Aa
New Hope for Kidney, Liver and Lung Cancer
Hello Everyone! stop by to read every once and awhile, and am so happy to hear that many of you are getting much better, svr'ed, etc...anyway, just want to post this on some medical sites, and I know some of you are suffering, or know someone who is suffering from liver cancer, etc...anyway, I know some people who are...just was watching Extra (yeah, I'm busted, lol) and I saw this piece about this Dr. Julien at Cedar's Sinai in Los Angeles who has a revolutionary new treatment for these cancers, as long as the tumors are relatively small. The treatment takes about 12 minutes and the recovery time is about an hour...(you'd think they would of thought of this before, but maybe it was too obvious) here is the header...
Dr. Peter Julien describes Radiofrequency Ablation (RFA), the minimally-invasive procedure used to treat small liver, lung, kidney and bone tumors.
Here is the website...http://extratv.warnerbros.com/2009/03/0307_dr_julien_raw.php
Just thought I'd pass this on to all who would be interested...sounds very promising! Peace and happiness to all!
Dr. Peter Julien describes Radiofrequency Ablation (RFA), the minimally-invasive procedure used to treat small liver, lung, kidney and bone tumors.
Here is the website...http://extratv.warnerbros.com/2009/03/0307_dr_julien_raw.php
Just thought I'd pass this on to all who would be interested...sounds very promising! Peace and happiness to all!
HEY, I THOUGHT I WAS FRIENDS WITH THAT DUDE, WHY DIDN'T HE MENTION ME??? LOL..LOL
Hi 4CG. Last I heard, you was starting tx. Bummer that you had to quit but at least it was early on.
I also have cronic depression but it's mostly under control with meds. When I was on tx, I had a few bouts with Dark depression so I know where you are coming from. It took over a year before my doc found a med that worked for me but the darn tx sx sure gave the med a run for the money.
Keep trying to find a med that's good for you and then go after that dragon again. I sure miss you around here.
Dana
Hi 4CG. Last I heard, you was starting tx. Bummer that you had to quit but at least it was early on.
I also have cronic depression but it's mostly under control with meds. When I was on tx, I had a few bouts with Dark depression so I know where you are coming from. It took over a year before my doc found a med that worked for me but the darn tx sx sure gave the med a run for the money.
Keep trying to find a med that's good for you and then go after that dragon again. I sure miss you around here.
Dana
Child...youre my hero...Comeagain..your post really touched me...really did...Spacey...never knew how much I'd miss all your exclamation points! Scratchy...so glad you've gotten some use out of 7-11 Breathing! Don't you love being out in sea in that little boat?....Gauf...don't pull your dress up over your head just yet...I ain't talking about no stinkin' politics! lol...thanks guys...Sorry...I know this thread has turned into something that belongs on the other side...just wanted to check in with you guys!
Nice to see you!!!!!
The good news is that you responded so well -- you should have no problems to get rid of this monster with good AtiD drugs!
All the best!
...again, what a surprise!
The good news is that you responded so well -- you should have no problems to get rid of this monster with good AtiD drugs!
All the best!
...again, what a surprise!
Angie, Angie, Angie, (sigh). You really should have been around before the election ya know? So boring without you. ;>)
I use that 7-11 hypnosis download you turned me on to all the time.
Sometimes when I can't sleep I do the 7in 11out count and it's like counting sheep. Thank you very much!
Sometimes when I can't sleep I do the 7in 11out count and it's like counting sheep. Thank you very much!
Hi forsee hope your doing ok, sorry to her about the interuption in treatment.
Hopefullly thats only what it is, an interruption
I can hear your train coming with new meds and its faster and more likely to reach the SVR station than the old ones.
Even with the new meds its nice to know one is responding to interferon .
Because as you know this treatment is so tuff for some of us that doing it and know for sure your gonna clear is a challenge enough, but have big ods not to clear and still has to go though it, well you can just imagen.
Thx for sharing about your depression issue.
I know a woman that descriped exactly the same type as you have and she says she bi-polar aswell but not the lithium kind.
Shes on ads, been for many years.
Unfortunately doesnt seems to work fully, because shes also do self medication on alcohol which I only think willl do her more harm in the long run.
