Ehlers-Danlos question

[bookworm79]

Not really worrying I have anything but have seen this come up recently in the forum.  Is all EDS hyper joints?  Just wondering what your symptoms/issues are with it.  My joints, several, pop loudly and echo in the room at least 20 times a day.  I've gotten so used to it, I don't pay attention.  But knowing the pain I have all day and having had a doctor in the past suspect I had Rhuematoid Arthritis in my early 20's and I never followed up, it makes me wonder.  But then I looked at EDS online and I don't have elastic skin and I'm definitely not double jointed, so probalby no connection but did wonder about the pain I have and popping sounds all the time.  My fingers "lock" sometimes and I'll twitch it, it will pop, and then be ok.  Not twitch as in my cracking my knuckles.  Just that my body is stiff all the time and I find myself clenched, jaw, hands, fingers, etc and then when I move I can feel or hear pops frequently.  Sometimes when I stand up and go to walk, the area that connects my leg to my pubic area, feels like I'm forcing the "bone" or whatever to go the opposite direction and it will hurt and I'll have to cease movement and manuever around and then walk normal again like nothing.  Just curious anyway.  

[selmaS]

  Hi...not everyone with EDS will have hyper mobile joints....or elastic skin, they are the most common symptoms, but there are like 5 different types of EDS and like chiari not everyone with it will have the same symptoms...

I would suggest u look at the video links on the EDS group here on MedHelp ......http://www.medhelp.org/forums/Ehlers-Danlos-Syndrome/show/417?controller=forums&action=show&id=417&camp=msc

[Rylanesmom]

I was diagnosed by neurosurgeon based on hyper mobility scale so I believe so .... Here is a link to check out for more information.  http://www.ncbi.nlm.nih.gov/books/NBK1279/