Size doesn't matter! (I'm going to make a t-shirt like that).
I'm a 0, & my NS told me that he has a patient w/similar radiographs--and she's in a wheelchair. No one believed that poor woman either.
Hi and welcome to the Chiari forum.
Do u have a sx of Chiari? I was looking at ur profile and was not able to see it listed...not sure if I missed it.'
Just wondering if the Drs list we have would be helpful to u ?
Hi Tried that but as all else it helps for awhile.....Trust me, I personally feel like a nut job sometimes with all the proven things wrong with me: High Blood Pressure: Auto immune disorder which I receive monthly infusions of Gamma Globulin, Migraines, past stroke with no residual Effects and now Lyme Disease, which is Notarious for causing headaches! I am now on Doxycilline for 30 days and I am not so sure what the Immunologist will say ! If Docs had there way...they would just give us drugs ...Not all og us want that. I do not. I am waiting for a name of a Headache Specialist, I will be glad to pass along IF and When I get it! I live in Ct. But I am willing to travel at this point. Good Luck!
Thanks, like I said some have no clue! :) I am hanging in like hair in a biscuit and will continue to do so! The thing is I get so frustrated with them saying it's not considered Chiari unless it is bigger than...because any size can cause issues if it is blocking the flow of spinal fluid, and there are other health problems that come along with the Chiari for most. I am still trying to convince the doc here to do the testing so when I go to the specialist I already have answers to some of it in hand and hopfully won't have to spend as much time going through more testing! :) Unfortunately the ones that don't know my history very well look at all of the health issues I have and immediately think.. hypochondriac! It's very frustrating! My mom said that when I was little the USMC doc's used to tell her that they had never seen anything like me! Lol! I had three full blown cases of chicken pox! They thought I had Rheumatic fever at one point, was diagnosed with arthritis very young! I was sick every time they turned around, they were dumbfounded! :) Still have problems today and I still keep them confused half the time! I had one ask me for a list of my symptoms, so I went head to toe and listed every symptom I have from every problem I have and he handed it back to me and said "re-do it, this makes you sound like a hypochondriac and I know you aren't one so re-do it" I told him I experience all of those symptoms, maybe not everyday but pretty near everyday! he wanted for my HA's only. Well next time be more specific, I have a lot of symptoms related to my head issues and they are being ignored! Frustrating sometimes! But I hope to find one that listens and knows what they are doing soon! At least the NL I see now knows what Chiari is! Lol!
It sounds like ur Dr is not a Chiari specialist and we suggest u get another opinion as to what is going on and get help from a well experienced Dr.
I do hope u find a way to be comfortable in the meantime.....but please research Drs and see a few and compare them....and educate urself on what chiari is, not on how Drs were taught yrs ago...get the newest updated info.