I will show her your description of the diseas, illnes dilemma. I really don´t know what to call it.
Sure it will help her though always nice to know one is not alone!
Be well and good luck with everything!
ca
Hopefullly thats only what it is, an interruption
I can hear your train coming with new meds and its faster and more likely to reach the SVR station than the old ones.
Even with the new meds its nice to know one is responding to interferon .
Because as you know this treatment is so tuff for some of us that doing it and know for sure your gonna clear is a challenge enough, but have big ods not to clear and still has to go though it, well you can just imagen.
Thx for sharing about your depression issue.
I know a woman that descriped exactly the same type as you have and she says she bi-polar aswell but not the lithium kind.
Shes on ads, been for many years.
Unfortunately doesnt seems to work fully, because shes also do self medication on alcohol which I only think willl do her more harm in the long run.
I will show her your description of the diseas, illnes dilemma. I really don´t know what to call it.
Sure it will help her though always nice to know one is not alone!
Be well and good luck with everything!
ca
Glad to see you back on here!! I am with you on some of those meds being worse for you!! Take care!!!!!!!!!!!!
Hello stranger. Good to see your name pop up. Sorry about the pony ride but better days are coming I'm sure. Hang in there.
Teuf
Teuf
thanks so much for your responses...I haven't been following this stuff too much...i guess I did for years and I needed a break...as far as the psych meds,
Trish: I know what you mean about having to do a lot of trial and error with antiDs and psych meds (for some unfortunate people anyway)...the people who are able to find an antiD that works for them the first try out are really lucky in my book...there is a depression forum here that I go to that is pretty good, I go there sometimes under another handle:) there are, I guess, many like me who have to try so many things before they can find the right one or recipe...
and then some of these people who suffer w/ depression are only helped a little while by certain meds, then have to change up after the it becomes ineffective, or up the dose, etc...or do cocktails of different things...or aren't helped by any of the meds, and they have to do actual ECT and other methodologies...electro convulsive treatment...it's extremely difficult for some people and my heart goes out to them...cause I know what severe depression is....
Merry: with me it's kind of like bi-polar, though fortunately for me it's periodic, and I don't go through extreme mania...but I'll be toodlin' down the road, happy as a Jaybird...and all of a sudden the blue-meanies come over me, you can tell it's chemical cause it comes out of nowhere and it's a big, dark cloud...and it's so intense sometimes, I've had to pull over my car and phone someone to pick me up...this can last for hours, sometimes days, sometimes weeks...horribly, sometimes months...then I'm okay again (well, as okay as I get, lol) and I know menopause and hep ain't making it any better....some of these meds I've tried have actually made the anxiety and depression a lot worse for me...so that's why it's such a scary undertaking for me...but I'm doing it...you live your life right? I'm very hopeful that I will find the right med(s)...
Thanks so much Bill, MO, The Florida Man, New York Woman, Orleans, The Guy Who Gets Things Done, Salin' Man, Sweet Bug Woman, The Woman Who Hears Epiphanies..Deb, Scratchy (what's that wink for?, why I oughta) Trish, everyone...sorry if I left anyone out...this whole board provides a great service...it's nice to come back here and have anyone remember me..
Trish: I know what you mean about having to do a lot of trial and error with antiDs and psych meds (for some unfortunate people anyway)...the people who are able to find an antiD that works for them the first try out are really lucky in my book...there is a depression forum here that I go to that is pretty good, I go there sometimes under another handle:) there are, I guess, many like me who have to try so many things before they can find the right one or recipe...
and then some of these people who suffer w/ depression are only helped a little while by certain meds, then have to change up after the it becomes ineffective, or up the dose, etc...or do cocktails of different things...or aren't helped by any of the meds, and they have to do actual ECT and other methodologies...electro convulsive treatment...it's extremely difficult for some people and my heart goes out to them...cause I know what severe depression is....
Merry: with me it's kind of like bi-polar, though fortunately for me it's periodic, and I don't go through extreme mania...but I'll be toodlin' down the road, happy as a Jaybird...and all of a sudden the blue-meanies come over me, you can tell it's chemical cause it comes out of nowhere and it's a big, dark cloud...and it's so intense sometimes, I've had to pull over my car and phone someone to pick me up...this can last for hours, sometimes days, sometimes weeks...horribly, sometimes months...then I'm okay again (well, as okay as I get, lol) and I know menopause and hep ain't making it any better....some of these meds I've tried have actually made the anxiety and depression a lot worse for me...so that's why it's such a scary undertaking for me...but I'm doing it...you live your life right? I'm very hopeful that I will find the right med(s)...
