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swollen eyes
I checked the archives, could not find anything on swollen eyes. My eyes have pools of fluid in spots around them , I have tried tea bags cucumbers, hot and cold packs. I have stoped any makeup, I am assuming this is some kind of effect. I had to start on thyroid meds, this is when this started, but I do not see this on the side effects Anyone else experiencing this sympton?
thanks for the commplement, I try to keep abreast..but even the nerdiest nerd will only possess 1% of the available wisdom.
one other thing they don't tell us is how many skin creams and conditions require one to stay out of sun....there are literally hundreds of creams that will give you brown spots...cortisone is the chief culprit, but not the only one.
That's why I use olive oil...I really don't trust all the chems in the so-called rejuvenating creams.
one other thing they don't tell us is how many skin creams and conditions require one to stay out of sun....there are literally hundreds of creams that will give you brown spots...cortisone is the chief culprit, but not the only one.
That's why I use olive oil...I really don't trust all the chems in the so-called rejuvenating creams.
I guess it is discoloration around my eyes, almost brown in apperance, this seems to be clearing up , I had cream from the rash I had in the begining, so I was very careful not to get in my eyes, this is helping, Now if I can keep from biting my cuticles, they keep getting infected, bad habit. You are very knowlegeable, you should have been a doctor! Thank you again for your responses Mary Ann PS I always tell people to be proactive, which is hard to do with some of the egoes of these doctors
thanks, you know one other thought, the fluid you say is in "spots"
spots are often reactions to a substance...in other words, little vessels break, or water blisters form, usually in response to a substance.
Think back to when the whole thing started.
Did you use any new cream or makeup??? It could show up days later.
Did you pet a new animal, (we have antibodies to our own pets dander, but not to other animal's dander....(slight differences just like in pollens between danders)
Or did you maybe cook with something and touch or rub you eyes.
Usually the culprit for swollen eyes here is hot peppers....bit I learned that the hard way...but other things can do it...perfumes, deodorants, herbs, cleaners, etc.
even things they give you at the docs....like those new hand stations for waterless washing...well they all have some serious chemicals....one that kill MERSA and so forth...well that's good, but their allergen record is NOT good....in fact most say
"do not use any where near the face, mouth ot eyes.
The problem is folks don't read fine print, and also folks don't realize how often we touch our own mouths and eyes without thinking about it.
Ergo, washing with these products can cause what you describe, and I don't think they are safe for that reason...people absent mindedly will rub their eyes not realizing they've introduced a strong germicidal to sensitive tissues....
actually those products are no different than pesticides and we wouldn't rub those on our faces...yet we are being encouraged to use these thing regularly.
I know the theory is an ounce of prevention, but it could mean that our preventative end up causing a resistant superstrain rather than preventing one...
anyway, just some more thoughts....
I didn't notice the first time I read your post that you wrote SPOTS around the eyes...
(my bad for skimming) but that word was a trigger for me remembering this stuff...
shoes to go ya it pays to reread questions sometimes..
mb
yeah, we'll have to compare notes sometimes on diagnostics....I think I'm up to six of the last 8 issues I diagnosed...months or even years before the docs figured it out...
doctors are human beings, and all human have error codes...in fact, some have more error codes in their data than decent coding...oy.
I guess that just like our programs in cyberspace need updates to continue to run, our docs do as well...Unfortunately, the requirements to maintain ones medical creds are seriously behind the curve. 3/4 of the current research and even much of new SOC I've mentioned in the last 5 years solicited blank stares. Which means what passes for keeping abreast is really just a bad b.oob job (pardon the pun.)
spots are often reactions to a substance...in other words, little vessels break, or water blisters form, usually in response to a substance.
Think back to when the whole thing started.
Did you use any new cream or makeup??? It could show up days later.
Did you pet a new animal, (we have antibodies to our own pets dander, but not to other animal's dander....(slight differences just like in pollens between danders)
Or did you maybe cook with something and touch or rub you eyes.
Usually the culprit for swollen eyes here is hot peppers....bit I learned that the hard way...but other things can do it...perfumes, deodorants, herbs, cleaners, etc.
even things they give you at the docs....like those new hand stations for waterless washing...well they all have some serious chemicals....one that kill MERSA and so forth...well that's good, but their allergen record is NOT good....in fact most say
"do not use any where near the face, mouth ot eyes.
The problem is folks don't read fine print, and also folks don't realize how often we touch our own mouths and eyes without thinking about it.
Ergo, washing with these products can cause what you describe, and I don't think they are safe for that reason...people absent mindedly will rub their eyes not realizing they've introduced a strong germicidal to sensitive tissues....
actually those products are no different than pesticides and we wouldn't rub those on our faces...yet we are being encouraged to use these thing regularly.
I know the theory is an ounce of prevention, but it could mean that our preventative end up causing a resistant superstrain rather than preventing one...
anyway, just some more thoughts....
I didn't notice the first time I read your post that you wrote SPOTS around the eyes...
