anyone over 40 with mild symptoms??

[lynnbrook177]

I was diagnosed a year and a half ago, at age 48.  I have mild symptoms and was told they may not get too serious because it came on so late.  I have accepted that this may or may not be the case, but just wondering if there is anyone else out there in the same boat.

Thanks Heather

[selmaS]

  CINE is pronounced Sinee

At least that is the way I have heard it pronounced....lol....

Keep us posted  on what tests u get done and what results u get on them : )

[selmaS]

  CINE is pronounced Sinee

At least that is the way I have heard it pronounced....lol....

Keep us posted  on what tests u get done and what results u get on them : )

[lynnbrook177]

PS I think my next step is to ask for that swallowing test and the cine (how do you pronounce that, seen or sign?) test.  Thanks Selma, not sure if you're aware, but you have been guiding me through this all along <3

Thanks, Heather

[lynnbrook177]

Thanks Linda and Selma!

I think I can attribute some things, growing up, to Chiari.  I would be sent upstairs to get something and forget when I got there (was famous for that!) and had headaches, but not near a migraine strength.  I was pretty normal and active...this is why it is so hard to deal with now! You're right, though, just KNOWING you have Chiari changes everything!  I know that I am nowhere near needing surgery right now, but it just ***** to have to go day to day feeling fatigue and slight nausea. I can still get through the day, but with less energy. I have more pressure in my head these days, ringing in my ears is louder, and lately I feel more neck stiffness.  With neck stiffness, I seem to feel it in my throat too, and I don't know whether this is anxiety or an actual swelling (I know you've mentioned this can be a serious symptom). My PCP put me on Clonazepam to see if the lump went away, back in April, and it did; however, it has returned so now what, haha. Everything I feel could be attributed to anxiety, but I don't believe that to be the case.  My doctors, (PCP) has tested my entire spine and everything is normal.  I get the "look" from him often! It is just frustrating hanging in limbo, not knowing, and not really having anyone acknowlege my symptoms!  Thanks for letting me rant here!  I know that most of you are worse off, or at least have been, but at the same time I'm sure that you understand where I am at, so thanks for being here!

[selmaS]

  Hi...I was dx'd at 48 as well after having a drop attack a yr earlier.....I really do not think that we get dx'd at a age when it is "mild" I really think we r in a flare ...let me explain, this is congenital, since birth,so many of the symptoms we may consider "normal" daily aches and pains bcuz they come and go(typical chiari symptoms do this)...so we never connect them as one major issue until they do flare as a whole and we just do not feel well , have testing and all of a sudden we have symptoms, when in fact we had them all along but attributed them to other things, like doing too much or that is how I get.,...I was always like that, that's not a symptom right...wrong!

Take a good look at growing up and how u felt doing certain activities....and what u went to the Dr for over the yrs....and consider they may be related.

Find a chiari specialist, get a CINE MRI and see just how ur chiari is affecting ur overall health, the term mild...not sure if that is ur term or the Drs, but do check bcuz some do not feel pain and think I am ok I am not as bad as the others, but if a nerve is being pinched or damaged u can not feel the pain.,...so, do not let that fool u, get checked to be sure , then go from there.

[linnielou232]

I was in my early forties when I started having symptoms.  I didn't have surgery until I was 48.  So it will be my 2 yrs annivery in Sept.  Mine did get worse from the age of 45-48, that is why I had surgery.  Some people don't need surgery, and I pray your's will stay the same.  As my NS explained that some people when having Chairi don't notice it until later in life due to our bones get weaker.  I think this is what happened to me, also a car accident I think triggered it.  Wish you the best,  please just avoid lifting any thing heavy because I know this makes it worse.  Also bending over a lot.  
Linda :)