Aa
Why am I feeling so BLAH?
Well hi community! I'm back!!
You know 10 Wks into Tx I woke up one morning and I hadn't felt this good for over 30yrs. I felt positive emotionally, looked forward to a hopeful future. Now I just feel emotionally subdued. What the hell happened?? I'm restless and seemed to have lost that spark
As always
Peace
Deb
You know 10 Wks into Tx I woke up one morning and I hadn't felt this good for over 30yrs. I felt positive emotionally, looked forward to a hopeful future. Now I just feel emotionally subdued. What the hell happened?? I'm restless and seemed to have lost that spark
As always
Peace
Deb
I definitely have survivor's guilt, but aside from that I vacillate between having lots of energy and then zilch, none. I was thinking the other day maybe I have bipolar. I know I don't but I definitely experience mood swings and energy fluctuations that I didn't have before tx. But then before and during tx I was too tired to feel much of anything. So, as energy returns maybe it has cycles until the body totally adjusts. I'm 8 months since eot.
I am interested to know:
1) What eds did you take?
2) At what point in time did "blahs" start?
Weird side effects often start 90 days post-treatment INF / RVN, and about 60 days post Sovalidi, per anecdotes on this forum.
1) What eds did you take?
2) At what point in time did "blahs" start?
Weird side effects often start 90 days post-treatment INF / RVN, and about 60 days post Sovalidi, per anecdotes on this forum.
Hi Deb & Kim,
Deb,
Yes, I felt so much better right after treatment and for about six or seven months afterwards. I did feel like Super Man because I had finally beat C and now my prognosis for a longer life became quite possible. Before my former IDS discharged me from her clinic she told me since I was in that very early group to be treated, she didn't know exactly what if any long term effects could manifest in the future. She related it to the first people treated with the new meds that saved so many with HIV since they later discovered that there were some side effects with them.
Kim,
I really do think that you are absolutely correct about the the anticipation and being all involved in my quest for a cure. So many people were pulling for me and were concern for my well being throughout the three months of treatment. My neighbors mowed my lawn all last year since the Oylsio kept me out of the sun and others just kept check on me to make sure everything was going O.K.
At least I know for certain that I have a wonderful support system should somewhere way down the road I would need a transplant. I have my first visit with my Hepatoligist in two months to see were I go from here. The Gastro I saw five years ago only gave me 6 -7 years because of my labs and active C, but my IDS clearly said that no one could predict my finality especially since I am in a much better state of health.
Perhaps the moderators need to start a new room for " PTLB". Yes Kim, you named the new syndrome!
Bucky....
Deb,
Yes, I felt so much better right after treatment and for about six or seven months afterwards. I did feel like Super Man because I had finally beat C and now my prognosis for a longer life became quite possible. Before my former IDS discharged me from her clinic she told me since I was in that very early group to be treated, she didn't know exactly what if any long term effects could manifest in the future. She related it to the first people treated with the new meds that saved so many with HIV since they later discovered that there were some side effects with them.
Kim,
I really do think that you are absolutely correct about the the anticipation and being all involved in my quest for a cure. So many people were pulling for me and were concern for my well being throughout the three months of treatment. My neighbors mowed my lawn all last year since the Oylsio kept me out of the sun and others just kept check on me to make sure everything was going O.K.
At least I know for certain that I have a wonderful support system should somewhere way down the road I would need a transplant. I have my first visit with my Hepatoligist in two months to see were I go from here. The Gastro I saw five years ago only gave me 6 -7 years because of my labs and active C, but my IDS clearly said that no one could predict my finality especially since I am in a much better state of health.
Perhaps the moderators need to start a new room for " PTLB". Yes Kim, you named the new syndrome!
Bucky....
Post treatment letdown blues!!!!
You were so pumped, hung ho, defeated the beast, big (((sigh))). Now what?
It's like fighting in the ring. All the anticipation, the high energy, the big win, and then....Drumroll...
Is this all there is!!!!!
Everyday life can be mundane. We were all "Superstars" fighting the beast and getting a daily Congragulations for doing so well. Reality bites at times.
Find a new mission in life with purpose. Find something that will exceed all of your expectations.
When you do, life will begin again.
......Kim
You were so pumped, hung ho, defeated the beast, big (((sigh))). Now what?
It's like fighting in the ring. All the anticipation, the high energy, the big win, and then....Drumroll...
Is this all there is!!!!!
Everyday life can be mundane. We were all "Superstars" fighting the beast and getting a daily Congragulations for doing so well. Reality bites at times.
Find a new mission in life with purpose. Find something that will exceed all of your expectations.
When you do, life will begin again.
......Kim
Ahhhhhhhh, hiyah FM,!!! So excited to hear from you.! Yeah, I can't get much past you haha!
Yep it's been a busy time for me, trying to get my name as a kick your butt advocate and working with H4H and then there are my 10 little feathery friends and egg laying! Phew! €:>
It's all good, just rolling with life.
How have you been doing Pat?! And how is Bob? I hope you are enjoying the Summer so far...we've been unusually muggy but still enjoying.