Thanks so much Bill, MO, The Florida Man, New York Woman, Orleans, The Guy Who Gets Things Done, Salin' Man, Sweet Bug Woman, The Woman Who Hears Epiphanies..Deb, Scratchy (what's that wink for?, why I oughta) Trish, everyone...sorry if I left anyone out...this whole board provides a great service...it's nice to come back here and have anyone remember me..
Hiya 4C,
It's good to see your post and read your words. A bit of healing there all in itself.
I'm glad your little test run yielded good information for you without causing too much damage. Took my girlfriend years to find the right meds for her depression but when she did, the changes were noticeable. Couldn't say it any better than Willing as to what your options are so basically.. what he said. :) Boceprevir and Telaprevir look good and there are a couple polymerase inhibitors (not referring to R1626 - still waiting for the dust to settle on that one) that are coming along and with Alinia and a few other things, your options will be better and less damaging.
You certainly bring a blast of sunshine with you. You'll have to drop in more often.
Take good care of yourself.
Trish
It's good to see your post and read your words. A bit of healing there all in itself.
I'm glad your little test run yielded good information for you without causing too much damage. Took my girlfriend years to find the right meds for her depression but when she did, the changes were noticeable. Couldn't say it any better than Willing as to what your options are so basically.. what he said. :) Boceprevir and Telaprevir look good and there are a couple polymerase inhibitors (not referring to R1626 - still waiting for the dust to settle on that one) that are coming along and with Alinia and a few other things, your options will be better and less damaging.
You certainly bring a blast of sunshine with you. You'll have to drop in more often.
Take good care of yourself.
Trish
well NOW the big mystery is solved...kinda like knowing a tornadoe is about to drop down on you...you were really foreseeing what was coming... kinda makes ya go hummm
we can all relate....or as I now have coined "what's left of my cheesegratered brain:"
this tx gives a whole new meaning to SIDE effects...LOL....
as to former stuff you never offended me...but politics is just gonna bring out the worst in a chemo-roid raged hepper forum.....
or shall we say, "excused me if my depression just stepped on your suicidal ideation"
giggle......might lighten things up when each others toes feel ouchy.
say theres a great clinical options tutorial on treating depression while on tx.
walk through it and you'll see how your doc should handle it....and get to test your knowledge base too...grin...
I'll find you the link but you have to sign up....free.
glad to see you back, no matter the time lag, and sorry about you trouble with this.
My mom was bipolar...and now I finally understand her insanity and suicide...this treatment did that for me...made me so depressed and crazy I can actually see now how she could have done what she did.
They say something good comes of everything....its true.
I'm on remeron....that may not be enough for you, but it took the worst part away.
However I'm also on Ativan for the shakes and axiety the riba gave me.
.o5 mg with each riba dose. I was shaking so bad I'd wake up with my whole body in tremors....so it's taken some tranks and some AD's to keep me from mu smith and wesson.
Glad to hear you are going to deal with it though...I know it's been a struggle coming to for you.
mb glad yer back!!!
we can all relate....or as I now have coined "what's left of my cheesegratered brain:"
this tx gives a whole new meaning to SIDE effects...LOL....
as to former stuff you never offended me...but politics is just gonna bring out the worst in a chemo-roid raged hepper forum.....
or shall we say, "excused me if my depression just stepped on your suicidal ideation"
giggle......might lighten things up when each others toes feel ouchy.
say theres a great clinical options tutorial on treating depression while on tx.
walk through it and you'll see how your doc should handle it....and get to test your knowledge base too...grin...
I'll find you the link but you have to sign up....free.
glad to see you back, no matter the time lag, and sorry about you trouble with this.
My mom was bipolar...and now I finally understand her insanity and suicide...this treatment did that for me...made me so depressed and crazy I can actually see now how she could have done what she did.
They say something good comes of everything....its true.
