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High fat foods

I just started treatment today for HepC and will take my first PegIntron shot tomorrow. I am taking Ribasphere and Incivek. In my whole life I have never been told I need to take meds with "high fat content", quite the opposite. I just would like some suggestions for foods that have worked from experienced people. Thank you!
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2059648 tn?1439766665
Welcome to the forum.   Incivek (triple therapy) can be very challenging.  Stay on top of all the size effects.  Ask on this forum as they occur.  Don't leave out anything about how your feeling.  Many people on the forum have gone through triple treatment and know exactly how to deal with this sometimes complicated treatment.

Best to you
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148588 tn?1465778809
Thank you for posting links and making people aware of the resources available. Most of what is making the news are articles that talk about what a budget buster Sovaldi may be.

http://www.sfchronicle.com/health/article/1-000-hepatitis-C-pill-a-tough-miracle-to-swallow-5455230.php#/0
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Avatar universal
avocado
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1747881 tn?1546175878
I treated with incivek for 48 wks, it is no walk in the park that's for sure, to treat for 12 weeks with a MUCH less side effect profile IMO is the way to go, I would do everything I could to push for sovaldi

Have a great day
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446474 tn?1446347682
There are many people on Medicare treating with Sovaldi + ribavirin or Sovaldi + Oytsio. I am a volunteer at my transplant hospital and know many of them. As I sad no one is being denied treatment. I am sure there are others here on this forum on Medicare taking Sovaldi also. Hopefully they will post about there experience. I am on Medicare myself and they paid for my liver transplant and 9 cancer treatments. Believe my Sovaldi treatment is much less costly than paying for someone with End-Stage Liver Disease, liver cancer, liver transplantation and a lifetime of immunosuppressants, drugs, lab tests, scans and doctor visits post transplant.

I also worked for a pharmaceutical company here in the Bay Area where Gilead is based and knows how the business works.

Who gets approved for any medical treatment depends on how the request if submitted to the insurance company by the doctor requesting approval. It must be in the proper format for the insurance company to pay and the insurance company will have to state a reason why they won't pay.

Is this doctor a gastroenterologist who has treated other patients with the newest hepatitis C treatments (meaning Sovaldi)? If not, that is the problem. Either way Gilead should be able to help you get the treatment.

Call Gilead and ask them for help with your Medicare here is there info and how they will help you get Sovaldi. They are here in the Bay Area west coast time so you have plenty of time to call them no matter where you are in the county.

Support Path 1-855-769-7284) between 9 a.m. - 8 p.m. EST

"U.S. Patient Assistance Program

Gilead is committed to ensuring that people with hepatitis C can access Sovaldi and has launched Support Path™ (www.MySupportPath.com) to provide assistance to patients who are uninsured, underinsured or who need financial assistance to pay for the medicine. The program consists of an integrated offering of support services for patients and providers, including:

Access to dedicated case managers to help patients and their providers with insurance-related needs, including identifying alternative coverage options such as federally-insured programs (e.g., Medicaid, Medicare) and health exchanges.

Education and support, including a 24/7 nursing support service line and the ability to schedule an onsite visit from a clinical educator.

The Sovaldi Co-pay Coupon Program, which provides co-pay assistance for eligible patients with private insurance who need assistance paying for out-of-pocket medication costs. Most patients will pay no more than $5 per co-pay. Co-pay assistance can also be applied toward deductibles and co-insurance obligations.

Gilead will provide support to the Patient Access Network (PAN) Foundation, an independent non-profit organization that provides assistance for eligible federally-insured and privately-insured patients who need help covering out-of-pocket medication costs.

The Support Path Patient Assistance Program will provide Sovaldi at no charge for eligible patients with no other insurance options.
Information about how to apply for any of these forms of assistance can be found at www.MySupportPath.com or by calling 1-855-7MyPath (1-855-769-7284) between 9 a.m. - 8 p.m. EST."