(my bad for skimming) but that word was a trigger for me remembering this stuff...
shoes to go ya it pays to reread questions sometimes..
mb
yeah, we'll have to compare notes sometimes on diagnostics....I think I'm up to six of the last 8 issues I diagnosed...months or even years before the docs figured it out...
doctors are human beings, and all human have error codes...in fact, some have more error codes in their data than decent coding...oy.
I guess that just like our programs in cyberspace need updates to continue to run, our docs do as well...Unfortunately, the requirements to maintain ones medical creds are seriously behind the curve. 3/4 of the current research and even much of new SOC I've mentioned in the last 5 years solicited blank stares. Which means what passes for keeping abreast is really just a bad b.oob job (pardon the pun.)
Stalion...your docs were just like mine. I had elevated LFTs since the late 70's and none of my docs ever told me until a year or so before my Hep C diagnosis. I only know that because I researched my old records after I got the Hep C diagnosis. Imagine having a yearly physical every year and having elevated LFTs every year but no one thinks a thing about it...and I had no history of alcohol use or medication use so there was no external cause for the elevations. Kind of makes me wonder why they do the tests.
Thank you I know I have helped diagnosed some of mt friends and relatives, accually if it had not been for my urging my GP for further tests, because they have made light of these elevated liver functions I have had for 30 years. I have been to 5 doctors, and had all kinds of diagnoses,from epstien-barr, to depression, one thought I was a closet drinker, I hardly ever drank. Thank You for your thoughts, I can tell you now the doctor I go to does not like being told how to do his job. I have thought of going to another, but afraid the insurance would not cover it.
"Somedays I am ready to call it quites, like they say the cure is worse than the disease!"
Yes it does start getting pretty old especially around 5-6 months in. Another argument for people that don't have advanced disease and geno 1 to wait for the new drugs so they can treat for half the time with much better odds of svr.
Keep plodding along, as you know some days are better then others. You are going to get through this and you've already put almost half the time into it.
take care- Dave
Yes it does start getting pretty old especially around 5-6 months in. Another argument for people that don't have advanced disease and geno 1 to wait for the new drugs so they can treat for half the time with much better odds of svr.
Keep plodding along, as you know some days are better then others. You are going to get through this and you've already put almost half the time into it.
take care- Dave
For all your responses, they are all really helpful, Somedays I am ready to call it quites, like they say the cure is worse than the disease!
"Thanks for you input, it is hard to tell what is from the hep tx or other problems, I will have to check with my doctor. Thank you"
The list of sides is so vast and some are so subjective that you are right. It's often difficult to know what is from tx, and what is not. I am completing week 25 and I assume most sides I have are not worth worrying about. If you are worried about something it's worth asking the doctor. Of course there are some people that worry about everything, so there is a balance.
I would personally choose to talk to the doctor if I was experiencing what you are describing, especially since it started when the thyroid meds started. You don't want to mess around with thyroid issues.
- Dave
The list of sides is so vast and some are so subjective that you are right. It's often difficult to know what is from tx, and what is not. I am completing week 25 and I assume most sides I have are not worth worrying about. If you are worried about something it's worth asking the doctor. Of course there are some people that worry about everything, so there is a balance.
I would personally choose to talk to the doctor if I was experiencing what you are describing, especially since it started when the thyroid meds started. You don't want to mess around with thyroid issues.
- Dave
you may become allergic to skin creams as well while on tx.
I would suggest you stick with olive oil if you need a night cream.
Beyond that I would see an endocrinologist.
You may want to search for an MD willing to do a full thyroid panel and consider alternative thyroid meds.
If you have problems on T4 only (levythyroxl, synthroid etc) it could be your T3 and conversions are optimum. Some folks do fine on the T4 only as the body converts it, but not ALL bodies do it well...in which case you may need meds which include T# and thyroxine as well.
a lot of things besides all this can cause fluid retention so I'd make a trip to your liver doc, make sure your blood sugars, your heart and kidneys are all still doing well...things can change rapidly sometimes while on tx so it's better to err on the side of caution here, and get a little extra attention to see if you can find the cause.
Also, stay away from all shell fish, this is very hard on liver/kidneys, especially while on tx. Pay attention to when it happens to rule out a food source. Just some thoughts.
mb
I would suggest you stick with olive oil if you need a night cream.
Beyond that I would see an endocrinologist.
You may want to search for an MD willing to do a full thyroid panel and consider alternative thyroid meds.
If you have problems on T4 only (levythyroxl, synthroid etc) it could be your T3 and conversions are optimum. Some folks do fine on the T4 only as the body converts it, but not ALL bodies do it well...in which case you may need meds which include T# and thyroxine as well.
a lot of things besides all this can cause fluid retention so I'd make a trip to your liver doc, make sure your blood sugars, your heart and kidneys are all still doing well...things can change rapidly sometimes while on tx so it's better to err on the side of caution here, and get a little extra attention to see if you can find the cause.
