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"no respect for life" vs treatments

Hello there,
     I understand that people here get upset when they hear that victims of hepC abuse alcohol. Understandable so, as they show
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Avatar universal
Just to show I live by my words, washed down some Tandoori Chicken last night with a cold one (that's ONE in like "moderation" :) ) . BTW alcohol affects me less (actually not at all) since treatment, and my doc says probably because my liver metabolizes it better -- but the Tandoori Chicken was another story.

While my GERD (reflux) is like 90% better (no PPI's thank you sir), this is the second time I woke up at night with hearburn after an Indian meal. Can only imagine if I ordered my favorite hot Chicken Curry. Looks like Indian Food Reflux is another documented post tx sympton, but I think I can live with that. What I'm not so sure I can live with is if Goofy sees this post and examines the gastro end of Indian food. Because while this thread started with what goes down the hatch, from the last post it looks like Goofy is going to take the thread all the way out the other end.

-- Jim
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Avatar universal
How could I have neglected to mention tail? My apologies as well as my gratitude. Be well, Mike
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92903 tn?1309904711
Wisdom, comedy and tap dancing all in one thread.... and a little tail!

Poo would be the one topic conspicuous by its absence....though maybe my being ful of it counts for something...take care y'all....
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Avatar universal
Thank you both so much for your help - and Kitty Mouse thanks you too. I feel very fortunate because, aside from the sound advice, I also found true humor in your responses. Wisdom, comedy and tap dancing all in one thread. It's more than a man ... or woman could ask for. Well, I wouldn't mind a little soft-shoe if either of you can manage it - and it might be less offensive to some because, after all, it is a lot quieter. Thanks again, Mike
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Avatar universal
Harry - I agree with you.  I perused a few of those posts yesterday and I was disgusted at how some people slammed the original poster (kimberlynn I think?).  I thought that maybe I was missing something, because I don't sit here all day and scrutinize every post.  She stated that she does NOT have hepc but she imbibes in alcohol...  BFD?  Her husband apparently does have hepc and hasn't stopped drinking yet - so I guess that's more the issue.  But some people called her an alcoholic and acted like she was on death's door...and I have no idea where that came from.  I have hep c, and my husband drinks...so what's the problem with that?  Can someone fill me in?
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86075 tn?1238115091
I basically agree with you, but people come on here asking about these issues...and this is a discussion board...that being said, I'm a big Fats Waller fan...
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163305 tn?1333668571
               I shudder at 'shoulds'.   I wish  people would get thier noses out of other people's business!!
  I forget who wrote it but I know at least Fats Waller was one of many who sang it.   "aint' nobodys business if I do."  
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86075 tn?1238115091
everyone's entitled to their own opinions, t'aint nobody's fault...as for who believes what, when and where - people can decide on their own, like always...no harm done...now for this 18 year old that I take care of, who I just found sneaking out with my cell phone cause she's maxed out her minutes on her own cell phone, Oy Vey!!!
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92903 tn?1309904711
Unlesss you have a thing for cats with stubby tails - I'd caution against too much booze for the kitty. Well at least that was my experience back in the day - whenever I wanted to get a little tail, it always started out with imbibng copius quantities of the drink...... worked once in a while too but in addition to a little tail, I'd sometimes end up with a stump where my arm once was.

-- Cayote Catcher

F & J -

My apologies for dragging this thread down that well worn road. I should have knowd better. Have a nice weekend all......
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86075 tn?1238115091
yeah, I agree with Bug, maybe those posts sounded harsh because of how scarry this is and it's unsettling, so people just react...and yeah, the poster did admit she had a problem with drinking, that it was hard for her to forgo drinking because of her husband...I would think, and this is not my case, that if my partner was struggling with alcoholism, and was facing hep c, that I would give it up for myself and his sake as well, or at least try...but that's just me...

I mean, if we're going to be honest about how we feel, it might sound judgmental sometimes, but we're just saying how we feel about a situation, that doesn't mean they have to take it to the bank....members can do whatever they want with the advice, info, they get here....listen to it, not listen to it, we're only posting on a board....we know only little bits of what's going on with people that post here...

In the long run, we're all free to do what we want...and after all, people come on here talking about these problems, and asking other takes, and sometimes the advice ins't as nicely put as they would want)...but like Bug said once, we can ask advice, but we don't always want to hear it...especially if it means we have to make big changes...

I understand that your work mate is way over-compensating for her own addiction problems, why doesn't someone there tell her to mind her own business? ha ha! If I was there I would, but then I'm a big mouth anyway, if you haven't noticed, :)
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92903 tn?1309904711
As one who has a liver that's in pretty bad shape following years of boozing and hep C, I'm certainly not about to recommend drinking in excess to anyone, especially not anyone with Hep C.

