Chiari Malformation Community
update on ns apt.......
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update on ns apt.......

Sorry its taken me so long. Caught a bad sore throat and takes me a few days to recoup after flyin. Saw dr oro last fri. Had mri. What they initially thought was swelling is really scar tissue. We discussed my basilar invaagination and decided not to jump to fusion but have c2 blocks and he said if that helps possibly goin in an deadin the nerves. Only he don't do the procedure. Personally id rather just have the fusion and get it overwith. But I trust dr o so I will do as he suggests. He don't wanna cause anymore scar tissue. Will finish post later, I'm in pain. Hope ya'll are well. Hugs, Dana
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1925822_tn?1333709217
oh dana...somehow I can hear the tone of that message.and let me tell u i feel and hear u.i am glad u found dr.oro as he doesnt give up...but still...it seems neverending sometimes...i think uwill be better one day...but yes its time we need...and that ***** sometimes. I am sitting in a chair today...crying like a baby, because I am afraid I have to high hopes and I will just not get out of this no more...I will have a hearing soon for permanent disability. I am soooo afraid...I know they will see me and look at me like...what is wrong with her...I think she is fine...puuuhhh tomorrow is another day...lets stay strong...u know I am always there for u...do u??? hugs
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1823499_tn?1370093889
I sure hope and know you'll feel better soon. Give ur self time. And thanks for bein here for me :)  I'm here for u too. I just wish we could find our way thru. I think its acceptence we need. Its hard to accept chiari and all we are dxs with. Get rest, hugs
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620923_tn?1405964489

  Dana I am glad u got some answers and a plan in place to address what is still going on with u...I pray the blocks work....

Sending healing MoJo for u to feel better <3
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