I'm on remeron....that may not be enough for you, but it took the worst part away.
However I'm also on Ativan for the shakes and axiety the riba gave me.
.o5 mg with each riba dose. I was shaking so bad I'd wake up with my whole body in tremors....so it's taken some tranks and some AD's to keep me from mu smith and wesson.
Glad to hear you are going to deal with it though...I know it's been a struggle coming to for you.
mb glad yer back!!!
So good to see all of you! Willing, ghost threads huh? wow...hope some other of you guys are on those threads with me...don't want to be all alone on ghost threads, too Twilight Zone for me...lol....anyway, you're one of the eggheads on this board (endearingly said of course) when do you think the PI's will be available? Your best guesstimate? Guess Vertex is the farthest along...
I've heard that once they are passed by the FDA that the relapsers will get them first, which is understandable, but that doesn't mean that you're own private doc can't give you a script for them if they are passed, whenever? Am I right? Guess all most of us can do is guess based on the facts at hand...just some of us can give more educated takes than others, that's why I ask...I've just been trying to live my life without too much thinking on hepatitis for now, and find out if I can find something for depression that agrees...but I don't want to go into denial either, and I want to know what's out there...
I've heard that once they are passed by the FDA that the relapsers will get them first, which is understandable, but that doesn't mean that you're own private doc can't give you a script for them if they are passed, whenever? Am I right? Guess all most of us can do is guess based on the facts at hand...just some of us can give more educated takes than others, that's why I ask...I've just been trying to live my life without too much thinking on hepatitis for now, and find out if I can find something for depression that agrees...but I don't want to go into denial either, and I want to know what's out there...
So great to see you posting, I'm always looking for you the boards! So sorry to hear about your recent tx experience. I understand the depression side effects as I had the same experience on my first go-round, those particular side effects are definitely not to be underestimated.
But how great that you responded so well in the first 2 weeks! It means you will be able to treat once you find the right anti-d for you and I wish you all the best with that.
Take care, Epi :)
But how great that you responded so well in the first 2 weeks! It means you will be able to treat once you find the right anti-d for you and I wish you all the best with that.
Take care, Epi :)
wow! I knew all those wakes were premature.. it's great to hear from ya again. (I had to check the date though, these 'ghost' threads you started years ago keep coming up).
Hey two weeks ain't bad for a start - and knowing you're an ifn responder is a valuable bit of information in planning your next attack. In a year or so the PIs should start becoming available and depending on the phase III data it might make sense to jump back in with lower dose ifn, a PI, high rbv and alinia - with a long ad lead-in. The depression can do a thorough job of hollowing you out and not leaving much behind ...
Hey two weeks ain't bad for a start - and knowing you're an ifn responder is a valuable bit of information in planning your next attack. In a year or so the PIs should start becoming available and depending on the phase III data it might make sense to jump back in with lower dose ifn, a PI, high rbv and alinia - with a long ad lead-in. The depression can do a thorough job of hollowing you out and not leaving much behind ...
Re: "surgery is a better way to go",what I got out of the articles I started reading is that this is the ideal option for those who can't tolerate surgery or have tumors to difficult to remove and just want to shrink the size, or have a difficult spot to reach with the conventional tools. I'm not claiming to be an expert, just interpreting what I read. (it's not reality, just my perspective)
Take care, thanks for the tx update....
Hugs,
Bug
Take care, thanks for the tx update....
Hugs,
Bug
So glad to see you all too! I would name names, but then I'd be afraid I'd leave someone out...I remember when people would come back who hadn't posted in a long time, and they'd leave my name out...and that little (or big, as the case may be) ego of mine would raise it's ugly head up, lol....HEY, I THOUGHT I WAS FRIENDS WITH THAT DUDE, WHY DIDN'T HE MENTION ME??? LOL..LOL...
I come back to see and read the progress of you all...and I get a big smile when I see that someone has beat this ugly little critter...and like everyone else, I feel so bad when someone hasn't beat it...yet...and I get so much out of the stoic bravery I see here all the time, over the years, and with the new people too....
