its not the top on my list. We have run many many labs but nothing coming back positive. Then the rest of the labs are all over the place and one lab contradicts the other. Like they look for a tumor with one blood draw, it comes out high indicating there MAY be a tumor then they follow that up with another with should come out High as well or retest and it comes out way too LOW.
Ive had pretty much an MRI of my entire spine as well as brain. Had a small hyperintensity show up on T2 Weighted image. They were looking for MS, but the comments on it just said the "hyperintensity was of uncertain etiology" or something like that. Pretty much that they werent sure but they dont think it is.
I am sticking with my Lyme doctor for now, I completely fit in the Lyme category. Until my Primary doctor can prove otherwise. I see my doc this coming week so we will see what he wants to try next. Im going to try and get him to order a B. Dunaci and B. Microti and Babesia FISH antibody lab. Of course after I show him this CBC and basic metabolic panel showing im sick with something :)
By the time this is said and done I might go searching the medical field for a job, Im just learning so much. haha
Glad you like my sense of humor myohno
Diagnosis was...
"Viral Syndrome"
but we already knew this didnt we. hahahahahhahahah !!!!! YES WE DID!!!!! Too bad THEY don't know we already knew it!!!! That was great !!!! Thank you!!!! Thier answer to everything! You know, since your lymphocytes are so elevated and then you have the swollen lymphgland....has anyone biopsied that and made sure you don't have cancer? I mean lets face it....lymphoma....cancer that travels in the lymph system....you need it checked!! I know that when you're sick your glands can swell, that's what they tell me too, but no one has ever checked mine either even though I ask them too because the gland on the right side of my neck stays swollen, very rarely even lowers but can't get them to check it! Now they did to a CT of it and said it was negative but I was told the only SURE way is to biopsy it. They have found two small tumors on my right lung and they say it's nothing. I had a large tumor that they removed on my left hip...it was benign...so even with the swollen lymph gland they have no desire to look further...I don't know hv2laf, I tend to think that we just have to keep searching for a doctor that listens. I love mine right now and since my MRI came back negative, he is now scheduling the Thryoid Scan. He is wonderful! Let me know how things go with you! I love your scense of humour!
"Viral Syndrome"
but we already knew this didnt we. hahahahahhahahah !!!!! YES WE DID!!!!! Too bad THEY don't know we already knew it!!!! That was great !!!! Thank you!!!! Thier answer to everything! You know, since your lymphocytes are so elevated and then you have the swollen lymphgland....has anyone biopsied that and made sure you don't have cancer? I mean lets face it....lymphoma....cancer that travels in the lymph system....you need it checked!! I know that when you're sick your glands can swell, that's what they tell me too, but no one has ever checked mine either even though I ask them too because the gland on the right side of my neck stays swollen, very rarely even lowers but can't get them to check it! Now they did to a CT of it and said it was negative but I was told the only SURE way is to biopsy it. They have found two small tumors on my right lung and they say it's nothing. I had a large tumor that they removed on my left hip...it was benign...so even with the swollen lymph gland they have no desire to look further...I don't know hv2laf, I tend to think that we just have to keep searching for a doctor that listens. I love mine right now and since my MRI came back negative, he is now scheduling the Thryoid Scan. He is wonderful! Let me know how things go with you! I love your scense of humour!
so i decided I would go to the ER for this swelling under the neck. Lymph nodes.
not just for that but I told them I woke with ringing in the ears when it started and that today Ive been having migraines. So they did a few labs. CBC and basic metabolic.
