TSH staying low-Tumor?

[myohno]

Previously I was told that I just might have some thyroid issues and there was an error in antibody readings they gave me. Yesterday, I was told by my PCP, that he thinks I have a Pituitary tumor. My readings are as follows:
TSH - .24
Free T3 - 5.1                                     (2.77-5.27)  
Free T4 - .90                                     (0.78-2.19)              
LH - 57.2                                          (14.0-95.6 Midcycle)
Prolactin - 17.2                                 (2.8-26)
Thyrobglob AB - .9                            (0.0-14.4)
TPO AB <0.3                                    (0.0-3.9)
TSH Receptor AB - 7                         (0-9)

He has repeated my tests 3 times and each time my TSH has been low, and each time my T3 & T4 have been normal which is why he says the tumor. I have an MRI on Oct 2nd and I'm worried. I have been sick for 3 years, I was even in Congestive Heart Failure when they first realized I was really sick. Then they got that under control but I have not been well since! I can't tell you how many times, I've had strep throat, then virus after virus, I've been on more antibiotics than a person should be and it scares me!!! I have lost over 45 pounds and I feel like I'm on pins and needles all the time! I have to tell myself to relax because if I don't pay attention to myself, I find my head, down into my shoulders and the muscles so tense that I get horrible headaches! I'm stressed all the time and I cannot stand the cold!!!  The girls at work will laugh at me becasue it will be 73 degrees in the office and I'm absolutely FREEZING!!!  I don't get it!!  They put me on a cancer medicine that helps with nausea and vomiting because I'm always sick to my stomach! It helps but doesn't make it go away!  I can barely get my body rolling these days~I'm just exhausted in all areas, emotional, physical, you name it, I'm wiped out! I asked the doctor about this tumor and what to expect and he said radiation and surgery. His office is setting up an appointment for me to meet the endocrinologist.  I've read several of your entries and I have to say, I'm really nervous. My boyfriend tells me to stop my unecessary worrying, but is it unecessary?  I don't think radiation and surgery is uneccessary! Can you shed some light on me please???

[hv2laf]

Yeah back in 2005 I got what the hospital called "viral gastroenteritis" kind of a general thing they call it when they dont know. But since then Ive had the fatigue and bowel problems. the gastroenteritis went away after a few weeks. But its like it never went away completely you know? My body always feels like there is something odd or wrong with it. doesnt feel right. Then march of 2009 I started having cardiac problems, the docs started running panels on me and checking me for heart attacks. Ive been a runner for the past 5 years so my blood pressure has always been pretty good as well as heart rate. My blood pressure starting in march went up in the 170/105's from time to time, then on a daily basis sat around 140/90. heartrate always around 95+  then id have episodes where my hands would tremor, shocking sensation in the chest, tingling and loss of sensation in extremeties not always though. When its cold out, I get COLD! Other times when Im having those flushing times at points in the day though I can be out in 50 degree weather with no jacket and be fine because my body is heated probably by adrenaline running around or something.
My body temp never really goes over 97.8 , today at the Endo.. the thermometer took soooo long to read my temp and came out to 96.8. But most docs are like, well your body "just runs cooler". Endo doc didnt say anything about it, not the first time it gets that low.
Endo doc looked at my labs but didnt receive all my labs back so I have to go back on Nov 4th. But from the thyroid labs. My TSH was at 0.25 T3 and T4 were in the normal range. She said something about "subclinical Hyperthyroidism". She really didnt break it down in dummy terms too much for me and was very short with her answer when I asked about certain things so Im figuring she doesnt want to elaborate on anything until she sees those other labs and is certain about it.
She also put in to redo a bunch of my labs. I cant remember all the ones she wanted to do but I know Thyroid again, Testosterone, .. it was like 6 more labs. Ill find out what they were and the results next week before I even see her.
My Vitamin B12 was around 320 something which she said the range is between 200-1000 or something so she said I need a little bit more vitamin b12. Apologize Im trying to remember some of this off the top of my head.

I havent had any episodes lately, my last was about 3 weeks ago while I was in the air terminal listening to music and playing with my phone waiting for the plane to arrive. It started up and soon as I realized it was happening I didnt want to create a scene in the airport so I went to the restroom. My body was trembling so all i could do was wait it out. Didnt last that long but still is pretty annoying when it does happen. My doc believes they are "panic attacks" but I honestly dont. I believe I could have them but the situations im in when they happen just dont go along with it.

Hope the best for you as well, Ill let you know what my docs come up with.
I also need to follow up with my Lyme doc as well to see what he has to say. I read an article called "Advanced Topics In Lyme Disease" by Dr. Burrascano. Mentions some things in there about how the Hypothalamic-Pituitary Axis can be affected by Chronic Lyme.

[rumpled]

I know people with Cushing's without the moon face - myself for one - and even some that did not gain weight or just a few pounds.

You need not have all the symptoms. My glucose was normal. We all vary. I had the anxiety though.

I would push for more comprehensive testing - even renin and aldosterone too.

[myohno]

My heart is definately with you! I pray she finds out what is wrong with you! 3 years ago I had a virus and went into Congestive Heart Failure! I was so sick I went on temporary disability. I could barely get from the couch to the bed sometimes without it being a breathing problem! But they put me on all kinds of cardiac meds and that part got better! BUT...ever since then, I have had virus after virus, low grade fevers ever since...throwing up all the  time....nausea everyday....the cold thing...even when it's not cold but you cant' tell my body that....sometimes I'm soooo cold I have to take a very hot bath just to warm up!  No one in the 3 years ever did a thyroid check until I got this new doctor. He ran it immediately and when he saw the TSH at .24 he immediately ran it 2 more times and all the others , the Free T3 and T4 to assist him. That is why he believes it's the tumor and that's why he ordered the MRI. He said he would be VERY surprised if he is wrong and if he is, he is going to order the thyroid scan. He wants me to have all the tests he can do before seeing the Endo doctor. I got the call today and my appointment is not until November 17 for the Endo. I'm soooo tired of being sick that I wish I could move it up some, but I guess patience is a virtue???? LOL

[hv2laf]

Honestly all the doctors Ive seen so far are stumped and dont know. My primary doctor stopped running tests on me. He keeps checking my glucose because he thinks I have diabetes or something. Also when I see him he says "what your describing sounds like panic attacks" but I tell him Im not in a panic when it happens nor am I anxious then he responds wth a "well panic attacks can happen for no reason at all"....

I went to a Lyme specialist and his diagnosis based on clinical and a few labs he did was Chronic Lyme Disease with 2 Possible Co-infections being Bartonella and Babesia. I dont remember a tick bite and my other doctors wont confirm or deny if it is or not nor are they running tests to figure out for sure if it is.

So as of right now Im stuck in a situation where I dont know what is wrong. My doctors are still working it while I seem to be getting worse. My thyroid lab and cortisol are the only things that have really shown any abnormal results.

All my labs Ive had done are in my Albums except for the most recent.

Ill post tomorrow what my Endocrine specialist thinks, I think she will be the one to figure this out.... Im hoping!

[myohno]

I haven't been tested for those things, but I doubt very seriously it would be cushings. I don't have anywhere near the moon face or some of the other things I read about it.

I will have the confirmation by Monday as my MRI is Friday.

I threw up all day yesterday.....AGAIN!  I'm soooooo tired of it all!!!!

[myohno]

I'm having my MRI this Friday. What do they think you have?