- See more at:
http://www.gilead.com/news/press-releases/2013/12/us-food-and-drug-administration-approves-gileads-sovaldi-sofosbuvir-for-the-treatment-of-chronic-hepatitis-c#sthash.QJclnAq8.dpuf

Hector
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Avatar universal
FYI.   Someone posted this on another thread for financial assistance.

http://www.panfoundation.org
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317787 tn?1473358451
An article I found about Sovaldi.  One good thing is that it is getting people talking about HCV. I know my family has been educated recently by these discussions.
http://www.kaiserhealthnews.org/stories/2014/may/05/sovaldi-who-should-get-pricey-drug.aspx?referrer=search

Hang in there Sandy,

Truredhead, good for you for getting another doctor.  I have seen many stories about people being turned down and then their doctors fight for them to get the new tx.  It is frustrating when you have a doctor that won't at least try to find more information.

GrammyA was able to get 100% assistance from the drug company because her doc went the extra mile for her.

Good luck to both of you
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Avatar universal
I am on medicare and I have a prescription supplement with Humana. They approve solvaldi, you just have to have the doctor get an authorization in which my doc does not want to fool with, he told me I had to do 6 months injections in which I found out that is not the recommended treatment now by a smart guy on this very forum. It is true there is shorter treatment for you. I am having to change doctors, the least time and best treatment is what I want.
Helpful - 0
317787 tn?1473358451
I realize you are starting tx right now but if you have time to think about it and your liver is healthy enough to wait. Here is a place you can look at for financial assistance.
I have been looking up the Sovaldi and I can see where people who got the medications in January did get it paid for.  As time went on and the sticker shock hit, many said they would not pay.  They would require people to try something else first.  It does not seem fair.  Many doctors have a pealed the decision and have won medication for their patients.  You can also search for more information by clicking on the magnifying glass at the top of the page.  There are others who were turned down, appealed and got on it or got help from the drug company.
There are many on here who can help you through the tx.  

http://www.hepatitiscentral.com/sovaldi_sofosbuvir_patient_assistance.html
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317787 tn?1473358451
While there is financial help like Nan said I did read that there are 11 states that are not going to pay for Sovaldi this year.  They say that their budgets were done before the Sovaldi was approved.
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Avatar universal
I am a little confused. Your doctor told you that Medicare approved a treatment that is not recommended by the AASLD but will not pay for a recommended treatment?

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Avatar universal
"Company's" in my post should say "co-pays"
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317787 tn?1473358451
Hi here is a small list, I will try to find more :)

Taylor Ham - 6 gms/slice (you may know it as pork roll, if you are south of New Jersey!)
Egg – 5gms
American cheese – 5 grms/slice
Bran Muffin – 5 grms
Frozen Waffles – 3.5 grms each
Pancakes – 7.6, (4)
Biscuit – 5.1 grms
Granola – 33 grms / cup
Cream Cheese – 10 grms/ounce
Milk Chocolate – 10 grms/ounce
Cheeseburger 4 oz – 30 grms
Potato salad – 10 grms/ ½ cup (eggs Mayo type)
Hot Dog – 18 grms
Yogurt – 7.4 grms, 1 cup
Sausage Links – ?
Eskimo Ice cream – 17 grms
Nature Valley Roasted nut Crunch – 1 bar – 13grms
Peanut Butter – 8 grms/tablespoon
Helpful - 0
Avatar universal
My husband is on sovaldi + Ribavirin treatment (week 12 of 24 weeks). His meds are being paid for in full by his Medicare Advantage Plan. Company's are being paid by NYS extra help program.  I would have the doctor appeal the decision.
Also here is some additional info possible for financial help available.
http://www.liverfoundation.org/downloads/alf_download_892.pdf
Check out Sovaldi website for their patient assistance program.

