back of the headaches, blindness, eye pressure is this chiari?

[Cathyp69]

I posted this and selma invited me here ,,

"Okay so please help me .. I went blind a few times for like 2,3, to 5 minutes at a time in both or sometimes one eye ..Dr gave me a CT scan and found possible low lying Cerebella tonsil & crowded Foramen magnum ...What could that be? They want me to do a mri and gave me  Pamelor 10mg but i dont have migraines he said i did but i get headaches but not ones to cry over.. can anyone clarify what this could be .. i did research and found a connection to my scolliosis of spine but i did not really understand it.. im confuse"

As of 2day i had an appointment with the nurologist today they told me they were gonna give me a mri (brain, cspine, carotid neck and intracranial) i have no i dea whats going on he told me he doesn't know what i have , that what h thinks i have im to young for ... idk dr's get on my nerves i have had headaches for yrs .. the 1st time i went blind they told me it was probably my pressure they make things up as they go along :{


what did they tell u when u first went to neurologist? was it a long time b4 u were diagnosis?

sorry its so long :}

[Cathyp69]

oh yeah and he uped my meds to 25mg Pamelor  cause 10 did nothing at all

[Shane99]

Welcome to the boards. Sorry you have to be here, but this is a great site for info and support.

You have a Chiari Malformation. Read the top thread on this forum and it will give you a primer, but for the basics; The lower back part of your brain (cerebellum) is being squeezed out of your skull into your spinal cord. This isn't a life threatening illness, but it is life altering.

By itself, Chiari can cause system wide health problems, but it can also lead to related issues like Syringomyelia (a blockage of spinal fluid). Syringomyelia can lead to nerve damage and even parylasis if not dealt with. This is a neurological malformation, it is connected to your brain, spine, and entire nervous system - like your scoliosis.

The first thing you need to do is get a Chiari Specialist. Most Neurologists and Neurosurgeons aren't familiar enough with this to be completely up on what all can happen.

10 mg of Pamalor is the usual starting dosage to get your body used to it. It's important to take it on a regular basis as prescribed, not just when you feel bad. It's not like taking a regular pain pill like tylenol. It has to get into your system, which can take a couple of weeks.