i was diagnosed with epilepsy aged 8. I had tonic clonic seizures, complex partial and myoclonic seizures. I have been seizure free on medication for several years now. A large proportion of my seizures occured during sleep. I reduced my meds several years ago with the help of my neurologist as i was keen to get pregnant. Lately i have been wakening feeling extremely groggy and tired which lasts throughout the day and my body aches when i waken. I feel some days like i have been hit by a bus. Is it possible that my seizures are returning whilst i am sleeping. Hubby says at times i make funny noises with my mouth and seem very restless. He has never seen a seizure.
I had intractable complex partial and secondary generalized tonic clonic seizures for 13 years, helped only by surgery (had left temporal lobectomy 3.5 yrs ago, also had a brain tumor removed.) Currently I have auras fairly frequently though. A lot, but not all, of my seizures occured at night as well. When I woke up, I also felt groggy, with aches and pains all over my body. I also had bruises, and bleeding as well (when I was in college, I would wake up my next door neighbors at times from all the banging noises I made on the wall!). My mother told me I had a lot of "funny noises" with my mouth as well, kind of like gurgling, and was impossible to wake up after a seizure. Often times I bit my tongue (am currently 31, had intractable ep. from 14-27) during the larger sz. Do you also have that symptom when you wake up? I would not be surprised if your seizures have unfortunately returned, perhaps also a result of alterning your medications. I wish you good luck, though--I hope you are able to find some answers.
You may indeed be having seizures while asleep. As you probably know, reducing the frequency/dose of a seizure med leads to an increased risk of having seizures while your body adjusts to the change. However, awaking feeling groggy and stiff can be a result of many things, none necessarily related to epilepsy.
I suggest talking to the physician managing your condition medication. A sleep study may prove useful, or a 24-hour video EEG (in a hospital) or a 72-hour ambulatory EEG. If your seizures are well-controlled, then seeing another physician to explore what is behind the fatigue and aches would be advisable.
Hope you can get through this and become pregnant.
My daughter started having seizures just over 2 yrs ago at the age of 29 she is currently 31and 27 weeks pregnant she had a grand mal seizure last week and slipped into a coma , her grand mals seem to happen when she is sleeping . We are concerned for her well being
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