Before tx I would jog or go to the gym once or twice a week. I am beginning week 12 of tx and I have been limited to just walking at least 2 miles a day.
Vik
*LOL*
I HATE admitting I use one of those Tony Little contraptions so I call it the Gazelle walker. Same thing. Full name the Tony Little Gazelle Walker. Duuno if he was thinking about gazelle carriers when he named it . . . he's a pretty beefy guy . . .
But, for the past 2 months, haven't even been able to do that although that might be coz it's on the porch and it's been about 15 degrees here. (g)
wyn
Hello there....I was not nearly as active as you, but for over a year before I started tx I used an elliptical 3 times a week for 30-40 minutes, did weight lifting 2 days a week and on the weekends I was on my bike, walking, swimming or hiking. I was trying to get into better shape. Then while in for a booby smash and cholesterol check, found I had raised enzymes.
I have been on tx now for a little over 2 months (10th shot tonight). I can still do all these things, but not nearly at the intensity I could before. The riba has made me lose weight but I want to maintain muscle so I still do what I can. I want to lose fat, not muscle.
The Dr. said to cut it all out, but I did not listen, trusting the way I feel. When the Hgb went down I was feeling a little woosey I did lay off, but it has leveled out and things seem to be ok now. I just have to set the machine at a lower level and do less time, but I can still do it! I am afraid of losing muscle so I do my best to maintain some sort of fitness program. Walking and biking do not seem to bother me at all.
I though have been lucky in the sides area. Very little problems and was lucky to be RVR at 4 weeks. I also am lucky that being a geno 2 I only have to do this for 24 weeks.
Things though could go downhill from here, but I feel pretty good and hold out hope that things will still go smoothly. I look at this whole ordeal as a major inconvience and I try not to let it upset my life or routine.
But as all have said and it is so so true.....everyone reacts differently to tx. You just don't know until you try, but I firmly believe in positive thinking! I also believe the better shape you are in when you start the better you may tolerate the tx.
Good luck to you and keep us updated!
Pam
........Although I take pain medication, I can work and do very well and could, I suppose, exercise, if such was my habit (it's really not - but activity itself helps the joints not stiffen so much) ...............
WHAT? With all you have going on?? Oh God...do I feel like a huge wimp now!!
Very 'inactive' since week 5, but as noted, I am a wimp :{
LL
I agree with JmJm.
For almost 20 years,I had exercised 3 to 4 times per week: running, swimming, biking. My resting heart rate was, and is now, in the 40's.
After I started TX, my red blood cell count dropped about 25 per cent and, although I was able to keep on the swimming and biking, I could not do it at the pace that I had been able to pre-tx.
I never had to take procrit and never had to reduce riba, but I did not clear either.
Its a bit speculative but maybe if the riba had been more effective, my hemo levels would have dropped more, I would have had to take procrit, and I would have cleared.
The good news is that it only took a month or two after I stopped treatment to get myself back in pre tx fitness.
Bottom line is that some activity is great. It varies by individual.Tx for me was 25 weeks. For you, I hope you go the full 48 weeks. Even if you have to cut back or even stop exercising, you will be able to get yourself back to pretx fitness levels.
Good Luck
gazelle walker
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by that you mean that you had enough strength to exercise if gazelles carried you right? Because that's about how I feel right now... lol j/k
I live out doors farming,hunting,fishing and workin in the woods, the first 2 months was not an issue but then one day it took 3 hours to walk out of the bush,10 feet at a time.
The mosquitoes loved me, I couldn't even swat them away.To make it short and simple you'll be advised of your limits by feeling as though you ran a marathon from puting on your shoes. Heart rates of 150 to 160 were common before I resigned to the fact to take it easy.
After these foolish attemps every muscle and joint would scream for hours in protest of oxygen deprivation.
Allmost forgot that your body will not be able to regulate it's tempature very well and hot showers are a luxury that require assistance and 1/2 hour recoup time. Don't let this scare you just have to find your limits.
Harry
I live out doors farming,hunting,fishing and workin in the woods, the first 2 months was not an issue but then one day it took 3 hours to walk out of the bush,10 feet at a time.
The mosquitoes loved me, I couldn't even swat them away.To make it short and simple you'll be advised of your limits by feeling as though you ran a marathon from puting on your shoes. Heart rates of 150 to 160 were common before I resigned to the fact to take it easy.
After these foolish attemps every muscle and joint would scream for hours in protest of oxygen deprivation.
Allmost forgot that your body will not be able to regulate it's tempature very well and hot showers are a luxury that require assistance and 1/2 hour recoup time. Don't let this scare you just have to find your limits.
Harry
you'll just need to monitor and not push your body. Everyone is different, so have more complications. the main thing is to not push so much that you have to repair lots of tissue..because that requires lots of calories and protein, and ergo lots of digestion aka liver functions. Your body need to have time to deal with strong chemicals and your liver needs every advantage you can give it.
So, if keeping the body beautiful perfect shape takes precedence you may be doing yourself more harm than good. I think it would be best to work out for the heart benefit only, not for muscle building, only for maintanence. WHich may mean paring down to a more limited schedule. Put your treatment first.
I'm on week 58 of 72.
the first 40 weeks I was able to do light exercise - gazelle walker for 20 minutes 5 days per week, a little daily yoga, easy 5 minute weights.
The past 2 months I've been wiped out and my main goal is finishing teatment. Your body does get very weak, run down, especially if your HgB drops.
I know how awful the idea of inactivity is but you have to give your body a chance to heal.
wyntre
Some people stay active and carry on with most activities and some end up on the couch for a year. Most fall inbetween.
Most of us experience anemia to one degree or another and that means less aerobic capacity which translates into lower exercise tolerance. While some have reported running on treatment, more common would be to substitute walking.
I think the key is do what you can tolerate and don't try and push it. We did have one fellow who actually ran a couple of marathons on treatment but he also relapsed twice. Not saying the two are related, but the body will be under tremendous stress from the treatment drugs alone, so best to treat it kindly. Light or moderate exercise can do that. Pushing yourself to the limit IMO, as has become the American fashion in exercise, can be counter productive, esp on treatment.
-- Jim
Although I take pain medication, I can work and do very well and could, I suppose, exercise, if such was my habit (it's really not - but activity itself helps the joints not stiffen so much) WHEN I can stay out of SEVERE anemia.
I have had probably much worse luck than usual with anemia (don't let that scare you because my deal has been atypical) and the anemia has made me too tired to be active much of the time. When my blood count is higher though, as it was earlier this week, I can work and clean house and be active.
Posted this on another thread by accident so here it is again.
When my anemia is under control I'm able to scuba dive. In fact, being in the water and not fighting gravity feels great. Its the only time that physical activity (even just walking around the house) doesn't leave me completely exhausted, short of breath and with a racing heartl. When I'm in the water I can believe I will one day feel normal again.
JD