Still, I have always wondered about the vigor with which alcohol consumption is slammed here. Again, I ain't arguing that it's not bad for us.  I think we all know it is - but why make this into a moral judgement?

Smoking is bad for you. Horrid in fact. It trims years off anyone's life - too often many years - and it's particularly bad for people with Hep. Most people know that - and if they can't quit smoking there you have it. No one vilifies them for their habit - nor should they.

And what about the overweight? Major liver issue there - but for some reason  one that gets a pass. As it should. So why is booze singled out? And I  don't buy that it's because it has a bigger impact on health for one minute - if anyone is that concerned about the health of the tipplers, they ought to be equally worried about chubby smokers. There's some value judgements being made, if you ask me.

We're all left to do what we can and do what feels right for us.

Google 'obesity cirrhosis' and this is one of many hits:

One common cause of liver failure (and thus a common reason for transplantation of the liver) is cryptogenic cirrhosis (cryptogenic meaning that the cause of the cirrhosis is unknown). Doctors now believe that a large number of patients with cryptogenic cirrhosis are actually patients in the late stages of nonalcoholic fatty liver disease. Doctors and public health officials project that obesity related liver diseases (cryptogenic cirrhosis and liver cancer) will become the leading cause of liver failure and liver transplantation in the not too distant future.

From here: http://www.medicinenet.com/script/main/art.asp?articlekey=46582
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Avatar universal
People get so bent out of shape about drinking with hcv, yet most of us had the virus for decades without knowing.  Therefore, we were probably drinking (unless we never drank at all) with hcv.

I've never been much of a drinker - got drunk a couple-three times in college and hated it.  Ever since then I've never had more than one or two drinks in a day, and never more than once or twice a week, if that - until about 3 or 4 years ago when I read that a glass of red wine a day is good for your heart.  So, unaware of the virus lurking in my liver, I had a glass or two with dinner most nights.  

Once diagnosed, I realized I couldn't have a drop during treatment, but during the intervening months - while seeing a multitude of different docs, getting biopsied, filling up bottles and bottles of blood - I must confess that I had a few glasses at restaurants where the food deserved it - not many, because I cook very simply and can seldom afford to eat at the kind of place that warrants a good cabernet, but a few.  And I was UND at 4 weeks, so I guess it didn't hurt.  

Now, off treatment, I'm waiting for the 6 month SVR (I hope) before I return to my usual drinking.  I've actually become something of a wine connoisseur (but not a wine snob; it's double the pleasure when I find a good bargain), and I really look forward to visiting more vineyards and taking more classes in wine.  

As I understand it, alcohol isn't good for our livers, but neither are half the meds we all take.  After being diagnosed with hep c, I was sent to a psychiatric NP for an anti-depressant prescription.  I asked for one that doesn't cause weight gain, like Wellbutrin.  She looked up Wellbutrin in her book and said, "It's hepato-toxic."  Then she looked up another, and another and another - Prozac, Efflexor, the usual suspects - and exclaimed, "They're ALL hepato-toxic."  I believe in moderation in all things, including my vices.
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86075 tn?1238115091
Goofydad:  Still, I have always wondered about the vigor with which alcohol consumption is slammed here. Again, I ain't arguing that it's not bad for us. I think we all know it is - but why make this into a moral judgement?

To state the obvious? Cause it seems to be an overriding problem with many people who have hepatitis...and I know I'll get flack for this, cause some people will say that I'm adding to the stigma of a disease that's already stigmatized, etc etc...which is unfair to the many people who acquired this by other means- accidentally through blood borne transmissions, etc, and many of this segment have no other addictive issues, etc, etc...and there are many, many patients who have hepatitis who don't have alcoholic issues and it's unfair that they should be lumped into this....I don't mean to do that...

But the fact remains, that many, many people who do have hepatitis, have drug and alcohol issues...many people acquired hepatitis because of drug and alcohol issues...just look at whatever stats they have on this...

I realize at this point....it's not kosher to say this, so we don't...But this is something that many of us have had to surmount....This *remains* a challenge for many people with hepatitis and alcohol still kills many people with hepatitis, perhaps more so then these other agents you've mentioned...I'd venture to say so...

Even if you take a sampling of members on this very board...and some other boards I know of...there are people who have SVRed that smoke and/or are overweight...You certainly could make a case for saying these other agents make SVR more difficult?...The achievement AND the process....But I know of a few people here and elsewhere who have recently SVRed - who smoke and/or are overweight...so it's by no means unheard of...