here were results of that though
BASIC METABOLIC PANEL
Bun .... 23 (8 - 26) MG/DL
Creatinine, Ser ...0.80 (0.61 -1.24) MG/DL
eGFR .... >60 ( >60 mL/min)
Bun/Creat. .....28.8 (H) (5.8 - 27.8)
Calcium ........9.4 ( 8.0 - 10.0)
Glucose ...... 95 (79 - 115)
ELECTROLYTES: SERUM
Sodium ... 137 (135-145)
Potassium.. 3.9 (3.6 - 5.0)
Chloride ..... 101 (101 - 111)
C02 Total .... 29 ( 21 - 31 )
MONO Screen ...... NEGATIVE
CBC:
WBC .... 8.6 (4.5 - 11) x10^3/UL
RBC ..... 4.74 (4.5 - 5.9)
Hemoglobin .. 14.5 ( 13.5 - 17.5)
Hemocrit ....... 44.3 (41 - 53) %
Mean cell vol. ..... 93.4 (80 - 100) FL
MCH ...... 30.5 (26 - 34 ) PG
MCHC ..... 32.6 (31 - 37) %
RDW ...... 12.9 (11.6 - 14.8) %
Platelet count.... 182 ( 150 - 400) x10^3/UL
AUTO DIFF
Neutrophil % .... 35.6 (L) (50 - 75) %
ABS Neut# ..... 3100 (3000 - 5900) /uL
Lymphocyte .... 49.7 (H) (25 - 40) %
Monocytes ..... 10.1 (3 - 14) %
Eosinophils ..... 4.4 (H) (2 - 4) %
Basophils ........ 0.2 (0 - 1) %
Diagnosis was...
"Viral Syndrome"
but we already knew this didnt we.
not just for that but I told them I woke with ringing in the ears when it started and that today Ive been having migraines. So they did a few labs. CBC and basic metabolic.
here were results of that though
BASIC METABOLIC PANEL
Bun .... 23 (8 - 26) MG/DL
Creatinine, Ser ...0.80 (0.61 -1.24) MG/DL
eGFR .... >60 ( >60 mL/min)
Bun/Creat. .....28.8 (H) (5.8 - 27.8)
Calcium ........9.4 ( 8.0 - 10.0)
Glucose ...... 95 (79 - 115)
ELECTROLYTES: SERUM
Sodium ... 137 (135-145)
Potassium.. 3.9 (3.6 - 5.0)
Chloride ..... 101 (101 - 111)
C02 Total .... 29 ( 21 - 31 )
MONO Screen ...... NEGATIVE
CBC:
WBC .... 8.6 (4.5 - 11) x10^3/UL
RBC ..... 4.74 (4.5 - 5.9)
Hemoglobin .. 14.5 ( 13.5 - 17.5)
Hemocrit ....... 44.3 (41 - 53) %
Mean cell vol. ..... 93.4 (80 - 100) FL
MCH ...... 30.5 (26 - 34 ) PG
MCHC ..... 32.6 (31 - 37) %
RDW ...... 12.9 (11.6 - 14.8) %
Platelet count.... 182 ( 150 - 400) x10^3/UL
AUTO DIFF
Neutrophil % .... 35.6 (L) (50 - 75) %
ABS Neut# ..... 3100 (3000 - 5900) /uL
Lymphocyte .... 49.7 (H) (25 - 40) %
Monocytes ..... 10.1 (3 - 14) %
Eosinophils ..... 4.4 (H) (2 - 4) %
Basophils ........ 0.2 (0 - 1) %
Diagnosis was...
"Viral Syndrome"
but we already knew this didnt we.
I know my coritsol levels are low in the morning
the endo reordered it then the 2nd time it came out just barely under low. Labs are in my albums
the endo reordered it then the 2nd time it came out just barely under low. Labs are in my albums
Have an Answer?
You are reading content posted in the Brain/Pituitary Tumors Community
Here are 15 ways to help prevent lung cancer.
New cervical cancer screening guidelines change when and how women should be tested for the disease.
They got it all wrong: Why the PSA test is imperative for saving lives from prostate cancer
Everything you wanted to know about colonoscopy but were afraid to ask
A quick primer on the different ways breast cancer can be treated.
Get the facts about this disease that affects more than 240,000 men each year.
