Undiagnosed --chiari- Lyme?

[Jordanalanis]

I'm trying one last time to see if anyone can relate.
One day I woke up with my ear ringing and then my vision began to blur along with neck pain and many other symptoms nystagmus legs kicking on their own sleeping problems seeing bright lights in for my vision for no reason ringing ears muscle twitches now I am stuck with daily symptoms like air inside my ears feeling off most of the time kind of drunk can't sleep on the back of my head my legs and arms go numb if I bend them or sit certain ways allcmedical tests clear besides chiari malformation diagnosis which i have been told is NOT causing my issues. I can't remember anything and I see lights all the time and my heart flutters a lot my hands turn white and pink when they are down to my side and my ears twitch inside. Heart beat inside my ears when i try to lay down

Can anyone relate? Still undiagnosed

[selmaS]

Hi and welcome to the Chiari forum.

There are many, sadly to say,  Drs that do not know or understand how Chiari affects us......do locate a Chiari specialist to review your tests and possibly do a few more to make sure it is not the Chiari affecting you.

[SassyLassie]

Hello~so many of your issues point to anxiety, there are literally hundreds of anxiety symptoms that people are not even aware of.  Also, some point to fibromyalgia or even chronic fatigue syndrome. Have you been tested to either one of these?

I am also going to suggest seeing a chiropractor, now, I know that sounds strange, but, if your neck is out of alignment, symptoms similar to yours can occur, he/she will take an x-ray and they will be able to tell almost immediately if this is the case, if it is, a few adjustments should have you feeling better in no time.

[Jordanalanis]

Forgot  to say that I can barley see at all anymore