Good luck
Nan
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317787 tn?1473358451
Hello there, I did the Incivek, there are many things to eat, I will find the lists on here that were suggestions from others when they were treating with it.
One thing that I found worked well for me was apples with 3 table spoons of peanut butter.  I ate that quite a bit, there are many other things, but one thing I remember was that it should be something solid to make it easier for your body to handle.
I will find and come back
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Avatar universal
I am on Medicare. They would not approve Solvaldi. I have not had the injection yet. I will get that tonight. Any suggestions?
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Avatar universal
Sandy
Hector is absolutely right!  But you don't have to take our word for it. Just read this report or better still suggest that your doctor read the AASLD report!

http://www.hcvguidelines.org/fullreport

The treatment you are starting has many side effects and will be very hard on you.  Check out the Hep C post treatment issues community and you will see what people who got through your treatment "successfully" are still dealing with a year or more after stopping treatment.
http://www.medhelp.org/forums/Hepatitis-C-Post-Treatment-Issues/show/1670

As Hector said, there are easier and shorter treatments now with Sovaldi you can go on. I would move on to another doctor who knows this and will start you on the proper treatment for you.

Good luck to you.
Nan
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446474 tn?1446347682
1. No one pays $1000 per pill.
2. Never heard of anyone of any one that did not get Sovaldi one way or another and was force to treat with inferior treatments.
3. There is really no difference in cost.
(Incivek regimen involves taking two tablets three times a day for 12 weeks at a cost of $49,200.  Interferon and ribavirin treatment—approximately $30,000 for 48 weeks) And of course no one pays this either. 10.24.2011 figures.
http://www.hemaware.org/story/costs-and-coverage-new-hepatitis-c-drugs
4. The protocol for proper hepatitis C treatment is not ambiguous...
"The following regimens are NOT recommended for treatment-naive patients with HCV genotype 1.
PEG/RBV with or without telaprevir or boceprevir for 24 to 48 weeks"

AASLD - INITIAL TREATMENT OF HCV INFECTION IN PATIENTS STARTING TREATMENT
http://www.hcvguidelines.org/full-report/initial-treatment-hcv-infection-patients-starting-treatment
-------------------------------------------------------------------------------------------------------
The following regimens are NOT recommended for treatment-naive patients with HCV genotype 1.

"PEG/RBV with or without telaprevir or boceprevir for 24 to 48 weeks."

"Although regimens of PEG/RBV plus telaprevir or boceprevir for 24 to 48 weeks using RGT are also FDA approved, they are markedly inferior to the preferred and alternative regimens. These regimens are associated with their higher rates of serious adverse events (eg, anemia and rash), longer treatment duration, high pill burden, numerous drug-drug interactions, frequency of dosing, intensity of monitoring for continuation and stopping of therapy, and the requirement to be taken with food or with high-fat meals."

"PEG/RBV for 48 weeks for treatment-naive subjects with HCV genotype 1 has been superseded by treatments incorporating DAAs and should not be used."

Sovaldi in one combination or other is "the" treatment for hepatitis C currently.

Hector
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148588 tn?1465778809
Hard to argue the fact that Sovaldi is the latest and greatest, but at $1,000/pill there might be insurance, $$$, accessibility reasons why Sandy's doc Rxd the way he did. We would all tx with the best if we could - some of us tx with what/who is available.
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446474 tn?1446347682
Sorry for the countless typos. I'll blame it on my transplant meds.

;-)
Hector
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446474 tn?1446347682
Hi Sandy,

This is a rhetorical question...
Why would any doctor treat you with a treatment that has more and more serious side effects than any known treatment for hepatitis C. Take 2 - 4 times longer to treat with than current treatments (12 weeks vs 48 weeks) and has a lower cure rate than current treatment.

Do you really want to deal with what could be some serious effects for 11 months when you can treat with the new meds with no infections and have about a 90% cure rate vs 79%.

Some may things this is non of my business coming between you and your doctor but I have to tell you that the treatment you are starting you shouldn't be treating with. And that fat intake along with this treat is ancient history in the world of hep C treatment today.

I am not blaming you. You are just trying to treat your hep C as you should. You are doing the right thing. Unfortunately your doctor who might be a nice person is ignorant about proper current treatment for hepatitis C in 2014. I am not saying they are a bad person or anything like that just that there have been huge changes in the treatment of hepatitis C in the last few years. While this treatment you are taking was a breakthrough 3 years ago, it is now considered old and outdated and no one now or in the future is ever going to take it again.