But, if someone were to continue *drinking alcoholically* - I doubt that they would be in any position to even undergo treatment in the first place....much less be successful with it...we've all heard more then once how patients have reported getting deathly ill having tried alcohol while on treatment, even after finishing....alcohol seems to act as it's own kind of "antibuse" against drinking it while treating...

I'd venture to say that there are many alcoholics out there who have this disease, yet are unable to even consider treating it with the current drugs - for fear of having to give up alcohol to treat...thus, risking their lives in a very real way...

If you look at the stats on just alcoholic cirrhosis, even without hep c, it's pretty alarming...I've had a few docs tell me alcoholism is one of the more frustrating, defeating and persistent obstacles to having success in treating people with this disease...

As to any *moral* question, far be it from me...this has nothing to do with morals from my perspective...I just hate to see people wasting their lives, though I know not everyone can be saved from their addictions, everyone is on their own path and it sure ain't up to me....my sister taught me that much...but I do think it's a legitimate issue to talk about as it pertains to hepatitis, and boy have I ever...:)
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Avatar universal
Goofy: Still, I have always wondered about the vigor with which alcohol consumption is slammed here.
---------------------------------------
I half expected Carrie Nation ( http://en.wikipedia.org/wiki/Carrie_Nation ) to rise from the grave to post in one of these threads, or maybe she has :)

But more seriously, not everyone has a drinking problem, and many of us are allowed by our doctors to drink in social moderation. Practically a teetottler (Maybe 3-4 light beers a month max) I've been called an alcoholic here because I've posted some studies and remarks from my doctor that don't tow the temperance line. Carrie Nation would be proud :)

-- Jim
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179856 tn?1333547362
Personally for me the real subject matter with that person is that they are quite aware of what they are doing yet have no real desire to stop at all.   And I'm sorry while it's not good to smoke a pack of Marlboro's or eat three cheeseburgers for dinner - it's NOT the same as getting purposefully drunk every night.  We are not talking about 1 - 2 drinks we are talking ten drinks which to me is pretty damn hard core KNOWING you have a liver condition or the person you does does as well.

Many people come here KNOWING full well the CORRECT answer yet they ask "Is it ok for me to drink on treatment?" well they aren't here really asking a question what they are looking for is for ONE person to say it's OK so they can justify their actions with that.

I simply refuse to do it.  Anybody with a teeny tiny piece of a brain left KNOWS that we have all been taught, all our lives, alcohol will rot your liver. Having hepc and liver damage on top of that.........it's just looking for an excuse.

I won't EVER advise something sure it's fine, no problem.

If we can't tell the God's honest TRUTH to someone then we are of no use or help to them.  Telling them what they 'want' to hear just appeases someone.

It doesn't help them.

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179856 tn?1333547362
PS It would be hard to slam you Forseegood for just stating the obvious plain facts but in this politcally correct crazy world...........it wouldn't surprise me.

Still I want you to know I admire the way you can state the truth, even with fear of being putdown for it - but knowing that the truth is the more important thing.

You've got my vote.  For what I don't know but...you've got it still :)
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85135 tn?1227289772
In the lingua franca of the internet forums,   +1
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92903 tn?1309904711
Your points are all good ones, and you made some of which I was unaware. Still, I still feel there's is a certain condemnation that takes place here when discussion turns to alcohol that doesn't occur for other unhealthy behaviors. I can't put my finger directly on it, but I think it goes beyond that alcohol is more stressful on members' health than another vices. If you were able to tabulate the number of 'health units' that are compromised on this board by alcohol consumption, vs. the number that are compromised by other unhealth activities/lifestyles of the membership - I'm betting that the other top-two would outweight alcohol by a good measure.

Take me for ex. I've been slow to get out and exercise since tx and that is undoubtedly hampering my recovery. Poor lifestyle choice on my part. If this board had the bias against sedenrary lifestyles that it has against alcohol, maybe I would have been positively influenced by that collective mentality. But I'm here to tell you the rank and file are going to get their panties in knots and jump on this post with "Sitting on your fat-@ss is like pouring gasoline on a fire", or "Every missed bike ride is like playing playing Russian Roulette with your liver", or "Buy a Stairmaster and start a 12 step program today"!

I'm not riled up about this in the least. I just find it to be an interesting group dynamic.

Take care and be well.          
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86075 tn?1238115091
everyone took note that I was talking about "DRINKING ALCOHOLICALLY"....course, everyone is entitled to post whatever they want....but God knows why....whenever this subject comes around as is argued...

People will come on and say "What's all the fuss? Why be Carrie Nation or some other *prohibitionist* (which is vaguely insulting but I got a sense of humor) "I just drink a few drinks a week" etc...ect...hello!!! Jim I really value your opinions on many other subjects, but youre NOT talking about alcoholic drinking in your case, are you? Have I ever called you an alcohlic? I know I haven't....