Also, stay away from all shell fish, this is very hard on liver/kidneys, especially while on tx. Pay attention to when it happens to rule out a food source. Just some thoughts.
mb
Optical complications hardly ever come about, I mean plenty of blurred vision problems and stuff like that but swollen eyes and spots are a bit different. You can go to the archives and look up (cotton wool spots) but either way, you should talk to your doctor about it. Any kind of visual spots are something to focus on, no pun intended. good luck
I had swollen eyes while on treatment...and it was very red and hot around my eyes. I used hot packs and sometimes cold packs on my eyes to help and I took benedryl and Zyrtec. I was also on thyroid meds during treatment (and I still am on them) but I didn't find that it was connected to the thyroid meds and, in fact, it went away after treatment.
Since you did notice a direct connection to the thyroid meds, you should talk to the prescribing doc. It could be an allergic reaction. If it's not from the thyroid meds, it could just be a reaction to the treatment meds.
Since you did notice a direct connection to the thyroid meds, you should talk to the prescribing doc. It could be an allergic reaction. If it's not from the thyroid meds, it could just be a reaction to the treatment meds.
Thanks for you input, it is hard to tell what is from the hep tx or other problems, I will have to check with my doctor. Thank you
I've had swollen eyelids and puffy eyes on and off all during tx. But I've always had sensitive eyes when any allergy pops up. Benadryl helps me a lot. But since your problem started with the addition of thyroid medicine perhaps that community would be better able to help you. A quick look over there shows it is a common problem. Maybe Monday when NYgirl comes back she can chime in. I know she had to deal with thyroid while on tx too. Swollen eyes can be very annoying and hope you can resolve this soon.
Carol
Carol
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sheesh...I started studying this disease 30 years ago and it still amazes me what passes for good medicine with this disease.
I've saved a couple of friend with my bizarre little known factoids, and even have one friend who was able to conceive children after listening to me and getting the right tests...so maybe it's time I share:
generally, the HCV tx tend to make people hypo, but not always, sometimes it hyper, sometimes it's hasimoto's..wilson's, graves, etc etc etc..all chemo can kick off autoimmune stuff so determining which type you have is helpful.
also, older doctors as well as some youngster from inferior schools still order a "full panel" ....meaning TSH, T4, T3 uptake, and FT index, but it's not the right order, it's an outdated panel, period.
TSH alone will tell you nothing, because TSH can lag behind low thyroid hormone production by months, every time you change dose it take 2 months to get a good read on your new level. So the doc can think you are fine when you are far from it, especially true w/hasimoto's since the progression tends to mean dosage must increase as the gland dissolves.
also at least if they do the right T3 test you'll have an idea...if you are already on T4 (levthyroxy, levythyroxine, synthroid, etc) and your free T3 is low you'll know you are not converting well.
So, the revealing panel for most cases of hypoT = TSH, FREE T4, and FREE T3, but to rule out hasimoto's you need to press for the anti-thyroid (TPO and Tg) antibodies.
Since while on chemo it's just as likely to be Hasimoto's (auto-immune) as it is garden variety you really need the right test to detect autoimmune...if it's that much more needs doing for you, and soon.
Emphasis on the word FREE on the right panel BTW.Otherwise you have been given a bandaid without washing the wound first, so to speak.
What did you say your thyroid numbers were?? You didn't say??
So then results wise, if either or both the free hormones are below the middle of the lab range, no matter where the TSH value, there is a problem. EVEN if the TSH is mildly elevated (meaning above 2, but below the upper limit), and the free Ts are solidly mid-range, but anti-thyroid antibodies and symptoms are present, the most enlightened doctors will begin treatment. That's because the ABs indicate Hashimoto's disease, and the gland is doomed to failure anyway.
Even if you get hasimoto's however, I wouldn't stop tx, simply because you can live without a thyroid, but not without a liver...nes pas?
I wouldn't assume your doctor know how's to treat thyroid disease, most of the endocrinologists are still going old school in spite of ample research contrary to their tutelage. There was a patient in here a couple days back that was told they were fine with a TSH of 5...no mention of other testing...sheesh.
So bottom line TSH is not nor should it ever be the be-all and end-all test.
That's just cheaper and lazier medicine (and what most docs still do sadly enough.)
Thyroid disease can't be correctly diagnosed without all the information, but since most folks fall into the common garden variety category (hypo and able to convert T4, the SOC is to just do the minimum and assume this will cure most folks...it does do that if you have garden variety...., unless you happen to be in the minority and then you suffer needlessly because your doc is stuck on stupid.
Since the Interferon can just as easily cause autoimmune thyroid disease...after all it is interferon hello...you know, the substance that attacks foreign bodies and sometimes attacks healthy body tissue...hello, why docs don't screen for antibodies for patients on INF is beyond me. The hepatologist and endocrinologist are NOT all paying attention here!
of course, this doesn't mean your eye situation is related to your thyroid...it just means I'm sick of clueless "practitioners" and needed to vent!!
mb