Hi all,
I am new to this forum, mostly trying to see if anyone else is having any of the same issues and express some of my frustrations.
I have been having headaches for a little over a year that started out lasting only a few seconds of intense pressure with straining activity but that developed into chronic daily pressure headaches that never truly go away and can be very debilitating some days. Originally my MD told me I have Pseudotumor cerebri, however, that did not really fit with a lot of my testing. My MRI did show a chiari malformation of 5.5mm, so now they believe that may be the problem. ( I also has blurred vision, and have developed very poor balance-frequently walking into things) I now take the maximum daily dose of Diamox, which reduces the pressure, but the effects do not last long,, and it only dulls the pain, does not get rid of it. Has anyone else tried Diamox for Chiari?
I have no syrinx associated with the Chiari and my MRI described it as 'stable' I am 26, but I still feel so limited with basic daily activities, and I have had to slow down a lot, and even miss a few days from work when the symptoms are so bad I cant even think straight,