I don't know about everyone else, but I copy certain posts I've seen here over the years...and I read them to give me strength when I'm feeling down...posts written by people I didn't always get along with too (because petty feuds do come up now and then, but, of course, over time, you forget how they even started...:) I remember I got into it with Alagirl at first...we really went at it...lol...maybe cause we're too much alike in some ways? I dunno...but now we're friends...I have nothing but the utmost regard for everybody in this community...cause they have the some of the same struggles that I do...and I'm sorry if I ever offended anybody when talking about politics in the "dreaded political threads" lol....I can kind of see that probably wasn't a good idea now..though at times I found those threads very interesting and informative...I've always been interested in the way other people think...but people hurting and on treatment? Perhaps I should of been more sensitive...
As for my journey...well, sit down before you hear this, but I finally tried treatment...lol....trouble was, I knew I'd have problems with depression because I couldn't find any anti-Ds that agreed with me, so I went without them...I had heard of others who had tried, and succeeded with treatment, who didn't take antiDs at all...and I was hoping against hope that I could be one of those people, if I really tried...because as some of you know, I've been suffering from clinical depression since I was about, what? about 12? so that was a big part of why I was so hesitant...anywho....
I managed to stay on for about a big 2 weeks or so (I know, bring out the trombones)..sorry to say this...but I had to jump off the pony...the depression I was feeling was unlike anything I'd ever felt before, unless someone's been through it, it's difficult to describe, sure some of you can relate...I hesitate to even say this much, because I don't want to discourage anybody...you have to factor in that I had clinical depression to begin with, and I was on NO ANTI'DS...there are many people who seem to be able to take treatment even without antiDs...and many people who are able to take treatment with antiDs...so don't let my story scare you off...
Look at all the good people here who have come through it (wasn't easy in most cases, but as NYgirl's phraseology insists...it is *doable*....) anyway...and they are SVR now, and feeling really good..they prove this is achievable...
Doc said to get off and get with their major psychiatrist at their liver clinic, who works with liver patients (something I should of done to begin with - I see now, even though my own psychiatrist is pretty well regarded) and find something that I can take...BEFOREHAND...I guess I should of tried everything first, when I only tried about 4 or 5 SSRIs and let myself get discouraged...let's see...didn't try effexor...and there are a whole class of other antiDs that I didn't try...and I haven't tried the cocktails, like abilify.(?) so I do have options...I hope anyway...
Anyway, good thing was that my VL dropped really to almost nothing within two weeks (it wasn't even a half million to begin with though)...and the physical stuff didn't get me that much like I thought it would (well, it was just a short time..) Just the depression thing, lordy, lordy....so here I go trying some more things...(Pssst...when I sound like a vegetable, please remember you knew me when....and if there are any American Indians out there, don't suffocate me with a pillow...lol...just a little gallows humor....)
Maybe I can find something that will work better for my depression...funny thing is, when I'm not on that...the natural stuff I do works pretty well, a little exercise, meditation, cognitive therapy, praying, etc...but treatment saw that stuff and said - Eh....you're going to have to do something a little better than that!!!!...at least in my case...so here I go...
I wish everybody here only the best...and thanks to all the old timers who still come here and help the new people...you have big, beautiful hearts...
Jennypenny: I don't really have that strong of a medical background, fact is, I don't have any medical background lol...so I couldn't speak to your point that surgery is the better way to go as it applies to this therapy...from what I read, it's a case by case basis thing...maybe someone who knows more then I do could speak to this, because I sure can't...anyway - just posted this because the doctor who performs this had said in the video that this treatment would do well for a lot of people, only that many docs don't know about it...(heard that before) so I thought I'd just put it out so people could read up on it...if it applies to something they are interested in...that's all...hope youre well...
I come back to see and read the progress of you all...and I get a big smile when I see that someone has beat this ugly little critter...and like everyone else, I feel so bad when someone hasn't beat it...yet...and I get so much out of the stoic bravery I see here all the time, over the years, and with the new people too....
I don't know about everyone else, but I copy certain posts I've seen here over the years...and I read them to give me strength when I'm feeling down...posts written by people I didn't always get along with too (because petty feuds do come up now and then, but, of course, over time, you forget how they even started...:) I remember I got into it with Alagirl at first...we really went at it...lol...maybe cause we're too much alike in some ways? I dunno...but now we're friends...I have nothing but the utmost regard for everybody in this community...cause they have the some of the same struggles that I do...and I'm sorry if I ever offended anybody when talking about politics in the "dreaded political threads" lol....I can kind of see that probably wasn't a good idea now..though at times I found those threads very interesting and informative...I've always been interested in the way other people think...but people hurting and on treatment? Perhaps I should of been more sensitive...