Forget what I think. What does the American Association for the Study of Liver Disease say...(these are the people, the specialist doctors and their staff that lead the field in the treatment of hepatitis C and liver disease)
____________________________________________________
"Recommended regimen for treatment-naive patients with HCV genotype 1 who are eligible to receive IFN.

Daily sofosbuvir (400 mg) and weight-based RBV (1000 mg [75 kg]) plus weekly PEG for 12 weeks is recommended for IFN-eligible persons with HCV genotype 1 infection, regardless of subtype."

"Recommended regimen for treatment-naive patients with HCV genotype 1 who are not eligible to receive IFN.

Daily sofosbuvir (400 mg) plus simeprevir (150 mg), with or without weight-based RBV (1000 mg [75 kg] for 12 weeks is recommended for IFN-ineligible patients with HCV genotype 1 infection, regardless of subtype."
_______________________________________________________
Save yourself a lot of time and needless suffering and find a doctor who up on the latest treatments for hepatitis C. A gastroenterologist who has experience treating hep C or a hepatologist (liver specialist) will treat you with some combination of Sovaldi, the new wonder drug for hepatitis C.

Don't be one of the last patients treating with this very toxic treatment. Just look on this or any hepatitis C forum, NOBODY starting treatment for hepatitis C this year is treating with that old treatment because there are much better treatments now then there were in 3 years ago when that treatment came to market.
====================================================
TO ALL: Can anybody else here imagine doing 48 weeks of outdated treatment and failing SVR and then having to start again with Sovaldi and do 12 week all over again? What a nightmare. Not something we should ignore or allow to happen in my opinion. Just because there are clueless doctors out there does mean we should encourage ignorance. I don't want to hear that Sandy is anemic in a few weeks and needs procrit or ribavirin reductions never mind being to ill to continue her daily life. Those days of having to endure that are almost gone (12 weeks max and not with all of the additional side effect of Incivek) and thankfully so.
==================================================
Sandy I know this must come as a shock because you have done everything right and it is hard to tell your doctor you don't want to do what they recommend. But please save yourself a lot of needless suffering and check out what I am saying at least. You can always stop the treatment. But the sooner you stop the better as you could in time build some resistance which it is not  good to do because right now you have about a 90% or better chance of cure if you treat with the latest Solvaldi treatments.

Best of luck to you!
Hector

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443922 tn?1374157016
I finally cured with Incivek.  The high fat content I can remember, i used Coconut Oil, avocado and lots of Klondike bars.  There are more...
I know you did not ask, but also get a cool mist humidifier as the riba dry's you out.  Lemon Drops are crucial to get rid of the taste, that you might get.
I treated 130 weeks total to get my SVR.  Stay on this site and read all you can.  Use the Search MedHelp to get answers from previous threads regarding incivek.  Good Luck with TX
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1747881 tn?1546175878
Incivek needs the fat to be absorbed properly

Effects of Food on Oral Absorption

The systemic exposure (AUC) to telaprevir was increased by 237% when telaprevir was administered with a standard fat meal (containing 533 kcal and 21 g fat) compared to when telaprevir was administered under fasting conditions. In addition, the type of meal significantly affects exposure to telaprevir. Relative to fasting, when telaprevir was administered with a low-fat meal (249 kcal, 3.6 g fat) and a high-fat meal (928 kcal, 56 g fat), the systemic exposure (AUC) to telaprevir was increased by approximately 117% and 330%, respectively. Doses of Incivek were administered within 30 minutes of completing a meal or snack containing approximately 20 grams of fat in the Phase 3 trials. Therefore, Incivek should always be taken with food (not low fat)

How should I take Incivek?

Eat a meal or snack that contains about 20 grams of fat, within 30 minutes before you take each dose of Incivek. Talk to your healthcare provider about examples of foods that you can eat that contain about 20 grams of fat. Always take Incivek with food.

http://www.drugs.com/pro/incivek.html

Follow the link below for suggestions on high fat foods

http://www.medhelp.org/posts/Hepatitis-C/20-grams-of-FAT/show/1844093

Have a great day
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