How do you spend your day?

[Munchies2012]

I am curious as to what everyone else does during  a typical day..

I lost my job two weeks ago... And find i just sat/lay on sofa and watch tv...
No job and now must be tight with what money i have left as the only income i have now is sick pay from government... The doctor signed me off as unable to work due to depression bla bla

I want to be able to go out! But hot lately i get dizzy and disoriented easy then panic sets in and just come home back to the safe sofa..

So how do you all spend your days? When you aren't suffering full hilt

[The_Marine_Corp_Brat]

Hey sweetie, I know it's very hard not to go into depressed mode...but you have to kick yourself in the bootie and remind yourself that you are so much more than your CM and the limitations it tries to impose on you! I cannot stress to you enough to smile through the pain. I have had Dr. and nurses and there staff comment to me on occasions that I am the happiest patient to be in as much pain as I am always in. They can see it on my face and know how much pain I am in just by looking at me but I always try to put a smile on my face. I explained it to them one time like this, if I dwell on my pain and that's all I think about I am not doing myself or anyone else any good. Where if I smile, whether I feel like it or not, I get smiles in return and that helps brighten my day. I try to smile to brighten their days b/c I know they have patients that come in like me that are in a great amount of pain that are ugly to them, it's not their fault or anyone else's fault I am in the pain I am in so there is no reason for me to take out my pain and frustration on them. By smiling it helps to lift my spirits as well it's hard to be in a bad mood when your smiling! :) I also know that although I may not know the reason why God has reason and a plan for what I am going through, maybe it is to help someone else get through this and if I am depressed all the time I would not be much of an example. I know it's hard. I have multiple issues that compound my CM and still have a lot of questions regarding all of it, I am available to talk most of the time on here,if you need someone to listen. Sometimes my HA's get the better of me and I have to stay off during those but I will be back! lol! Just try and take a deep breath, relax, talk to some friends and try smiling even when it hurts. I am praying for you!

[Munchies2012]

I am beyond depressed now i think... I have done nothing but cry and sleep all day.... As soon as i wake up i cry.. Cry that i must endure life again...

[Crys86]

To be honest, I sit on my rocking chair on the porch all day with my sunglasses on (rain or shine) unless I'm sleeping (I'm 26 and I'm like the exact opposite of any 26 yo you will ever meet.). I read sometimes when my eyes don't hurt to move them. I try to play with my 4yo when I don't feel like death is breathing down my neck, but generally I feel too bad so I just sit here and watch her run all over the yard and talk to her. I mowed grass today (riding mower), currently have a massive headache and feel like I broke my neck after getting hit by a bus. Basically I'm just lethargic, I want to do things but I just don't have the energy to, and when I do I feel like someone beat the crap out of me afterwards. So I am too scared now to move. I do however work still, I work 9hrs a night 5-6 days a week. From 9pm-6am.. if you want to call it working, I generally make a fool out of myself from running into things or getting so tired I can't move, hurting, and then I just cry. I get off work sit in my rocking chair til I get sleepy and go to sleep.. wake up, rinse and repeat. That is how I spend my days. I think I'm getting extremely depressed.. I use to be an avid wakeboarder, bodyboarder, and fitness addict. My last time I went wakeboarding I passed out (drop attack) after falling down pretty hard and had a severe headache for days (was the week before I was diagnosed with Chiari). Now if I try to work out I generally hurt so badly I cry my eyes out. And all my friends are very outgoing people (going out wakeboarding, amusement Parks, and pretty much everything I can't do) so I can't keep up and I just get to read their Facebook statuses of how much fun they're all having.. and when I try to go I just hold them back because I'm sitting on a bench needing a walking break every few minutes or my head starts pounding and one of them feels bad and leaves early to take me home. Yay for being a gimp.

[tink_0427]

Thanks munch, I sure hope so...

[Munchies2012]

I have a jewelry making kit! I try ... But anxiety sets in and  i pack away and sit and worry some more... I think when i look down i get symptoms

[lynnbrook177]

The Marine Corp Brat had some good advice.  I know how hard it must be when you are younger because you don't have the same interests in the home as someone older would have.  I feel for you!  I have had many anxieties over this too, and I am 50, but I get some relief knowing that there is hope for this condition. This is not the case for other diseases so we have to look on the bright side, and keep faith!  Not sure if this interests you, but my daughter has mentioned getting old clothes and putting beads on them to make them your own, or how about those bracelets that are hand made? Just trying to give you some ideas.   H.