As for my journey...well, sit down before you hear this, but I finally tried treatment...lol....trouble was, I knew I'd have problems with depression because I couldn't find any anti-Ds that agreed with me, so I went without them...I had heard of others who had tried, and succeeded with treatment, who didn't take antiDs at all...and I was hoping against hope that I could be one of those people, if I really tried...because as some of you know, I've been suffering from clinical depression since I was about, what? about 12? so that was a big part of why I was so hesitant...anywho....
I managed to stay on for about a big 2 weeks or so (I know, bring out the trombones)..sorry to say this...but I had to jump off the pony...the depression I was feeling was unlike anything I'd ever felt before, unless someone's been through it, it's difficult to describe, sure some of you can relate...I hesitate to even say this much, because I don't want to discourage anybody...you have to factor in that I had clinical depression to begin with, and I was on NO ANTI'DS...there are many people who seem to be able to take treatment even without antiDs...and many people who are able to take treatment with antiDs...so don't let my story scare you off...
Look at all the good people here who have come through it (wasn't easy in most cases, but as NYgirl's phraseology insists...it is *doable*....) anyway...and they are SVR now, and feeling really good..they prove this is achievable...
Doc said to get off and get with their major psychiatrist at their liver clinic, who works with liver patients (something I should of done to begin with - I see now, even though my own psychiatrist is pretty well regarded) and find something that I can take...BEFOREHAND...I guess I should of tried everything first, when I only tried about 4 or 5 SSRIs and let myself get discouraged...let's see...didn't try effexor...and there are a whole class of other antiDs that I didn't try...and I haven't tried the cocktails, like abilify.(?) so I do have options...I hope anyway...
Anyway, good thing was that my VL dropped really to almost nothing within two weeks (it wasn't even a half million to begin with though)...and the physical stuff didn't get me that much like I thought it would (well, it was just a short time..) Just the depression thing, lordy, lordy....so here I go trying some more things...(Pssst...when I sound like a vegetable, please remember you knew me when....and if there are any American Indians out there, don't suffocate me with a pillow...lol...just a little gallows humor....)
Maybe I can find something that will work better for my depression...funny thing is, when I'm not on that...the natural stuff I do works pretty well, a little exercise, meditation, cognitive therapy, praying, etc...but treatment saw that stuff and said - Eh....you're going to have to do something a little better than that!!!!...at least in my case...so here I go...
I wish everybody here only the best...and thanks to all the old timers who still come here and help the new people...you have big, beautiful hearts...
Jennypenny: I don't really have that strong of a medical background, fact is, I don't have any medical background lol...so I couldn't speak to your point that surgery is the better way to go as it applies to this therapy...from what I read, it's a case by case basis thing...maybe someone who knows more then I do could speak to this, because I sure can't...anyway - just posted this because the doctor who performs this had said in the video that this treatment would do well for a lot of people, only that many docs don't know about it...(heard that before) so I thought I'd just put it out so people could read up on it...if it applies to something they are interested in...that's all...hope youre well...
Amazing!
Both the news and the fact that you can turn the medical side of the forum into the social side jsut by dropping in! You are so-o-o missed.
I had an ablation procedure done, don't believe it was radio-frequency. When I googled this procedure, I found out JennyPenny was right, it has been around for awhile. That makes it sound easier to attain, and safer than something new or newly approved.
It's used for a large variety of treatments, surprised no one's heard more about it.
Thanks for the info, hope you're doing well.
Hugs,
Bug
Both the news and the fact that you can turn the medical side of the forum into the social side jsut by dropping in! You are so-o-o missed.
I had an ablation procedure done, don't believe it was radio-frequency. When I googled this procedure, I found out JennyPenny was right, it has been around for awhile. That makes it sound easier to attain, and safer than something new or newly approved.
It's used for a large variety of treatments, surprised no one's heard more about it.
Thanks for the info, hope you're doing well.
Hugs,
Bug
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