Sooooo, we're talking apples and oranges here aren't we? UNRELATED ISSUES...Why call me Carrie Nation if, even you....I should think....would admit that drinking alcoholically is killing many people with this disease.... As for your contention that it's okay to drink a few drinks a week even *while* you have the disease, and you'd consistently quote Dr. Dietrich (the renoun hepatologist) saying is much?....well, he either changed his mind, or whatever, cause on his recent video he just said, "no alcohol with hepatitis"...plain and simple...

My points to Goofy were that while smoking and being overweight is certainly not condusive to clearing the virus, and are bad things in and of themselves...they are not hampering SVR AS MUCH as alcohol....inasmuch you can still TAKE treatment and ultimately SVR if you smoke and/or are overweight...

On the othe hand, drinking alcoholically STOPS many people with this disease from even treating - cause they don't want to have to give up alcohol in order to treat - DRINKING ALCOHOLICS THAT IS, ergo, many alcoholics are killing themselves who have this disease....Because many would agree....that "over-drinking" alcohol speeds up the disease process, often times dramatically...if you don't believe me, ask your respective hepatologists...I do think people killing themselves is rather dramatic and warrants being talked about in relation to these issues, as controversial as it seems to be...shoot me...for the most part lately, I avoid this issue like the plague, cause the same sillyness often comes up when youre trying to have a legitimate discussion of it...

For as much as some people complain that they are constantly being mis-read here because people don't bother to read the fine points of a person's post, yeeesh!..

respectfully to all, not mad at anyone, I think Jim makes a great contribution to this board, he's much more valuable to this board then I am and I don't think it's necessary to get mad at people I'm only typing to, hope everyone has a great weekend! I'm going to go soak my head, HA HA HA!
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Avatar universal
At the ripe old age of 63, I'm now at the point where a number of my peers have died from major illnesses.  One was an alcoholic, one abused everything, and the remainder were significantly overweight and thus, because they were too fat to do much, significantly sedentary as well.

But - although I may be condemning people who eat too much along with those who drink too much - there's a big difference between overweight and obese, alcoholic and temperate (but not abstinent).  I have never seen statistics indicating that people who are "pleasantly plump" face a shortened lifespan, just as I've never seen statistics showing any danger to the health of moderate drinkers.  Scientists seem to only study extremes - like the recent marijuana study where the subjects smoked an average of 75 joints a month.  Give me a break!  What does this mean to a person who smokes 5 or 10 joints a month?  Studies of alcoholics who drink 10 drinks a day don't tell us anything about people who drink 10 drinks a month.  I wish they'd do studies of moderate indulgences and let us know what is really dangerous to the average person.
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179355 tn?1207407251
Boy, is it to late to apologize? Lighten up folks. I'm sorry if my remark offended kimberlynn and I hope she understands my intentions. If anyone wants to drink I don't have a problem with it. If you want to eat in excess, knock yourself out. If you want to smoke pot, do cocaine, inhale cigarettes, jump out of airplanes, hit yourself in the head with a hammer, go for it. I guess there's consequences to everything we do in life. For me, realizing that HCV and drinking was not a good mix made me decide between life and death. Literally. When all I've read about Hepatitus C and the words "potentially fatal" keeps jumping out at me, thats probably enough for me to change my rose colored glasses and see my life in the real light. I can look back with hindsight and learn from my mistakes. The sad thing is, once you're gone, what good is hindsight? Again, let me offer my apology to kimberlynn.
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Avatar universal
I actually believe that an occasional glass of wine is good for my liver and my vet feels the same way. He didn't think, however, that it was good for my cat and my cat's liver is pristine - go figure. Maybe I should speak to a hepatologist and get this question resolved because my cat really likes a drink now and then and I hate to deprive him if it's not absolutely necessary. Mike
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86075 tn?1238115091
cause youre not an alcoholic? I do think that if youre living with an alcoholic, who is trying to give up drinking, the nice thing to do is give up drinking yourself, at least if youre in his company...at least while he's in the first stages of trying to give it up, which is the most tempting time for him.. In this case, this poster sais it was hard for her to give it up, and her husband wasn't even trying to give it up, and he has hep c.....my sister is an alcoholic, and my parents don't drink in front of her cause obviously it's hard for her...I think these facts are getting lost in these threads...but I'm done with trying to oversee facts, it's certainly out of my control, ha ha! it's a beutiful day outside! hope all is well...
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Avatar universal
cause youre not an alcoholic?
______________________________
Neither is my husband... but I still don't understand why kimberlynn was attacked like she was.  I agree with your statement "the nice thing to do is give up drinking yourself, at least if youre in his (the alcoholic) company"  - but she can't make him quit.  
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