please take the time to read

[bryant12]

I am having a problem finding a doctor to diagnose me by my symptoms ,  years ago at age 29 I had been getting strange symptoms within  two years. Started with eye floaters , muscle twitching all over body ,severely sensitive to the cold (feet would turn purple) in the winter , pins and needles in feet , burning inside of legs and arms , stiff knees and fingers , very tired , loss of balance , hard to focus when driving , loss of appetite , back pain, hot flashes with confusion , light headed ,  rash on chin 1 - 2  times a year, no sex drive at all , swollen limp nodes down neck lasting 1 week , got a fever of 103 that had me bed ridden for 3 days  with no other symptoms when fever broke I got a rash all over body and none of my 3 members of my family got sick or was sick at the time,  I still have those symptoms  but now age 34 I have started getting heart flutters daily and finger nail hemorrhages , shortness of breathe , cough and have had chest pains and sharp pains all over body but not daily. abnormal bowl movement , I don't drink or do drugs but when I go to the doctors they treat me as such as to think I would make these symptoms up   although I'm not in pain but more uncomfortable and my symptoms are not always constant there are so many its just not normal and just want it all to go away  I'm really angry that the doctors won't take the time to listen and figure out what specialist I need to see and what testing I need , any ideas? signed , very frustrated

[romie24]

In addition to all the other responses I would suggest an alternative Doctor.  Either an holistic one and/or an accupuncturist.  Holistic MDs seem to take more time and interest and do not dismiss your problems like the other doctors you have seen.  Good luck and let us know how you are doing.

[bryant12]

well my results came back my FT3-FT4 were normal...... i was hoping thyroid was the answer

[FurballsMom]

Who tests for EBV if my PCP insists that the test would be a waste of my efforts?  Her theory is that everyone tests positive for EBV.  I had a case of Shingles less than three years ago.  Would that have anything to do with EBV?  I keep hearing that I should be tested, but the doctor won't test for it.  What next?

[MM1975]

Have them check for Epstien Barr (the spelling isn't right there) and as much as it might suck to think of it... have them check for syphilis as well. Sounds like a lot of the symptoms fit both cases. Nothing to lose from checking after all and if it isn't either of those then you can rule them out.

[FurballsMom]

I'm just now learning that I should have my adrenals tested.  My TSH is always "normal", but I really don't know what the range is supposed to be.  I think it's still low normal myself, or a low functioning thyroid.  As soon as I can, I'm going to ask my naturopath to to the adrenal tests, because I learned that the doctor will only likely be testing for something like Addison's.  I don't know what Addison's is, but from what I'm learning, the adrenals work in conjunction with the thyroid, so if the adrenals are off, then the thyroid will be, too.  So, even if I have an undiagnosed issue with the thyroid, it's probably the adrenals that are off.

[margypops]

Doesnt it feel good to get an answer I am in the same position but my tests were negative, the TSH and the Lyme but I dont feel they did the right ones with Lyme, however I am glad you have an answer and will cope , check out the thyroid forum for other folks been through it.

[bryant12]

my doctor checked my TSH got the results my level was 0.24 and they said it should be between 0.35 - 5.50 so they took blood to get my FT4 and FT3 levels I should get my results today , dear god i hope after all these years of feeling strange I will now get the reasons why .