TSH staying low-Tumor?

[myohno]

Previously I was told that I just might have some thyroid issues and there was an error in antibody readings they gave me. Yesterday, I was told by my PCP, that he thinks I have a Pituitary tumor. My readings are as follows:
TSH - .24
Free T3 - 5.1                                     (2.77-5.27)  
Free T4 - .90                                     (0.78-2.19)              
LH - 57.2                                          (14.0-95.6 Midcycle)
Prolactin - 17.2                                 (2.8-26)
Thyrobglob AB - .9                            (0.0-14.4)
TPO AB <0.3                                    (0.0-3.9)
TSH Receptor AB - 7                         (0-9)

He has repeated my tests 3 times and each time my TSH has been low, and each time my T3 & T4 have been normal which is why he says the tumor. I have an MRI on Oct 2nd and I'm worried. I have been sick for 3 years, I was even in Congestive Heart Failure when they first realized I was really sick. Then they got that under control but I have not been well since! I can't tell you how many times, I've had strep throat, then virus after virus, I've been on more antibiotics than a person should be and it scares me!!! I have lost over 45 pounds and I feel like I'm on pins and needles all the time! I have to tell myself to relax because if I don't pay attention to myself, I find my head, down into my shoulders and the muscles so tense that I get horrible headaches! I'm stressed all the time and I cannot stand the cold!!!  The girls at work will laugh at me becasue it will be 73 degrees in the office and I'm absolutely FREEZING!!!  I don't get it!!  They put me on a cancer medicine that helps with nausea and vomiting because I'm always sick to my stomach! It helps but doesn't make it go away!  I can barely get my body rolling these days~I'm just exhausted in all areas, emotional, physical, you name it, I'm wiped out! I asked the doctor about this tumor and what to expect and he said radiation and surgery. His office is setting up an appointment for me to meet the endocrinologist.  I've read several of your entries and I have to say, I'm really nervous. My boyfriend tells me to stop my unecessary worrying, but is it unecessary?  I don't think radiation and surgery is uneccessary! Can you shed some light on me please???

[hv2laf]

I had my cortisol checked on 17JULY it was at 6.8 UG/DL for the morning time which i was told it way too low for the morning time.
I had it checked again on 25SEP it was 8.5 UG/DL for morning time which is still just under low the range for the morning time is 8.7 to 22.4

my skin is way more pale than it is tan

Ill see endocrine doc tomorrow to follow up for all these tests

vitamin B12 came back normal
folate came back normal


I seen that they are also checking me for Celiac Disease and checking my chomogranin A levels

I will upload these newer labs too when I get all of them back some still say "pending"

[rumpled]

Red flushing is sometimes a sign of high cortisol - Cushing's  syndrome or disease (pituitary source). But I do not see where you have been tested.

Low cortisol will make a person tan a bit sometimes - there are exceptions to every rule.

[hv2laf]

myohno

I have the SAME symptoms you have on a daily basis as far as low TSH, cold intolerance, flushing of skin, nausea pretty much you name it. I also have been getting random bruising all over my legs even if I dont bump into anything. Majority of tests they have run arent showing anything. Thyroid tests the past 2 they have done out of the 3 have been low TSH. But I think I have a much longer list of symptoms unless you are leaving some out. Nonetheless, as I am kind of in the same situation. I have learned not to take the doctors word for it always. So if he "thinks" you have a tumor I would make him prove its a tumor before I received any radiation or any medication to treat it.
The more tests or MRIs you can get to prove that it is a tumor the better.
I dont believe in any single diagnosis I have been given because so far they have in one way or another conflicted with what another doc will say or the treatment for a few of my symptoms make some other much worse.

[myohno]

You know, I just thought of something. I wouldn't call it skin darkening for sure,but I do "flush" in the exact same places on my face and left side of my neck down to just above my breasts. It does it almost all the time, but not anywhere else. The doctor did notice it but I was running a fever at the time and he asked me to "watch" it. I'm looking at it right now, but it's red, almost like you would think my blood pressure was up. But it's not. You think that has anything to do with any of this?

I thank you for all your replies!

[rumpled]

That is how all the endocrine system works - the hypothalamus puts out a hormone, the pit then puts out another hormone, then the gland itself does and they all sense and adjust - it is called feedback loops.  The glands and all get feedback and everything loops back.

[myohno]

No, no skin darkening - what do you mean, "lots of feedback loops there?"