TTYS my wonderfully sweet FM, OH I'll try and slowdown a bit, no guarantees! [|;')
Peace
FK
Hi Bucky!
You know I was a bit depressed when I finished my last meds. I had sort of "separation anxiety" for a lack of better words. I felt I had lost a good friend, sounds kinda silly but for 24 wks I dedicated all my energy towards beating the virus and felt safe. Now that I see what I am writing here it looks pretty dumb!
I guess maybe I can relate to it not being about me, and also I really truly was touched by the awesome people that gave me so much support when I was a newbie. Happily I can say this community has renewed my faith in people, they really are my family.
It's really good to hear that you are working part time, they say it's good for the gray matter lol. Congrats on the 1 year I'm happy for you truly.
There is zero,zilch, goosegg research on post Tx treaters and likely will not be a priority on very many peoples list of "things to do".
As you asked if the Tx has wrecked your brain, Ya know anything is possible!
Hey let me ask you if you felt better earlier in your post Tx and worse now??
The only thing I'm dealing with is severe osteoarthritis from having HCV for over 30 yrs and then the meds SFX.
You gave me a few things to think about, so happy to know I'm not alone!
Take care fellow hepcat and as always........
Peace
Deb
You know I was a bit depressed when I finished my last meds. I had sort of "separation anxiety" for a lack of better words. I felt I had lost a good friend, sounds kinda silly but for 24 wks I dedicated all my energy towards beating the virus and felt safe. Now that I see what I am writing here it looks pretty dumb!
I guess maybe I can relate to it not being about me, and also I really truly was touched by the awesome people that gave me so much support when I was a newbie. Happily I can say this community has renewed my faith in people, they really are my family.
It's really good to hear that you are working part time, they say it's good for the gray matter lol. Congrats on the 1 year I'm happy for you truly.
There is zero,zilch, goosegg research on post Tx treaters and likely will not be a priority on very many peoples list of "things to do".
As you asked if the Tx has wrecked your brain, Ya know anything is possible!
Hey let me ask you if you felt better earlier in your post Tx and worse now??
The only thing I'm dealing with is severe osteoarthritis from having HCV for over 30 yrs and then the meds SFX.
You gave me a few things to think about, so happy to know I'm not alone!
Take care fellow hepcat and as always........
Peace
Deb
I have seen posts here and on other forums about post treatment blahs. I have it as well and I am thinking "what the hell"! I have been checked head to toe, bow to stern and all tests results including liver panel are great.
I was so happy to finally get treated and felt so fortunate that my insurance covered all $160,000 of the cost that I was really on a high. Every waking minute was devoted to doing the correct thing to rid myself of Hep C.
Now that I have passed my one year anniversary of finishing 12 weeks of meds, I wonder if I might have some kind of survivor quilt or maybe a slight depression because I am not medically involved with lots of people and it is not all about me and cure for C.
I went back to work part time since I had retired to do treatment and other than that obligation I am not very motivated. Besides working, I keep my yard, house and garden work done but that is about it. This is very out of the ordinary for me as I was always the first one to join in on a community service project or get a group of friends together for some fun.
I wonder if the meds (S&O) have wrecked my head?
Bucky
I was so happy to finally get treated and felt so fortunate that my insurance covered all $160,000 of the cost that I was really on a high. Every waking minute was devoted to doing the correct thing to rid myself of Hep C.
Now that I have passed my one year anniversary of finishing 12 weeks of meds, I wonder if I might have some kind of survivor quilt or maybe a slight depression because I am not medically involved with lots of people and it is not all about me and cure for C.
I went back to work part time since I had retired to do treatment and other than that obligation I am not very motivated. Besides working, I keep my yard, house and garden work done but that is about it. This is very out of the ordinary for me as I was always the first one to join in on a community service project or get a group of friends together for some fun.
I wonder if the meds (S&O) have wrecked my head?
Bucky
Sorry for this being the way to see you back. how long has this been going on, FK? I had a little period of not as much energy, feeling like something might be wrong, but rested and relaxed and that passed. I pray that is what is happening with you!
If I know you, you have been going, full tilt, at life since SVR.
Please let us know the results of your Up-coming Labs!
And rest a bit more!
Blessings,
Pat
If I know you, you have been going, full tilt, at life since SVR.
Please let us know the results of your Up-coming Labs!
And rest a bit more!
Blessings,
Pat
Hi there! Yeah my thyroid, heart are all good. Giving blood tomorrow so I will find out.
How are you doing today. Sent you a PM don't know if you read it yet, hope things improve with you real soon.....can be such a downer.
THX for your feedback sister..
Peace
Deb
How are you doing today. Sent you a PM don't know if you read it yet, hope things improve with you real soon.....can be such a downer.
THX for your feedback sister..
Peace
Deb
I would have a complete physical. Thyroid, heart etc etc. Drugs due have side effects. Its important that you get yourself checked out. You maybe just fine but you never know. It could also be something totally unrelated.
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