Chiari Malformation Community
update on ns apt.......
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

update on ns apt.......

Sorry its taken me so long. Caught a bad sore throat and takes me a few days to recoup after flyin. Saw dr oro last fri. Had mri. What they initially thought was swelling is really scar tissue. We discussed my basilar invaagination and decided not to jump to fusion but have c2 blocks and he said if that helps possibly goin in an deadin the nerves. Only he don't do the procedure. Personally id rather just have the fusion and get it overwith. But I trust dr o so I will do as he suggests. He don't wanna cause anymore scar tissue. Will finish post later, I'm in pain. Hope ya'll are well. Hugs, Dana
3 Comments Post a Comment
Blank
1925822_tn?1333709217
oh dana...somehow I can hear the tone of that message.and let me tell u i feel and hear u.i am glad u found dr.oro as he doesnt give up...but still...it seems neverending sometimes...i think uwill be better one day...but yes its time we need...and that ***** sometimes. I am sitting in a chair today...crying like a baby, because I am afraid I have to high hopes and I will just not get out of this no more...I will have a hearing soon for permanent disability. I am soooo afraid...I know they will see me and look at me like...what is wrong with her...I think she is fine...puuuhhh tomorrow is another day...lets stay strong...u know I am always there for u...do u??? hugs
Blank
1823499_tn?1370093889
I sure hope and know you'll feel better soon. Give ur self time. And thanks for bein here for me :)  I'm here for u too. I just wish we could find our way thru. I think its acceptence we need. Its hard to accept chiari and all we are dxs with. Get rest, hugs
Blank
620923_tn?1452919248

  Dana I am glad u got some answers and a plan in place to address what is still going on with u...I pray the blocks work....

Sending healing MoJo for u to feel better <3
Blank
Post a Comment
To
Recent Activity
620923_tn?1452919248
Blank
selmaS <3 <3 Happy Valentines Day ... Comment
7 hrs ago
4760166_tn?1398360913
Blank
gjjl, and The_beat_goes_on commented on gjjl's status
Feb 10
16744917_tn?1451270439
Blank
gjjl I have a leak and now am ha... Comment
Feb 10
Top Neurology Answerers
620923_tn?1452919248
Blank
Allentown, PA
562511_tn?1285907760
Blank
CA
1306714_tn?1327260680
Blank
muskegon, MI
Avatar_universal
Blank
7530528_tn?1428275172
Blank
TX
Avatar_universal
Blank
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Neurology Answerers
620923_tn?1452919248
Blank
Allentown, PA
562511_tn?1285907760
Blank
CA
1306714_tn?1327260680
Blank
muskegon, MI
Avatar_universal
Blank
7530528_tn?1428275172
Blank
TX
Avatar_universal
Blank